• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Secret Deodorant
1 1

37 posts in this topic

I am newly diagnosed with celiac disease so I have been contacting all companies of my favorite product to make sure they are safe. This is the email I received back from Secret. What do you think? Would you use their product? ::

We know Celiac is a serious disease, so we want to give you clear information regarding the use of our beauty care products. If wheat and/or gluten aren't directly added to a product by us, these ingredients won't be listed on our packages. Like many companies, we often purchase the scents for fragranced products from outside suppliers, and the components of these substances are proprietary information belonging to those companies. Therefore it's possible that a very small amount (generally parts per million) of gluten may be present.

We sought advice from physicians; they told us it would be very unlikely a person with Celiac disease would have a reaction from a trace amount of gluten coming into contact with his skin or hair. This is because wheat, rye, barley and/or gluten generally cause symptoms when they're ingested. Since our beauty care products are designed to be used externally on the skin, their use shouldn't be an issue for someone with this disease.

Since gluten sensitivity can vary among people, it would be best if you consulted with your physician about the use of all types of consumable goods, if you haven't already. You might even consider using one of our fragrance free products that doesn't list gluten or wheat extracts on the label.

Thanks again for getting in touch with us. I hope this response has been helpful to you. For more information about Celiac, you may want to check out http://celiac.com/ and http://celiac.org

Sharmand

Secret Team

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Gluten must be in the GI track for a Celiac reaction. Many choose gluten-free lotions and shampoos because it is easy to get them in the mouth. I don't worry about deodorant.

1

Share this post


Link to post
Share on other sites

I didn't think deodorant would be a big deal about gluten. So I was using Ban Sweet Surender which has barley in it. Big mistake. I was having vague symptoms for 2 and a half weeks some time after I had started using it. How could it be possible? I don't really know, but I got rid of the Ban and got better. Was it caused by the length of my hair? Not coming out completely during laundering? Was it just some virus?

Lesson learned. Don't bring gluten things into the household if you have an alternative safe product you can use.

0

Share this post


Link to post
Share on other sites

It's the aluminum in anti-perspirants that is a problem - for everyone, not just celiacs. I have heard there have been studies done that show women who apply anti-perspirant after shaving have a 30% higher incidence of breast cancer than women who don't.

I use milk of magnesia. A little messy to apply, and you have to let it dry before getting dressed, but old folks like me are used to that. It wasn't THAT long ago when deodorants came in liquid roll-on form.

The milk of magnesia absolutely KILLS all odor. It works better than anything on the market. I have even heard that people who have stinky feet can use it and it completely kills the odor for them too.

0

Share this post


Link to post
Share on other sites

Thanks for the tip Bartie! I know of the research showing the higher cancer risk, but I just don't know how to live longer ~if I had to smell bad. :D

0

Share this post


Link to post
Share on other sites
Ads by Google:


Thanks for the tip Bartie! I know of the research showing the higher cancer risk, but I just don't know how to live longer ~if I had to smell bad. :D

Quite easily. The stink will cause all the assassin ninjas to make a "phew!" noise as they sneak up on you, giving you the edge. It is surprising what smelling bad can do for you, and you can be sure to live a long and happy life free of assassin ninjas. People who wear deodorant never hear them coming. :ph34r:

2

Share this post


Link to post
Share on other sites

coffee spit on keyboard! :D I thought I heard some rustling earlier. :ph34r:

1

Share this post


Link to post
Share on other sites

Thanks everyone for your replies! And for making be laugh! I have been reading Elisabeth Hasselbeck's book and I'm feeling pretty overwhelmed because it seems that EVERY product I use contains gluten.

0

Share this post


Link to post
Share on other sites

Don't listen to Hasselbeck when it comes to Celiac....she's an empty headed celebrity who has been WRONG on many occasions with her supposed knowledge of this disease. Get a book by a real doctor or one recommended by a reputable celiac organization or a veteran celiac who has done their homework. Unless you have habits that will make it easy to ingest your products, or you have a topical wheat allergy, gluten cannot be absorbed through the skin. With time, you will learn all the in's and out's and be comfortable with this!

