• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

My 82 Year Old Father - Symptoms For Years
0

4 posts in this topic

Recommended Posts

Smylinacha    2

In trying to get myself better I am wondering about others in my family. My dad, for years, has had all of the same symptoms I have had: major weight loss, mood swings, fog, runs to the bathroom after eating (I had that and constipation, it varied depending on the day). He goes to the doctor a lot for his heart and for a bunch of blood work and they all tell him he is totally fine. My mother even went with him once trying to tell the dr to please find out what is wrong. He is so thin it is scary!

So I started with these symptoms for about 5 years now and I finally got myself to a gastro and went gluten free and feel so much better, I just need to gain some weight back.

I tried telling my mom that he should get checked for celiac but she won't talk to him because he just gets mad at her. So in a couple of weeks I am going down to FL to visit with them and to talk to him. He is a drinker - only whiskey and beer and he always feels bad after just one drink and I know gluten is in that. I'm going to have to buy him some gluten free beer when I am down there.

So do you think he could have had this for all these years and nobody has found it? He's never been on a computer, he is "old school" so he won't research anything. Only way I found out I most likely have celiac is by finding this forum and reading all about it and then making an appt with my gastro. Sometimes we have to do our own research and then tell the doctor what we find.

Also on my mom's side of the family they all have bathroom problems, except for my mom.

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


nvsmom    332

He has some symptoms so he could be celiac or NCGI... The problem would be getting him to switch to a gluten-free diet; I can't imagine changing my diet after 82 years... that would be rough.

Good luck!

Share this post


Link to post
Share on other sites
Gemini    785

Your family sounds exactly like mine. My father will turn 80 in April and he is also a lifetime drinker. Not so much now as he is on a boatload of meds but he drank heavily his entire adult life. I am the diagnosed celiac in our family and my father is presenting just like I did...classic celiac. I have a double DQ-2 gene, which means celiac is on BOTH sides of my family. I have tried in vain to get his wife to have him tested but my pleas fall on deaf ears. To make matters worse,

my father has "dementia", which is getting pretty bad. I think it is celiac dementia but try telling all the unenlightened ones that.

I have learned that you cannot save everyone. You may have to back off because, sadly, everyone has the right to do as they choose with their health. I have resigned myself to the fact that he will most likely die of untreated celiac. He is so skinny, it's scary. People stare. He has ataxia, lives in the bathroom after eating, dementia, skin rashes and sleeps a lot of the time, especially after eating. Sounds all so familiar. It kills me to see him like this but I am just the daughter and have no control over him at all.

BTW, he is also in Florida. The similarities are kind of funny. There are a lot of people like this out there. Can you imagine the number of elderly people who have celiac and everything is blamed on aging? :( Actually...this is sick......his doctors tell him he is fine too. He is on meds for BP and many other things but he is "fine". Okey, dokey........ :blink:

  • Upvote 1

Share this post


Link to post
Share on other sites
Smylinacha    2

Omg Gemini.....people stare at my dad too. My mom has to buy gluten free pasta and bread for me when I get down there so he will he eating it too and we won't tell him....not that he eats much anymore which is so sad. I can't stop him from doing his thing but maybe once he sees how thin I got since the last time I was down there, he will humor me and eat what I eat. Whole food like steak and chicken, fish, he likes salad so all I gotta do is switch up some bread and pasta. He was never into sauces so that will help. Should be interesting. I won't push him though. And I think his Dr is a jerk.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      107,903
    • Total Posts
      938,578
  • Member Statistics

