• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

My 82 Year Old Father - Symptoms For Years
0

4 posts in this topic

In trying to get myself better I am wondering about others in my family. My dad, for years, has had all of the same symptoms I have had: major weight loss, mood swings, fog, runs to the bathroom after eating (I had that and constipation, it varied depending on the day). He goes to the doctor a lot for his heart and for a bunch of blood work and they all tell him he is totally fine. My mother even went with him once trying to tell the dr to please find out what is wrong. He is so thin it is scary!

So I started with these symptoms for about 5 years now and I finally got myself to a gastro and went gluten free and feel so much better, I just need to gain some weight back.

I tried telling my mom that he should get checked for celiac but she won't talk to him because he just gets mad at her. So in a couple of weeks I am going down to FL to visit with them and to talk to him. He is a drinker - only whiskey and beer and he always feels bad after just one drink and I know gluten is in that. I'm going to have to buy him some gluten free beer when I am down there.

So do you think he could have had this for all these years and nobody has found it? He's never been on a computer, he is "old school" so he won't research anything. Only way I found out I most likely have celiac is by finding this forum and reading all about it and then making an appt with my gastro. Sometimes we have to do our own research and then tell the doctor what we find.

Also on my mom's side of the family they all have bathroom problems, except for my mom.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


He has some symptoms so he could be celiac or NCGI... The problem would be getting him to switch to a gluten-free diet; I can't imagine changing my diet after 82 years... that would be rough.

Good luck!

0

Share this post


Link to post
Share on other sites

Your family sounds exactly like mine. My father will turn 80 in April and he is also a lifetime drinker. Not so much now as he is on a boatload of meds but he drank heavily his entire adult life. I am the diagnosed celiac in our family and my father is presenting just like I did...classic celiac. I have a double DQ-2 gene, which means celiac is on BOTH sides of my family. I have tried in vain to get his wife to have him tested but my pleas fall on deaf ears. To make matters worse,

my father has "dementia", which is getting pretty bad. I think it is celiac dementia but try telling all the unenlightened ones that.

I have learned that you cannot save everyone. You may have to back off because, sadly, everyone has the right to do as they choose with their health. I have resigned myself to the fact that he will most likely die of untreated celiac. He is so skinny, it's scary. People stare. He has ataxia, lives in the bathroom after eating, dementia, skin rashes and sleeps a lot of the time, especially after eating. Sounds all so familiar. It kills me to see him like this but I am just the daughter and have no control over him at all.

BTW, he is also in Florida. The similarities are kind of funny. There are a lot of people like this out there. Can you imagine the number of elderly people who have celiac and everything is blamed on aging? :( Actually...this is sick......his doctors tell him he is fine too. He is on meds for BP and many other things but he is "fine". Okey, dokey........ :blink:

1

Share this post


Link to post
Share on other sites

Omg Gemini.....people stare at my dad too. My mom has to buy gluten free pasta and bread for me when I get down there so he will he eating it too and we won't tell him....not that he eats much anymore which is so sad. I can't stop him from doing his thing but maybe once he sees how thin I got since the last time I was down there, he will humor me and eat what I eat. Whole food like steak and chicken, fish, he likes salad so all I gotta do is switch up some bread and pasta. He was never into sauces so that will help. Should be interesting. I won't push him though. And I think his Dr is a jerk.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,776
    • Total Posts
      932,357
  • Member Statistics

    • Total Members
      64,251
    • Most Online
      3,093

    Newest Member
    cmatott
    Joined
  • Popular Now

  • Topics

  • Posts

    • These are all low in fermentable carbs, but limit amounts to see what is tolerated (for us, 2 tortillas, two biscuits, one sandwich round) and don't load up on lots of baked goods in a day  I try to limit it to one baked good per day   Tortilla/ flat bread:  http://comfybelly.com/2013/04/tortillas-and-a-book-giveaway/#.WScABoFOmEc Sandwich Rounds (good with peanut butter): http://comfybelly.com/2013/08/sandwich-rounds-using-almond-flour/#.WScAm4FOmEc Biscuit (these are amazing. Make them sweet and serve with strawberries and coconut cream, savory and make sausage sandwiches, etc): http://healthyindulgences.net/2008/08/easy-low-carb-gluten-free-biscuits/
    • Thank you so much for sharing... we struggle with my daughters diet but it has only been 10 months so we are still learning the ropes. 
    • Also want to say that a lot of gluten free  recipes are not good for SIBO- too many starches. Also large quantities of almond flour or coconut flour have too much fermentable fibers so be careful with Paleo/SCD recipes too.  It's a bit of a balancing act in what you make and how much is eaten (that's why I like fast Tract- you can qualify things and it works).
    • My daughter is now 11 and we are finally on top of her SIBO (since she was 8).  Diet is super important. I know it's hard with kids, but a diet low in fermentable carbs is key. Especially when SIBO appears to be chronic.  I suggest looking into the Fast Tract Diet. There is a book and an app. Using glycemic index, fiber, and total carbs, the diet tells you the fermentation potential of different foods. There is a point system. The goal is to keep your fermentation potential points between 20-30 per day when you are experiencing SIBO symptoms, and then slowly increase to 40 points for the long term maintenance.  It is important to note that Fast Tract is not strictly gluten free. So you have to choose that yourself.  This system has worked very well for my daughter.  She also takes Atrantil daily and her GI at U of C suggested once a month going on a preventative herbal antibiotic.  Honestly, this is the best she has felt in years. Avoiding gluten is key...this is the other part of the equation. Incidentally, since gluten affects her nervous system, I think it has affected her motility, hence the SIBO.  So, diet is important and kids are difficult. Avoiding most grains is important since they are super high in fermentable carbs. BUT, there are some grains that are lower in fermentable carbs that help:  Jasmine Rice (cook in water like pasta and drain. Do not use left over because cooling causes resistant starches to form and that is aweful for SIBO).  Also mashed Red Potatoes (soak in salt water for 30 minutes to get most starch out, then rinse well, boil, drain, mash.  Again don't cool and reheat because of resistant starch). I have a terrific biscuit recipe and tortilla/flat bread recipe that I can post too. 
    • I hear ya. I spend all day in the bathroom *thinking* something's going to happen. lol  
  • Upcoming Events