1

Share this post


Link to post
Share on other sites

Don't listen to Hasselbeck when it comes to Celiac....she's an empty headed celebrity who has been WRONG on many occasions with her supposed knowledge of this disease. Get a book by a real doctor or one recommended by a reputable celiac organization or a veteran celiac who has done their homework. Unless you have habits that will make it easy to ingest your products, or you have a topical wheat allergy, gluten cannot be absorbed through the skin. With time, you will learn all the in's and out's and be comfortable with this!

This is a very good point. I never checked to see if my deodorant is gluten free because I don't go around touching or licking my armpits. On the other hand, I do only use gluten free lotions and hair products. Not because I go around licking myself or am paranoid about absorbing it through my skin but because I am quite in the habit of touching my hair, face, etc and just don't want to take that sort of risk. Seems silly to me to try to break a totally benign habit when I can just not put gluten in my hair or on my body with lotion. Getting medical advice from random celebrities is probably not the best place to be getting it when there are so many reputable celiac specialists who are have books or websites with advice for free.

0

Share this post


Link to post
Share on other sites

I am open to book recommendations if anyone has some! That book was just recommended to me by a lot of people so I picked it up and have found it informative. I have DH on my scalp so I'm thinking that gluten free skin and hair products would be beneficial??!!

0

Share this post


Link to post
Share on other sites

I use baking soda for deodorant, after I had a really severe topical reaction to yet another deodorant a few years back. I have no idea what the ingredient was that set me off, but I don't want a repeat reaction. Now, much to my shock, the baking soda works MUCH BETTER than any deodorant I was using. I have this theory that the bottles of roll-on types or the solid waxy sticks pick up skin bacteria and store it, then it gets re applied to your skin, where it starts to grow and stink. I put the dry baking soda in another clean bottle and just sprinkle it on the damp skin and rub it so it is not clumped or thick. It does not look like it should work, but it does.

For shampoo, the Dr Bronner's is good. Dove is good, but the scent is too strong for my liking, it clashes with my other mild perfume. There are some other brands out there that have glutenfree versions, like Alaffia shea butter liquid soaps. I also have older hair that is color treated, so I tend to just rinse it daily, and save lathering it for when it needs it. Conditioner: I use diluted pure apple cider vinegar on my hair in a 7 parts water to 1 part vinegar solution, for a conditioner rinse or a spray on, after shampooing and rinsing. This corrects the pH closer to normal for hair, as soap is base and vinegar is acid. If my hair needs more, I then take a tiny amount of pure shea butter or coconut oil in my palm, and rub that into my hair thoroughly. Deep conditioning, put on the coconut oil first, more of it, then wash and rinse, respray with vinegar water.

I won't get into the whole "is this necessary or not argument" but I have very sensitive skin, and I was doing this before I cut my hair shorter, and I am a "hair twiddler" who plays with it absent mindedly, and this way I'm not touching a surface with a lot of conditioner with oats or wheat or soy and oil on it. I also don't want this stuff spreading all over my towels, pillowcases, etc, and I don't want the allergy- dog reacting if I give him something out of my hand. I am so thrilled that I finally found the class of ingredients I should not be putting on my scalp to make my skin blotch out and make my skin itch. I will do anything to reduce my overall exposure to gluten and oats. I do not care what the experts think of my routine. I was constantly having contact reaction skin problems when younger, from toiletries, and inspite of allergy testing, no one ever suggested to try to eliminate THIS from the soaps/lotions/makeup I used, it was all trial and error. Grrrrrrrrrrrrrrr. Nothing like trying to go somewhere and having a reaction to your eye makeup, ggggrrrr :angry::ph34r: grrrr, that makes you have tears running down your face, and you're in a rest room frantically trying to get it off. Went to mineral makeups, and that is no more. :)

