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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Could I Have Celiac Disease?
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Hello. I am a 26 year old female who has been experiencing some GI issues for a couple if years. Up until recently my symptoms were mild and not concerning. In 2010 I had my gallbladder removed. After surgery I began noticing that my bowels had changed. I could no longer eat fried foods, sauces, processed meats, etc without having diarrhea. Since then I can't remember the last time that I had a "normal" BM. Anyhow around Christmas of last year I developed new and alarming symptoms. I experienced diarrhea for 2 weeks straight. No I did not have the stomach by or anything else GI related. During these two weeks I would experience severe aBD pain, sweats, nausea and burping. Just this week the pain was soooo bad I had to leave my 4 year old who had a 103+ fever and my other 2 children with their grandmother at 2a to go to the ER. Along with the above symptoms I also experienced dizziness and felt like I was going to pass out, my heart was racing and I felt so weak. Diarrhea was also accompanied. I also have another symptom not related to GI but over the summer my right hand became really dry ( almost like dermatitis). My right hand is still the same and drs do not believe it to be dermatitis. They have suggested it could be diet related- milk allergy or gluten allergy. I am going to the dr on Friday for a ER follow up and just wanted opinions of others. Thanks.

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Whatever it is,

Please get well.

I hope the tests will be difinative for you. Many of the symptoms sound like celiac and you need to find out what is causing it and try to solve it.

Diana

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Thank you! I just hope the drs listen and don't give me the run around!

When others have been tested for celiac disease did they instruct you to go on a gluten free diet first or did they do labs etc???

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They are supposed to do the tests first, the blood tests measure whether or not you have antibodies to the proteins in the wheat family. A lot of people who are celiac or gluten intolerant also become lactose intolerant as a result, this may clear up after being gluten free for a while, so people can add back in cheese or yogurt. Others are casein (milk protein) intolerant and end up off of dairy, fortunately, there are a LOT of tasty non dairy substitutes now like coconut and nut milks, even hemp milk.

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Technically, i've heard that certain foods should be avoided after removal of the gallbladder (fried?) due to "D" issues.

ah, wikipedia has a bit more on it:

http://en.wikipedia....Cholecystectomy

They say up to 20% have unexplained "D" afterwards that clears up? Huh.

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Thank you! My two youngest children have a milk protein allergy. So they are on a soy diet. You can see a reaction if they consume something with casein in it!

I don't always have "D" from eating fried foods. Just French fries take an immediate toll on me. That is why I also thought gluten intolerance. My family eats a lot of pasta and such because my husband is Italian.

Hopefully tomorrow I will be able to get some answers. :)

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French fries? do you have any other issues with potatos (or nightshades really)?

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Nightshades? I don't know if I have any other issues to potatoes. I just eliminate French fries. I do however experience almost immediate diarrhea after eatting. Pastas, grains especially. :( I always attributed it to not having my gallbladder but once it's removed those symptoms are suppose to be eliminated. I just want to find out what it wrong. I had a ct scan while in the ER and it ruled out appendicitis, Ibs and chrons. ER doc suggested the milk/gluten allergy as did other drs in the past with my hand issue. Just add the past two episodes of extreme adb pain. It scares me. :(

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    • Hi Allie and welcome First off, I know 3 years was a long wait, but at 17 you've figured out celiac way before many people do. That should make a big impact on minimising its effects and helping you with the diet, so, bizarrely enough, congratulations!   A lot of good advice has been brought together in this thread:  Don't worry that your symptoms are bad now. As you follow the diet your body will begin healing itself and you're still very young so hopefully this will go really smoothly. Think in terms of the next 6 months rather than weeks however, recovery will likely take a little time. Eat as healthily as you can, lots of whole foods and try to avoid the gluten free processed substitutes as your digestive system needs all the help it can get at this moment.  You may want to avoid dairy as well for now and think about reintroducing it later. This site has been really helpful to me and others. I hope you find it just as useful. Best of luck!   ps, your increased reaction to gluten during the challenge phase was perfectly normal. Many find that reintroducing it much worse than the initial affects and take some time to get over the challenge. That's why you'll see lots of posts here urging folks to 'stay on gluten' till their testing is complete!
    • Hi! My daughter is 19 was diagnosed at age 16. It took about 12-18 month s for her to fully heal from the damage and feel "normal" again. Also because of the damage done she had reactions to dairy, so you may want to try no or minimum dairy until youre fully healed. Just a suggestion. Hope you start feeling well soon!
    • Hi yall! New to this blog, but really glad it exists because I have lots of questions. First off, I'm Allie! I'm 17 and newly diagnosed Celiac after about 3 years of searching for answers. I initially went gluten-free on the recommendation of a friend, I felt better in about a month and then my pediatric gastroenterologist had me do the gluten challenge, and my symptoms were the worst they have ever been, and ones I barely noticed before became very present. I did the biopsy and was diagnosed, it's been about 2 weeks and my symptoms are still pretty bad, although my diet has no known sources of gluten or cross contamination. Wondering if anyone has any input on healing post gluten challenge, any tips or how long it took for you would be quite helpful! Thanks 
    •   Might want to look into a keto diet, I have UC on top of celiacs and keto is working great Yeah I have major nerve and brain issues with gluten, gluten ataxia with nerve issues and brain issues. Seems to cause my body to attack my brain and nerve system. My brain stumbles fogs, and starts looping, the confusion causes me to become really irritable, I call it going Mr Hyde. Like my mind will start looping constantly on thoughts and not move driving me literally mad, or it used to. Now days it is primary the numbness anger but the gut issues and sometimes random motor loss limit me motionless to the floor now days for the duration of the major anger effects. Used to be a lot more mental then painful gut. I did a mental trauma post on it on while back where I came out about all my mental issues with gluten.  
    • ^^^^^^ good info, tips and tricks^^^^^^^^^ yes, crumbs will make you sick.  also, breathing flour/pancake mix, etc that is in the air because eventually, you're going to swallow some. 
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