    • Total Members
      65,815
    • Most Online
      3,093

    Newest Member
    Jmsc4321
    Joined
  • Popular Now

  • Topics

  • Posts

    • Solid advice. Wish that more people would consider that this might be necessary for some and not entirely paranoid. Could very well be airborne, but most likely culprit is something you're eating. That said, baking, construction/open drywall, farms/animal food and bulk/flour aisles in grocery stores are legitimate worries. I was recently having frustrating problems with random but minor flare-ups, and have eliminated almost all packaged food (even gluten-free) for a bit. It has helped tremendously. I hope that perhaps my sensitivity levels will calm down in a few years, but not being itchy and scabby is worth almost any cumbersome restriction. I think for me the problem has largely been to do with the use of oats in many dedicated factories (even gluten-free oats make me very, very sick). I came to this when lodging a complaint/notifying a company that I'd had an issue with one of their GFCO certified products. I figured that mistakes could happen, and could not imagine anything else I'd eaten that day could be a culprit (had only eaten veggies/rice/meat) so I contacted them to report it. Their response made me quite sure that the lot my food came from was fine from a legal/GFCO gluten-free perspective, but revealed that they make all their gluten-free products on the same line - which include granolas, oat flour etc. When I investigated it a bit more, I realized that many of the gluten-free products that I suspected were causing me problems (but had no real basis for why) were all made by companies that also make lots of gluten-free oat products. Previously, I had only avoided gluten-free products that contained oats as an explicit ingredient, and had never considered that the residues from gluten-free oats could be problematic. Unfortunately, now that gluten-free oats have been legalized in Canada, it is very difficult to find companies that do not use them in some capacity, which is why I axed most of the processed gluten-free stuff. Presumably, because the oats are considered gluten-free, there is no reason to clean the line or employ any allergen food safety practices from the company's perspective. While this may not be a concern outside of those who are super sensitive, it might worth considering if you are still having problems or have a known issue with oats. At the very least, avoiding most processed gluten-free foods (breads/flours/pastas/baked goods) seems to have helped me a lot, even if minor contamination with oats is not the true culprit. I would vouch for mostly sticking with rice, dry beans, root veggies and fresh corn (from the cob) as complex carbohydrate sources for a bit, even though it's a bit inconvenient.   
    • Hi everyone! I'm obviously new to the forums, but I'm also new to the idea of celiac/gluten free/etc.  Lemme give you the Cliff Notes version of my journey: 1992: I'm diagnosed with CFS/ME. It sucks and I'm tired and sick all the time. 2014: I'm still tired and sick all the time, so I decide to become a vegetarian. Maybe that'll help, right? I began getting deathly ill when I ate. Vomiting and diarrhea, everything I eat seems to be a problem.  I go to a doctor who runs a million tests. Nothing turns up. In among those tests is a celiac panel which has this result: no antibody detected and no serological evidence of celiac disease. No cause is ever found. I continue to suffer. Later in 2014: I notice that my stomach issues are triggered every time I eat a raw vegetable. I can eat bread or pasta no problem. Fake chicken? Great. Have a salad? I'm dying. This is a problem, as I'm a vegetarian. I nix the fresh veggies and continue to live my life. 2015: I'm diagnosed with Fibromyalgia. I realize that the problem with vegetables is worse than I thought. I can no longer eat cooked spinach, can't have lettuce on my sandwich, and stealing a single slice of cucumber set my stomach on edge for days. I'm becoming hypersensitive to veggies in food and protecting myself from their evil influence; my stomach thanks me. 2017: After a relative peaceful period, the stomach issues are back, worse. So I go to a new doctor (I've moved) and he recommends a colonoscopy and EGD (no labs). This was done yesterday. The full results will of course have to wait for the biopsies to be examined, but apparently there is scalloping "through the entire duodenum".  Doc told my partner that he believes I have celiac and discharged me with orders to go gluten free. Now I'm sitting here alternately considering drinking alone in the dark and throwing things--I guess I'm wavering between the stages of depression and anger on my trip through grief for my lost favorite foods. But here's where the confusion comes in...everything I'm seeing says that I should give up bread and eat more veggies, but veggies make me sick. Does anyone else have this reaction to vegetables? Meanwhile I'm thinking back to the labs done in 2014 and wondering if its possible to have a negative test and still be positive for celiac? Also, what actually happens if you DON'T go gluten free?
    • Hi Guys, I just thought of giving update on my case. I finally got my EGD done and unfortunately, the conclusion is I have Celiac. There was Villus atrophy and presence of Inflammatory Cells, looks like the atrophy of Villi isn't that worse yet, but of course, I need to get on strict gluten free diet right away. I am planning to see a Dietitian next week to have a healthy gluten free diet plan. Any suggestions from the experts in here are most welcome and appreciated. Thanks  
    • Hi this is my first time commenting but I just had to. I too get chest tightness. I have had it flare up several times with no answers. I was diagnosed with celiac about 6 months ago and am pretty confident this is a glutening symptom for me. Last month it was so bad... Started with random chest pains for a couple days then chest tightness that last for two weeks. I ended up going to the emergency room ( again) because I started worrying about my heart. Felt like my bra was so tight, bloated belly, trapped gas like pain in chest, swollen lump under sternum and no relief. EKG, chest xray and blood tests showed heart was fine. GI said he didn't think it was GI related. I give up on doctors. I've had this before and I'm sure I will again. It's like inflammation in there or something but it makes you anxious and uncomfortable. I truly hope you are okay and I hope it will give you some comfort to know you aren't the only one with this.
    • While I agree that getting more sleep when ill or stressed is a must, many people can easily get by on 6 hours of sleep a night.  Not everyone needs 8 hours of sleep.  Sleep needs, like the gluten-free diet, is different for everyone.  Nursing school can be very tough so it may be hard to get 8 hours every night.  I think the most important thing is to make sure no gluten is getting into your diet at all so you feel well and can manage your schedule better.  Good luck to you!
  • Upcoming Events