0

Share this post


Link to post
Share on other sites

I use baking soda for deodorant, after I had a really severe topical reaction to yet another deodorant a few years back. I have no idea what the ingredient was that set me off, but I don't want a repeat reaction. Now, much to my shock, the baking soda works MUCH BETTER than any deodorant I was using. I have this theory that the bottles of roll-on types or the solid waxy sticks pick up skin bacteria and store it, then it gets re applied to your skin, where it starts to grow and stink. I put the dry baking soda in another clean bottle and just sprinkle it on the damp skin and rub it so it is not clumped or thick. It does not look like it should work, but it does.

For shampoo, the Dr Bronner's is good. Dove is good, but the scent is too strong for my liking, it clashes with my other mild perfume. There are some other brands out there that have glutenfree versions, like Alaffia shea butter liquid soaps. I also have older hair that is color treated, so I tend to just rinse it daily, and save lathering it for when it needs it. Conditioner: I use diluted pure apple cider vinegar on my hair in a 7 parts water to 1 part vinegar solution, for a conditioner rinse or a spray on, after shampooing and rinsing. This corrects the pH closer to normal for hair, as soap is base and vinegar is acid. If my hair needs more, I then take a tiny amount of pure shea butter or coconut oil in my palm, and rub that into my hair thoroughly. Deep conditioning, put on the coconut oil first, more of it, then wash and rinse, respray with vinegar water.

I won't get into the whole "is this necessary or not argument" but I have very sensitive skin, and I was doing this before I cut my hair shorter, and I am a "hair twiddler" who plays with it absent mindedly, and this way I'm not touching a surface with a lot of conditioner with oats or wheat or soy and oil on it. I also don't want this stuff spreading all over my towels, pillowcases, etc, and I don't want the allergy- dog reacting if I give him something out of my hand. I am so thrilled that I finally found the class of ingredients I should not be putting on my scalp to make my skin blotch out and make my skin itch. I will do anything to reduce my overall exposure to gluten and oats. I do not care what the experts think of my routine. I was constantly having contact reaction skin problems when younger, from toiletries, and inspite of allergy testing, no one ever suggested to try to eliminate THIS from the soaps/lotions/makeup I used, it was all trial and error. Grrrrrrrrrrrrrrr. Nothing like trying to go somewhere and having a reaction to your eye makeup, ggggrrrr :angry::ph34r: grrrr, that makes you have tears running down your face, and you're in a rest room frantically trying to get it off. Went to mineral makeups, and that is no more. :)

Thank you so much for all of the great information!! I bought some gluten free shampoo and conditioner today, it is Kirkland which is Costco's brand. I too am a hair twiddler, I have very long hair and DH on my scalp. I need to look into the mineral makeups as well, I have had an itchy rash between and in my eyebrows and now I know my makeup contains gluten. I would rather be safe than sorry with all of this, I have been SOOOOO sick for so long that it isn't worth it to me to chance it. Although it can make me a little bit crazy. I tend to be a huge germaphobe and now I am turning into a glutenaphobe, LOL.

0

Share this post


Link to post
Share on other sites

I use crystal deodorant-- it's just mineral salts. I like that there is no residue at all, no odor, is effective, and I smell like me :)

0

Share this post


Link to post
Share on other sites

Ugh! Deodorant...one more thing to check. I was using some Degree and have been feeling a little irritated in that area, never would have crossed my mind that my deodorant should be gluten-free.

0

Share this post


Link to post
Share on other sites

Another thing to consider - Are you using one of the disposable razors with the "moisturizing strip" on it, by any chance ? I absolutely loathe those things, if I use one and don't rewash and rinse the area really well, I come up with a huge, red welt on my underarms with some brands. I used one on my legs without rinsing once, after getting out of the shower, and it was even worse. :angry: :angry: :angry: :angry: All of these plastic products are being made overseas now, and we really have NO idea what is in them, when they glue "something" on there. Had to really search for plastic razors that don't have it.

