• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Secret Deodorant
1 1

37 posts in this topic

Recommended Posts

DutchGirl    0

Sorry, did you think you were chatting with someone who is/was sane? B)

With time comes experience. I have not brought any gluten into the house, except pet food. (fish food) It is handled like poison.

My daughter was diagnosed with Eosinophilic Esophagitus (related to Celiac, but an utter mystery). One of the common theories to the mystery is to blame a too clean environment. (don't get all freaked out and crazy but vaccines are a possible suspect for not allowing kids to get sick with "childhood viruses")

So I have become more relaxed about cleaning. Maybe too relaxed. <_<

Wow, how scary about your daughter! I hate the whole vaccine thing, I feel like I'm scared to vaccinate and I'm scared not to. The H1N1 Vaccine killed more people than the H1N1 virus itself.

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


DutchGirl    0

One of the best books to read is Celiac Disease: A Hidden Epidemic by Dr. Peter Green. He is one the leading researchers/physicians specializing in Celiac Disease and his advice is spot on. It's also a great tutorial on how this disease works and if you don't learn that, you'll never get the diet right. I highly recommend it.

One of the things talked about in this book is DH and how skin contact with gluten containing foods or products will not cause a DH outbreak. DH is the skin version of Celiac and works the same.....you have to ingest gluten for an outbreak to occur. However, most people with DH have very sensitive skin to begin with and other ingredients in products can irritate your skin or you may have an additional skin allergy to wheat or another ingredient in products. Not every outbreak or reaction is gluten based. You can choose to use gluten-free products if that is more comfortable for you but it may not be entirely necessary all of the time.

I could see where it might be easier to just stick to all gluten-free products if you do have DH.

Read the book....it's very interesting and you'll learn a lot of useful information.

I will definitely pick up the book!! Thank you for the recommendation! I have DH on my scalp and I worry that the gluten will do harm by entering in through the sores?! I also have a itchy gross rash in and between my eyebrows but since I've stopped wearing my makeup that contains gluten, it's getting better. So maybe I have an allergy as well as celiac.

Share this post


Link to post
Share on other sites
DutchGirl    0

I almost died when I had chickenpox. I was three years old but I remember it as if it were yesterday. So weak, such a high fever, and so much pain. Plus, those who have had chickenpox are at much greater risk of shingles in adulthood.

 

I agree that kids are overvaccinated these days, but chickenpox is one that I think is good. Measles too. That's another one that has killed quite a few kids.

That's so scary! Chickenpox seems so harmless until you hear stories like these! My step Mom had Mumps as a child and it left her deaf in one ear.

Share this post


Link to post
Share on other sites
mushroom    1,205

That's so scary! Chickenpox seems so harmless until you hear stories like these! My step Mom had Mumps as a child and it left her deaf in one ear.

My sister and I had measles together.  I missed two months my first year in high school.  My sister was hilarious - she had delirium and we used to have the wildest conversations :lol:  - couldn't ever talk to her about them later though :rolleyes:

Share this post


Link to post
Share on other sites
Gemini    785

I will definitely pick up the book!! Thank you for the recommendation! I have DH on my scalp and I worry that the gluten will do harm by entering in through the sores?! I also have a itchy gross rash in and between my eyebrows but since I've stopped wearing my makeup that contains gluten, it's getting better. So maybe I have an allergy as well as celiac.

DH takes a long time to go away, unfortunately. It is explained in the book, better than I can do. I think if your scalp and skin are that irritated, it might be a good idea to use a very gentle shampoo and cleanser that is gluten-free, something without perfumes/scent.  Keep it simple until the DH is under control. Sorry to hear you are having such a hard time but with patience, you will get this under control.

Share this post


Link to post
Share on other sites
Gemini    785

I almost died when I had chickenpox. I was three years old but I remember it as if it were yesterday. So weak, such a high fever, and so much pain. Plus, those who have had chickenpox are at much greater risk of shingles in adulthood.

 

I agree that kids are overvaccinated these days, but chickenpox is one that I think is good. Measles too. That's another one that has killed quite a few kids.

         I think the number of kids that die from chicken pox today is pretty low. That's extremely rare and we have better medicine to help if things get out of control.

 

I had them and it was just another childhood illness.  I also had shingles once but I knew what it was, went immediately to the walk in clinic and was put on anti-virals right away and it was not that bad.  Nearly dying of Celiac was far worse.  Not everyone develops shingles either...that medical scare is overblown, like everything else.  Kids get way too many vaccines today....they need to pick and chose the ones that apply to each situation.  It just seems odd that with all the vaccines, kids are sicker today than when I was young.  No one had food allergies when I was in school and diabetes was rare.  It makes you wonder if the assault on a kids immune system today does something bad in the long run.

