• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Dh Of The Scalp
0

18 posts in this topic

I am newly diagnosed with celiac disease. I have had DH on my scalp for a few years but I didn't realize that's what it was until I was diagnosed recently. I have given up gluten but is there anything I can or should do to help heal my scalp?? It is so itchy, flaky, and burning, I would love some relief!

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Id start with ensuring your hair products are gluten free and don't irritate your scalp for any other reason. Even though topical gluten isn't supposed to cause DH, many of us find better results when we do.

It's difficult to moisturize the scalp (compared to an arm) but I found my DH needed lotion a few times a day. I used Vanicream. In short, be nice to the rash.

I'm sure others here have dealt with it on the scalp. I haven't. I'm sure they'll chime in.

0

Share this post


Link to post
Share on other sites

I'm finding that anything to moisturize with will be difficult, I have thick hair down to the middle of my back. But with all of the itching, there are days I just want to shave it all off!! :)

0

Share this post


Link to post
Share on other sites

If you can do it every few days how about a scalp massage with a pure oil like almond, jojoba...?

I'd think the biggest thing would be to not use styling agents, shampoos or conditioners that irritate it. And I have no idea what that would be for you.

0

Share this post


Link to post
Share on other sites

I will give it a try! I need some relief! Thank you!

0

Share this post


Link to post
Share on other sites
Ads by Google:


I agree with what pricklypear said. I also have long hair down to my legs & BAD dh in my scalp. I know the feeling of wanting to shave it all off! This is going to sound gross & it is gross (at least to me) & it's very difficult to stand doing this BUT I have found that the longer you can possibly go without washing your hair the better off you will be when you have the dh in your scalp. When that skin is trying to heal it's best to not abrade it by shampooing even gently as the new skin is so fragile & thin. If you can go 3,4,5 days or as long as you possibly can then it gives that new skin a chance to thicken up & not bust open again. When you shampoo, do not use your nails --- only the fleshy fingertips gently. And for heavens sake do not let the brush bristles run across your scalp & tear it up. Be gentle, be very gentle.

0

Share this post


Link to post
Share on other sites




I already go about 3 days between washing since my hair is so thick, I'll try going a day or two longer. My scalp is so itchy it's hard not to scratch but I'm trying! Thanks for the advice!!

0

Share this post


Link to post
Share on other sites

It's impossible not to EVER scratch! But we do the best we can right? Right now I feel totally filthy. I haven't washed my hair for 3 days & it's driving me crazy but I am determined to go a couple more. This also allows our natural oils to help our scalp.

Hang in there.

0

Share this post


Link to post
Share on other sites

I already go about 3 days between washing since my hair is so thick, I'll try going a day or two longer. My scalp is so itchy it's hard not to scratch but I'm trying! Thanks for the advice!!

I have used Scalpicin, a product for scalp itch. It does work! I have applied olive oil to my scalp and left it a couple of days. It is hard not to scratch and I have a horrible time trying not to pick at the scabs. :(

0

Share this post


Link to post
Share on other sites




Johnsons Baby shampoo has been helping my scalp DH.  Maybe give it a try.

0

Share this post


Link to post
Share on other sites

Hi

Really important to find shampoo/cond that doesn't aggravate it - this might take some time and trial!

Mine is rapidly affected by iodine and I have to limit oily fish and sea salt or it goes beserk. I haven't tried a low iodine diet because of the health benefits of iodine but I do have to watch some things.

0

Share this post


Link to post
Share on other sites

Hi

Really important to find shampoo/cond that doesn't aggravate it - this might take some time and trial!

Mine is rapidly affected by iodine and I have to limit oily fish and sea salt or it goes beserk. I haven't tried a low iodine diet because of the health benefits of iodine but I do have to watch some things.

How long after you eat those things do you start having issues with your DH? How do you link the two together? I'd like to figure out what aggravates mine.

0

Share this post


Link to post
Share on other sites

Hi, I had an incredibly itchy scalp for years and was really embarassed about it. After 5 weeks being gluten free it had almost disappeared then I realised that coffee seemed to trigger odd blisters so Ive cut out coffee for the last 2 weeks and I'm completed itch free :) . Not sure if coffee was an allergy for me or if it was cross reactive or what it was but if you drink coffee (i even seemed to react to decaf), it may worth eliminating for awhile

0

Share this post


Link to post
Share on other sites

If I eat sea salt (which sadly, I really like) my DH worsens from about the 2nd day of having it. This applies to putting it in things I'm making and eating too. I don't eat salty things normally but occasionally some sea salt is lovely :unsure: .

When I was eating oily fish (mainly salmon) three times a week it got a lot worse but of course, it was some time before I realised what the problem was.

Can't take cod liver oil (concentrate) either as this makes me hypothyroid too, in about three days.