0

Share this post


Link to post
Share on other sites

Another thing to consider - Are you using one of the disposable razors with the "moisturizing strip" on it, by any chance ? I absolutely loathe those things, if I use one and don't rewash and rinse the area really well, I come up with a huge, red welt on my underarms with some brands. I used one on my legs without rinsing once, after getting out of the shower, and it was even worse. :angry: :angry: :angry: :angry: All of these plastic products are being made overseas now, and we really have NO idea what is in them, when they glue "something" on there. Had to really search for plastic razors that don't have it.

Ugh! That's frustrating! I'll have to check my razors!

0

Share this post


Link to post
Share on other sites

You know I have been thinking about this a bit longer. My husband switched deodorants. This one is stronger scented. I could smell it all over his shirt as I pulled it out of the washer.

Then I did some more testing. I added some baby powder or sprayed clothes with Febreeze before washing them. I could still smell the baby powder or Fabreeze. Not on a single item this time, only when the clothes were in a bunch. Is the washing machine the ultimate cross contaminator? That is where the people washclothes and the kitchen wash cloths go at the same time. Wash cloth wiping all the kitchen counters, washing dishes.

I just know I needed to get every gluten item out of our house. I can't prove exactly why it was such an issue causing slight symptoms.

0

Share this post


Link to post
Share on other sites

You know I have been thinking about this a bit longer. My husband switched deodorants. This one is stronger scented. I could smell it all over his shirt as I pulled it out of the washer.

Then I did some more testing. I added some baby powder or sprayed clothes with Febreeze before washing them. I could still smell the baby powder or Fabreeze. Not on a single item this time, only when the clothes were in a bunch. Is the washing machine the ultimate cross contaminator? That is where the people washclothes and the kitchen wash cloths go at the same time. Wash cloth wiping all the kitchen counters, washing dishes.

I just know I needed to get every gluten item out of our house. I can't prove exactly why it was such an issue causing slight symptoms.

I've noticed some household solutions have scents on steroids. As in it takes 5 washings to get the smell out. If ever. So I don't necessarily think your washing machine is a cc machine. I think some scents are nuclear grade.

That said, depending on the machine (age, type) it can do it's job better or worse.

I wash our bathroom and kitchen towels on "sanitize" and it helps alleviate smells and bacteria. Gluten, I have no idea. It's a front loader, low water machine.

0

Share this post


Link to post
Share on other sites

This is a front loader and I wash whtes on sanitize too. That is the load I used the baby powder on. <_<

I was trying to see the difference of a "solid" the powder and "liquid" the Febreeze.

It's not like anyone chews on clothes or eats deodorant. :D If you do I think they will put you on a show called "My strange addiction." :ph34r:

0

Share this post


Link to post
Share on other sites

You know I have been thinking about this a bit longer. My husband switched deodorants. This one is stronger scented. I could smell it all over his shirt as I pulled it out of the washer.

Then I did some more testing. I added some baby powder or sprayed clothes with Febreeze before washing them. I could still smell the baby powder or Fabreeze. Not on a single item this time, only when the clothes were in a bunch. Is the washing machine the ultimate cross contaminator? That is where the people washclothes and the kitchen wash cloths go at the same time. Wash cloth wiping all the kitchen counters, washing dishes.

I just know I needed to get every gluten item out of our house. I can't prove exactly why it was such an issue causing slight symptoms.

That's a good point! Sheesh, if I'm not careful I might just make myself crazy with all of this cc talk. If someone in my house get's sick, I am a sanitizing maniac. I can see myself getting a bit obsessive about gluten. How does everyone keep from turning into a crazy person??

0

Share this post


Link to post
Share on other sites

Sorry, did you think you were chatting with someone who is/was sane? B)

With time comes experience. I have not brought any gluten into the house, except pet food. (fish food) It is handled like poison.