Share this post


Link to post
Share on other sites
mommida    158

From the case files of some of the chickenpox deaths, its seems there was extreme OVERmedication.  The patient was given more drugs that need to processed by the liver, when the liver is needed to process the virus.  So the patient "died from chickenpox"  but IMO the patient died because of liver failure.  My opinion was partly formed from Reye's syndrome.

Share this post


Link to post
Share on other sites
mommida    158

Eosinophilic Esophagitus is the modern medical mystery.  (I am a bit bitter paying for specialist that can only say "just don't know".  *Something* just triggers the production of eosinophils to be produced and the nasty white blood cells just damage everything.  Fortunately we have narrowed down some of the food triggers (have suspects for the airborne triggers as there is a seasonal "flare".)  Gluten is the "trigger" for some patients, so we have quite a few EE patients here.  The connection was finally noticed by the medical community and newly diagnosed EE patients should be screened for Celiac.

Share this post


Link to post
Share on other sites
bartfull    565

I think one of the reasons kids get sick more often today is that they don't play in the dirt. They are using anti-bacterial soaps. They are living in a more sterile environment and their immune systems don't get to build up strength. I know that is why you believe we should let our kids get these childhood diseases, but I guess it depends on the individual child. I was born sick and almost died several times. I had pneumonia several times as an infant and more as a child. (I even had it a few times when I was in my 20's - one time so bad that I needed to be hospitalized.) Mom said measles almost killed me too but I don't remember measles. I had croup, I got bronchitis at least twice each winter, I had scarlet fever, I was a mess!

 

I grew up to be pretty healthy though except for celiac and a touch of asthma. :)

Share this post


Link to post
Share on other sites
Rosalind    0

where is crystal deodorant sold.  I was diagnosed last March and am trying to wrap my head around all of the toiletries......where to find them and what ingredients to stay away from with it doesn't specify wheat, rye etc. if gluten free is not identified on the item.

Share this post


Link to post
Share on other sites
cyclinglady    723
1 hour ago, Rosalind said:

where is crystal deodorant sold.  I was diagnosed last March and am trying to wrap my head around all of the toiletries......where to find them and what ingredients to stay away from with it doesn't specify wheat, rye etc. if gluten free is not identified on the item.

Most toiletry products are fine even if they have wheat/gluten in them.  The main issue is not to ingest them!  Many folks with celiac disease are careful with shampoo, conditioner, soap, lotion, lipstick, lip gloss, hair products,  and sunscreen because they could be accidentally swallowed (if you chew on your nails, etc.).  

I have used Crystal Deodorant for 20 years now.  It can last for years!  Seriously!  It is pretty effective but not as effective for a teenager.   My entire family uses it, but my teen uses regular antiperspirant too.  You can find it at Whole Foods, Sprouts, healthfood stores, and even a "roll" on version at CVS.  Of course, Amazon carries it too and the price is comparable to the stores.   I found some mini travel versions at Marshalls (but that is hit or miss).  I like the solid crystal option the best. 

I really like Gabriel Lipstick found at Sprouts.  I buy it on sale.  It is certified gluten-free, so I never have to worry!  I hear that Red Apple (sold online) is very good too and is certified.  

I hope this helps!  

Edited by cyclinglady
typo

Share this post


Link to post
Share on other sites
kareng    1,992
1 hour ago, Rosalind said:

where is crystal deodorant sold.  I was diagnosed last March and am trying to wrap my head around all of the toiletries......where to find them and what ingredients to stay away from with it doesn't specify wheat, rye etc. if gluten free is not identified on the item.

I never worry about deodorant.  The only things you really need to worry about are things that might get in your mouth.  I get shampoo in my mouth so I read the ingredients.  They will say if they have wheat germ oil in them. 

 

http://www.cureceliacdisease.org/archives/faq/will-my-skin-breakout-if-i-use-topical-products-like-shampooslotions-that-have-gluten-in-them

 

"Gluten must be ingested to be cause for concern for someone with celiac disease.

