• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
Jonoh

B12, Folic Acid And Iron

Rate this topic

Recommended Posts

Hi again *waves*

Ok, so I've posted a few threads here and there about a few things, so I promise this'll be my last one lol. Well, I recently got the news that I'm b12 and folic acid deficient, and currently waiting to be referred to a gastroenterologist. I've done some research, and know that b12, folate and iron deficiencies are common findings in Celiac. But my iron levels are fine. Is it possible for Celiac to manifest in just a b12/folate deficiency and not iron? I find this pretty odd to be honest. Also, the doctor said I'm not anemic because my haemoglobin is fine, so again, is it possible for Celiac to present in this way? Non-anemic b12/folate deficiency?

Thanks if anyone knows the answer :D

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Have you had your ferritin checked? Ferritin measures iron stores. In the case of iron-deficiency anemia... ferritin is usually the first to start dropping. If your doctor is going solely off of your hemoglobin levels, he/she is being lazy. I'd be hesitant to call anybody with other vitamin deficiencies as not iron deficient without a more thorough workup.

Laura

Share this post


Link to post
Share on other sites

Sorry if I wasn't clear in my first post. My iron (ferritin) levels are fine and within range.

Share this post


Link to post
Share on other sites

My iron levels were okay but B12, folate were low, and MCV (mean corpuscular volume) was too high - only just - meaning the red blood cells were not dividing normally and I was diagnosed with pernicious anemia. Took the B12 shots, and folate, and was fine.

Share this post


Link to post
Share on other sites

My ferratin, B12 and Vit D was low and they wanted me to have shots. This was with my regular GP who never thought of celiac. My gastro told me those are symptoms. I have to have blood drawn again in 2 more months so I'll be looking forward to where I stand when that happens - been taking gluten free multi vitamins and on a gluten free diet now.

Share this post


Link to post
Share on other sites
Ads by Google:


Thanks for the reply guys

My iron levels were okay but B12, folate were low, and MCV (mean corpuscular volume) was too high - only just - meaning the red blood cells were not dividing normally and I was diagnosed with pernicious anemia. Took the B12 shots, and folate, and was fine.

Mushroom, that's exactly how my blood tests read too.. I wasn't told I have pernicious anemia though :S I'm currently taking supplements, the doc said that I'd have to have the injections if they don't work. At least I know now that it could still be Celiac :)

Share this post


Link to post
Share on other sites

Thanks for the reply guys

Mushroom, that's exactly how my blood tests read too.. I wasn't told I have pernicious anemia though :S I'm currently taking supplements, the doc said that I'd have to have the injections if they don't work. At least I know now that it could still be Celiac :)

I only needed the B12 injections because I had a reaction to the sublinguals.

Share this post


Link to post
Share on other sites

Oh, well I'm sure it's possible! Just depends on where the damage is and how your body is affected by it. After all, it seems like anything is possible with celiac. :blink: I was slightly iron-deficient, but had a more significant b12 deficiency. Folate was apparently fine.

Laura

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,923
    • Total Posts
      943,525
  • Member Statistics

    • Total Members
      67,137
    • Most Online
      3,093

    Newest Member
    Tb143
    Joined
  • Popular Now

  • Topics

  • Posts

    • A quick perusal of Dr. Brownstein's website outs him quite quickly as a purveyor of pseudoscience. Though he may be an MD, he appears to have abandoned evidence in favour of selling stuff people don't need by making them afraid, using his authority as a doctor. Like all such individuals, what he says has some basis of truth (eg. hypothyroid disorders are quite common, the average North American has a terrible diet), but he twists it to create fear and take advantage of those who are less scientifically literate. Conspiracy theories abound to be found at: http://www.drbrownstein.com/dr-bs-blog/ Here is a criticism of his work: https://sciencebasedmedicine.org/does-your-antivax-doctor-have-another-agenda/
    • Almost 2 years into my diagnosis after losing about 35-40 pounds I have now added about 60 with clean gluten free eating. I also changed jobs which for me has been much more of a physical change, thus needing more calories I have finally been able to put back some pounds. It is possible, for me the clean diet which helped restore my guts let me finally start absorbing the nutrients I was lacking. 
    • Hi Niza, Try to eat lots of protein.  Meats, peanut butter, avocadoes, things like that.  Try to avoid processed (pre-made) foods like frozen pizza, cereals, pot pies, cookies etc.   There gluten-free versions of many of these foods, but they are best saved for later on like 6 months after going gluten-free. If you are just starting out gluten-free, eat a simple diet of mostly foods you make yourself at home.  Also, try not eat eating any dairy (milk, cheese etc) for a couple months.  Oats are also a thing to avoid eating for a couple months.  You may not have any problem with dairy or oats, but some people do. Welcome to the forum Niza!
    • I am. I went undiagnosed for years and years and I honestly thought I was dying. I had been trying to gain weight even before my diagnosis and could barely gain a thing. I am so relieved to actually have an answer as to WHY! I was just diagnosed last weekend so I still have a lot of internal healing to do after years of villus atrophy. I have been drastically underweight for some time now, although I am slowly gaining. I am currently eating around 2,500 calories a day and not doing any strenuous exercise. I am only 74 lb (at 5'2") and I started out at 67 back in the beginning of December. I eat as much as some of my guy friends eat in order to "bulk" when they are lifting heavy at the gym and yet I still seem to gain at a slower rate. Just goes to show how messed up your intestines can become after years of abuse. 
    • Hey Deb, In theory (based on some studies), your small instestine should heal pretty fast (within weeks), but often there is collateral damage that can take longer (like your bone pain).  For me, personally, a gluten exposure can set me back three to six months.  My antibodies can last over a year.  And worse, I now developed autoimmune gastritis and hives.  Yikes!   I had  some hip and rib cage pain when I was first diagnosed.  Two months later I fractured some vertebrae.  I had been undiagnosed for so long, that I developed osteoporosis.  I assume that once on a gluten free diet, your pain should diminish based on a strict adherence to the diet and  your previous experience.   I hope you feel better soon!  
  • Upcoming Events