My daughter was diagnosed with Eosinophilic Esophagitus (related to Celiac, but an utter mystery). One of the common theories to the mystery is to blame a too clean environment. (don't get all freaked out and crazy but vaccines are a possible suspect for not allowing kids to get sick with "childhood viruses")

So I have become more relaxed about cleaning. Maybe too relaxed. <_<

0

Share this post


Link to post
Share on other sites

I am open to book recommendations if anyone has some! That book was just recommended to me by a lot of people so I picked it up and have found it informative. I have DH on my scalp so I'm thinking that gluten free skin and hair products would be beneficial??!!

One of the best books to read is Celiac Disease: A Hidden Epidemic by Dr. Peter Green. He is one the leading researchers/physicians specializing in Celiac Disease and his advice is spot on. It's also a great tutorial on how this disease works and if you don't learn that, you'll never get the diet right. I highly recommend it.

One of the things talked about in this book is DH and how skin contact with gluten containing foods or products will not cause a DH outbreak. DH is the skin version of Celiac and works the same.....you have to ingest gluten for an outbreak to occur. However, most people with DH have very sensitive skin to begin with and other ingredients in products can irritate your skin or you may have an additional skin allergy to wheat or another ingredient in products. Not every outbreak or reaction is gluten based. You can choose to use gluten-free products if that is more comfortable for you but it may not be entirely necessary all of the time.

I could see where it might be easier to just stick to all gluten-free products if you do have DH.

Read the book....it's very interesting and you'll learn a lot of useful information.

0

Share this post


Link to post
Share on other sites

Sorry, did you think you were chatting with someone who is/was sane? B)

With time comes experience. I have not brought any gluten into the house, except pet food. (fish food) It is handled like poison.

My daughter was diagnosed with Eosinophilic Esophagitus (related to Celiac, but an utter mystery). One of the common theories to the mystery is to blame a too clean environment. (don't get all freaked out and crazy but vaccines are a possible suspect for not allowing kids to get sick with "childhood viruses")

So I have become more relaxed about cleaning. Maybe too relaxed. <_<

I agree with the vaccine theory. I do think we need to immunize kids for the basic bad stuff like I was when I was a kid in the 60's BUT kids receive something in the neighborhood of 28 vaccines before they are 2 years old and that is plain insanity. The chicken pox one is a prime example. I think of these as immunity trainers.

0

Share this post


Link to post
Share on other sites

I almost died when I had chickenpox. I was three years old but I remember it as if it were yesterday. So weak, such a high fever, and so much pain. Plus, those who have had chickenpox are at much greater risk of shingles in adulthood.

 

I agree that kids are overvaccinated these days, but chickenpox is one that I think is good. Measles too. That's another one that has killed quite a few kids.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
1 1

  • Forum Statistics

    • Total Topics
      106,421
    • Total Posts
      930,472
  • Member Statistics