 

This gives me a double whammy over iodine :blink: although I have never tried to go on the low iodine diet that some have had success with here.

0

Share this post


Link to post
Share on other sites

The sea salt & the seafood including cod liver oil since cod come from the sea are all high iodine. That's why you have a problem with it.

0

Share this post


Link to post
Share on other sites

I am newly diagnosed with celiac disease. I have had DH on my scalp for a few years but I didn't realize that's what it was until I was diagnosed recently. I have given up gluten but is there anything I can or should do to help heal my scalp?? It is so itchy, flaky, and burning, I would love some relief!

 

Scalpicin will take the itch away, immediately.

0

Share this post


Link to post
Share on other sites

I have it for a month and it's driving me crazy. i love scalpicin and dermovate for scalp it's painful and feels good at the same time when it's itchy. But it makes my blood pressure go up when inuse steroids so right now i don't know what to do. I have DH all over my scalp and i have crust and snowflakes all over my bed and couch and everywhere. I have it all over my chest and back and arm tummy. 

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,377
    • Total Posts
      935,763
  • Member Statistics

    • Total Members
      65,067
    • Most Online
      3,093

    Newest Member
    pauline11
    Joined
  • Popular Now

  • Topics

  • Posts

    • Thanks so much, friends!  JMG, I'll try to get hold of that licorice, almost everything I read gives it glowing reviews.  I miss Bertie Bassets licorice (it contains wheat) so it will be nice to have some licorice again.  Thanks Whitepaw for those ideas, I must admit I'm getting rather fed up with my low fat menu but it seems the best way to keep the pain at bay so it is nice to have something else to cook.  I don't know if I have picked up another intolerance, but you could be onto something there.  And I know what you mean icelandgirl, we've been through so many tests and treatments it all becomes a blur!  My doctor isn't expecting to see me again unless things aren't better within the month, but I might bring my gastro appointment forward if needs be. Actually, in the end yesterday didn't go quite as badly as I'd envisaged it would, which makes me think that some of my pain, bloating and nausea are down to the ompremazole - it does warn that can happen on the packet.  When it says 1 in 10 people get these symptoms I always seem to be that 1 in 10!  I don't have any more burning pain or acid reflux (at least yet) but  I'm still losing weight which slightly troubles me.  That said, when I think of how I normally eat I must be down at least 500 calories a day.  JMG will know from another thread that I have a sweet tooth and at the moment the thought of eating a bar of chocolate makes me feel very sick indeed... Oh no - hope that doesn't mean I have developed a chocolate intolerance! I bought some 10g ompremazole tabs yesterday from Boots, having had nothing yesterday, and I've taken one at breakfast time.  So far so good.  I think I might take these for a few days then taper off. Thank you so much guys for accompanying me on what would otherwise be a lonely journey.  
    • Update: I have been taking Chanca Piedra (specifically, Royal Break-Stone, by Whole World Botanicals) on an empty stomach in the morning for the liver-gall bladder and surprisingly my lips are almost normal. I know the peeling lips may be caused by different issues but I hope this info helps someone.
    • Hi Cristiana, I'm so sorry that you are still not feeling well.  When do you go back to your Dr? I wish I could help more, but it's so hard to know what was what when I was on the PPI.  I was diagnosed with celiac and h. Pylori on the same day so I was already feeling awful.  Then I was put on 2 antibiotics with the  PPI.  I do remember feeling terribly nauseous, but just assumed it was the antibiotics.  When I started tapering, I still wasn't feeling well.  It really took months before I started to feel decent.  But I assume that it was the celiac. I really hope you start to see some improvement...((((hugs))))
    • @scorpio it has now been almost 2 years and I am curious if you ever found something that worked for you. My boyfriend suffers from EC as well and I am desperate to find a resolution for his sake. He's been dealing with it for over a year now and it is taking a toll on his work and social life.   Any updates would be helpful
    • I am going through the diagnosis stage as well. My family has strong history for celiac disease, and while I always had discomfort and other symptoms ( some of which i didnt know about) I wasn't tested until recently because I was DEATHLY afraid of needles. The results are highly positive but I am still getting a biopsy in early August. From what I have learned about it is that the endoscopy is beneficial to looking for not only signs of celiac but also other diseases that have similar symptoms to celiac. Because of your mixed result it wouldn't hurt to get a biopsy but it really is personal preference. I understand what you are going through and didn't like the idea much either but I really think it is something that can help you in the long run. P.S. There are lots of testing being done for new medications or other ways to "cure" celiac other than a gluten-free diet. It is my understanding that this can only be covered by insurance with a confirmed diagnosis (biopsy) but I don't need to get into that. The bottom line is that a biopsy is confirmatory especially since the doctors could see in the intestine, so to me, I feel better knowing that there's no chance of going gluten-free for nothing.
  • Upcoming Events