This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
What if my doctor won't listen to me?
An Open Letter to Skeptical Health Care Practitioners
That it's the newest "fad" disease, and most people that think they have it don't really have it. And that a little bit of gluten won't really hurt you; after all, you ate it for years before you were diagnosed.
I would not fret. Has she improved? That is what counts. In my research, celiac experts have published studies that indicate that the DGP is a better indication of dietary compliance. Some say the TTG is useful. Some say that the celiac tests should only be used for diagnostic reasons and not compliance. The reality is that not much research has been done to check for dietary compliance. They are focusing on a cure or better treatment (medication). Heck, they are just trying to get more celiacs identified (80% of celiac don’t even know they have it).
I think you are all doing a great job. Her TTG came down and that is good news!
No Ortega taco seasoning is not gluten free. I found out the hard way. It doesn't specify that there are wheat ingredients but you have to be very careful with "modified food starch."
Pionner brand makes a good gluten-free seasoning.
My daughter's TTG levels were elevated for 2 years, then she hit 14 (<15 is negative), then went back up to 24. Her EMA is negative. I just saw the article "Can Undetectable Negative Tissue Transglutaminase IgA antibodies Predict Mucosal Healing in Treated Celiac Disease Patients?" and am all worried again about her. Does this mean she's not healing? We are above super strict, gluten free household, keep her in a bubble and don't know why her TTG is elevated. Her doctor is not concerned, so I am trying not to be, but I want me little girl to be healthy!
Anyone else have any thoughts on this? Thanks!
Everyone here has had great advice! Celiac has made me a stronger person in standing up for myself and my family. I HAVE protect my children as their mother, so I must stand up and do what is best for them. We travel to visit family often, and while we get lots of questions and people who don't get it, I bring our own pots/pans, utensils, cutting board, etc. Meal planning is a must when we're away and we've invested in a nice Yeti cooler that practically lives in our trunk. We bring our own ham, sweet potatoes, green beans, etc to holiday functions even when family has insisted what they are making is safe. It's just easier for me to relax and enjoy family when I know my kids have safe foods to eat.
Good luck! The first times traveling are really hard, but you'll soon get into a groove.