    • Total Members
      63,848
    • Most Online
      3,093

    Newest Member
    glutenfreekiddo
    Joined
  • Popular Now

  • Topics

  • Posts

    • Hi Jennifer and welcome CyclingLady has given you some good advice above. You want certainty and that's entirely understandable. Go back to your doctors and explain that you need to know a little more and hopefully they will engage positively with you. If they don't, then do pursue a second opinion.  I just wanted to address your last paragraph quoted above. The problem with celiac, or in my case non celiac gluten sensitivity, is that it presents or doesn't present in so many different ways. It can do hidden damage which may take many years to become apparent. It can impact in ways which are incredibly difficult to recognise or isolate.  I am 'lucky' in that the way that gluten impacts on me is far worse than any mental or social isolation brought upon by the diet, so motivation is easy for me, even without the certainty of a celiac diagnosis, there really is no alternative, I don't think I'd last long on a gluten diet now. But I can well understand how difficult it may be to stay honest on the diet if you don't have any symptoms to deal with. The diet can be isolating, there does become a distance between you and 'normal' people. Who would want to deal with all that if they didn't have to? If you aren't satisfied with your doctors  responses and choose to go back onto gluten I suggest you find another doctor and go back into the diagnostic process and properly exclude celiac, including a scope. Otherwise you could be taking a big risk with yr long term health. You may find that this process supplies you with an answer as if your diagnosis was correct your response to the reintroduction of gluten may surprise you, or not of course! best of luck!     
    • There is currently not any enzymes you take that will get rid of gluten, they are working on a promising one to reduce symptoms but all others out there right now are a bust and will not help you much if it all with gluten exposure, Celiac is a auto immune disease, your reacting to the proteins of gluten and it is attacking them and your own body.  I do suggest a digestive enzyme if you have food issues in general to help break them down. But this will not fix gluten exposure, reduce damage from gluten, or make gluten eating safe by any means. These current ones on the market are FAD ones target at healthy people and helping them with general digesting of gluten proteins but will not help you if you have celiacs to eliminate gluten reaction symptoms.
    •   Could try causally asking your family to get the blood test done next time they are at the doctors. They could have it and only have minor or no symtoms to it. There is a form of it called silent celiacs with no outward symptoms but it is still destroying your villi and causing your body to slowly degrade. Doing so could shed some light on other issues, make family more understanding to your issues, and help them out in the long run.    I was adopted at only a few weeks old, so my issues run a bit deeper with both leaning about this disease and getting anyone in the family to understand it. Does not help my birth mother still to this day refuses to release updated medical records or accept any kind of contact.    >.> I give advice all the time, I like to feel useful to others, and can be oblivious to others feelings and reactions due to a form of autism called Aspergers.  Bit of a pain, but the feeling of being of use to others is very rewarding even if sometimes confused with being helpful over being a ass or someone overly intrusive.    I just wish others had helped me out earlier with this disease.   PS Anonymous, you keep posting on older threads, ALOT recently. Not a bad thing, just something I picked up on and piqued my interest/concern with how out of date some information might be.
    • Hello Anonymous, and if nobody has said as much yet, welcome Don't worry (difficult to do when it can cause anxiety :P) it's very early days and you have a lot of healing to come.  If you've not already seen it there's advice and further info here:    It gets easier over time as checking becomes routine, you know your 'safe' products and your eating pattern changes. You'll get there  Maybe start a thread of your own if you'd like some input from others? Finally, back on topic. My Aunt has narcolepsy and although she's fiercely resistant to giving up gluten she has now made a connnection to eating bread and it's onset. As often, not conclusive but suggestive...
    • Hello again   Well first thing is the - Usual disclaimers apply... and this is something you have to follow up with your doctors as you know. But it's helpful sometimes to get another perspective so here's this layman see's from outside.  What I have seen from the various results posted here is that people's numbers vary wildly and, just as important, the numbers often don't bear any direct relationship to the level of intestinal damage revealed via endoscopy. Ultimately although you're not scoring much above positive, you are scoring a positive  and there are a couple of other risk factors you've mentioned that are suggestive if not conclusive - you have another autoimmune which raises the odds of having another one for example.  You've had two tests that are positive. The purpose of taking the second test was either to invalidate or confirm the first. I'd suggest it's achieved the latter, at least inasmuch as a GI may want to check you via endoscopy. That's still the 'gold standard' of celiac diagnosis and would give you an idea if there's any intestinal damage. I suspect with 2 positive tests and the history above that's what they'll suggest.  If your doctor or GI doesn't want to proceed with that you have a decision to make. Push for a second opinion or new doctor or if you're done with testing give the gluten free diet a proper try. Make a journal and see if some of those subtle things you reference may actually be symptoms. Fwiw, there are a lot of people here whose thyroid issues improved dramatically once they were gluten free, so whether celiac or gluten sensitive you should certainly give the diet a try. Only however once the testing is completed and remember: 
  • Upcoming Events