We still recommend those with celiac disease avoid contact with gluten, especially with products that have the potential to be ingested. Small amounts of gluten can be found in many cosmetics, lotions and shampoos. Avoid product ingredients that literally say “wheat,” “rye,” “malt” or “barley.”  "

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

1 1

  • Forum Statistics

    • Total Topics
      107,912
    • Total Posts
      938,647
  • Member Statistics

    • Total Members
      65,835
    • Most Online
      3,093

    Newest Member
    Shirley Ann
    Joined
  • Popular Now

  • Topics

  • Posts

    • It's unfair to make such a general statement about ER's and hospitals.  Unfortunately, I've been to the ER several times and hospitalized three times in the past few years.  The staff took me seriously when I told them I had celiac.  Popsicles and drinks were checked for gluten, and a good laugh took place when a nurse came in to remove the cheesecake that was brought to me when the staff found out it was our anniversary. Dietary services were called and Lucy's gluten free cookies were given to me instead. Once admitted to the hospital, a dietician was sent to my room to discuss meals and she checked back with me a couple of times.  The only mistake made was the dairy free protein shakes that were delivered daily and left untouched.  When dietary called my room to ask why I wasn't drinking them, my husband had to inform them to read the label as it was clearly labeled containing milk products.  
    • Here is more information about testing family members. https://celiac.org/celiac-disease/understanding-celiac-disease-2/diagnosing-celiac-disease/screening/  
    • Hello, I have been dealing with a mysterious rash for the past ten years that I am slowly beginning to think is DH.  It comes and goes, is itchy as all get out and shows up in all the areas that DH appears (elbows, back, torso, knees and base of neck).  It comes and goes over the years which has thrown me a little, but from what I can tell it can happen with DH? Anyways I went to an allergist, he was a jerk and told me it was not an allergy and to get a biopsy (which was done ten years ago when it first happened, but okay).  Me being at my wits end I called up a local dermatologist and got an appt for a biopsy.  I went in armed and ready with the info I have read here about the correct biopsy etc.  Well of course the dermatologist wouldn't give me the time of day Would not listen to the past history of the rash or look at photos, was in and out within five minutes and insisted on a scratch biopsy instead of a punch biopsy.  She simply said she would be highly surprised if it was DH.  I try to respect doctors so I pushed but I did not push hard enough.  She did the scratch biopsy against my recommendations.  So that brings us to today when I received a message that the biopsy showed an allergy and that they could either give me an order of prednisone or refer me to an allergist.  Now if you remember my local allergist sent me away and said it wasn't an allergy.  I am so done and I refuse to just keep medicating myself, I need to find the root cause.   So I have a physical tomorrow night with my regular doctor and I am tempted to just insist on a punch biopsy next to the rash for a proper biopsy.  Couple questions for you guys though.  If a scratch biopsy came back as an allergy could that possibly lead to gluten allergy (I know it doesn't prove that, but could it mean it could be gluten?).  Should I keep pushing for a punch biopsy? I am planning to go gluten free after this appointment anyways but I keep eating it to try and get a proper diagnosis.  I feel I should get a proper diagnosis, one to keep me on track, one to make sure that is what it is and also I did try gluten free for 30 days before and it didn't seem to help the rash.  But from what I have read that could have been to short of a time.  I feel I need a proper diagnosis to help me stay with it and keep on the right path.   Lastly, the rash definitely went through stages and is at an end stage, still itches like crazy but isn't as bad looking as when it started.  Does it matter when you take the biopsy as long as there is a rash it will potentially show?  I hope all this makes sense.  I am tired of being told I am crazy from doctors.  If they could find the solution I wouldn't be looking myself.  I would be very happy to be proved wrong but so far that has not happened and I just want an answer! So tired of being itchy!! Thank you very much for your help and listening!!!
    • I'm sorry I don't have much advice for you but I can relate in some ways. I've took generic Zoloft for about 10 years. When I was diagnosed celiac I worried about and researched my medications and am confident that they are safe for me. I have spent many years fighting depression and anxiety and have tried different meds but finally accepted I need the Zoloft and Xanax probably for life. I will say that most of our serotonin is in our stomachs and any time I switched meds or had to withdrawal my stomach issues were the worst. So please be careful with switching or stopping ( never cold turkey) any psychiatric medication. Also you could be sensitive to other grains. Gluten free bread does not like me. Also so far I have not found any one in the medical field that takes celiac seriously. I have been laughed at even and most don't have a clue what problems gluten does to us mentally and physically.
    • When does it matter if its gluten-free? ( likely is)  but she isn't eating it. She isn't 2 and put her fingers and paint brush in her mouth.  Are you or your son going to lick the glass?  Of course not.    Any paint can be be scraped off glass with a razor blade.  Some people use dry erase markers
  • Upcoming Events