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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.
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Gluten Free Carbs Hindering Recovery
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9 posts in this topic

Hello everyone. I would like to state that after almost a year gluten-free, DF, I still was not healing and feeling more fatigued than ever. I have been doing research and I will post some information specifically when I remember where I saved it. (Foggy Brain) That said, (for me) I am finding that all starch carbohydrates as in, breads, pastas, snacks, anything of that type are hindering (MY) recovery. It seems that the bad bacteria in the gut are kept very happy when given any of these types of foods even though they are gluten free.

The research and my experience tells me that following a mostly Paleo diet and gluten free I am just beginning to see a difference after all this time. I am hopeful that once I have healed I might be able to introduce a bit of these foods into my diet, of course time will tell. Finding the right supplements was crucial as was recommended to me by senior members. I don't know if this will help anyone, but I felt I should throw it out there. Finding this out I think is going to truly save my life. Best of luck, well wishes and feel better soon.

Best wishes and feel better soon everyone.

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I was talking to a woman a few weeks ago who said her Dr. told her she was allergic to carbs. I didn't ask what type of Dr. or what test was done. And I'm pretty sure that she was given a dumbed down version of whatever the problem is for her. But she said after changing her diet she has felt better and is now losing weight. I really do not think there is any one diet that will work for all of us.

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I was talking to a woman a few weeks ago who said her Dr. told her she was allergic to carbs. I didn't ask what type of Dr. or what test was done. And I'm pretty sure that she was given a dumbed down version of whatever the problem is for her. But she said after changing her diet she has felt better and is now losing weight. I really do not think there is any one diet that will work for all of us.

That's very interesting Juliebove, thank you for sharing. I couldn't agree more about the diet. :)

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Amen to that. I am in your same situation, Songbird. I cannot even have rice, and don't know for how long I will have to be grain-free and legume-free (I don't seem to have issues with dairy). My doctor originally thought three months would be enough, but now it looks more like nine months, and then we'll see. In my case, even smaller quantities of these cause me almost instant GI reactions and a worsening of my edema in the legs, probably because they exacerbate my protein-losing enteropathy.

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Hi

I too am very suspicious of the fact that high-carbs could be the problem, as opposed to specific foods themselves.

Have noticed that all my problem foods (over and above gluten) are high carbs!!!!!

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In my case, I looked at carb contents of foods and which bothered me the most. Some high carb foods didn't bother me. When I considered cc, it seemed a more likely source of problems. Super sensitive celiacs can react to even the low levels allowed in gluten-free foods. I was fortunate to have a GI who told me about this. Knowing about this enabled me to find a safe diet. I don't know if it could be a possibility for you or not, but I thought that being aware of this issue might help.

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I've noticed I can't eat sweets made with gluten-free grains, in any volume. One slice a cake for two days, fine. More than that - I start to feel bad (belly, blood sugar, cravings).

I can eat coconut/almond/full fat dairy sweets in a higher volume for longer without cravings, bloating, blood sugar issues. They also hit the "stop eating" button in my brain, whereas gluten-free grain sweets don't.

gluten-free grains+sugar= bad news for me.

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It's all such a jigsaw puzzle.

I do consider myself a super sensitive and have yet to find a so called 'gluten-free' food (processed) that I can eat :( .

I do have problems with carbs though, especially combined with sugar which I am also not tolerant to. High carbs give me cravings too, which are worth avoiding!

I find it very helpful here to know I'm not alone :) .

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Hello everyone. I would like to state that after almost a year gluten-free, DF, I still was not healing and feeling more fatigued than ever. I have been doing research and I will post some information specifically when I remember where I saved it. (Foggy Brain) That said, (for me) I am finding that all starch carbohydrates as in, breads, pastas, snacks, anything of that type are hindering (MY) recovery. It seems that the bad bacteria in the gut are kept very happy when given any of these types of foods even though they are gluten free.

The research and my experience tells me that following a mostly Paleo diet and gluten free I am just beginning to see a difference after all this time. I am hopeful that once I have healed I might be able to introduce a bit of these foods into my diet, of course time will tell. Finding the right supplements was crucial as was recommended to me by senior members. I don't know if this will help anyone, but I felt I should throw it out there. Finding this out I think is going to truly save my life. Best of luck, well wishes and feel better soon.

Best wishes and feel better soon everyone.

I too have this same problem - grain free is really helping.  May I ask what supplements you are taking?  I've been experimenting with various things, but would love to know what worked for you.  Glad you found an answer!!

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    • I do have a referral to another GI at one of the top hospitals in North Carolina. I'm just waiting on the call to schedule an appointment. 
    • OK, that's good news, not the milk in the cabinet, that you've not cut gluten! Stick with it and wait for the test results. If they're positive then it will be another endoscopy, but this time with the biopsies. If negative, don't despair. Your GP may still refer you but if not you can try the gluten free diet for yourself. Keep a food diary and follow all the instructions here in the newbie thread and establish for yourself if it's the problem. If it is, don't stress overmuch about a diagnosis. I tested negative but gluten is a big problem for me and many others. The good news is the diet worked for me and it may still for you. In the meantime, try and eat as well as possible and take a good quality B vitamin and multi vitamin to try and boost those levels. Good luck!
    • No I havent cut out any gluten. I cut out stuff I knew hurt me. Like watermelon. Which sucks because I LOVE watermelon.  There are days that I cant even get words out. I can think a sentence and just cant get it out. I constantly stumble and feel drunk in my head. I'm hoping these daily shots of B12 I'm getting will start to help some.  Yesterday I put the milk in the cabinet    
    • Hello, I am new to the glutten-free diet FOR ABOUT 6 WEEKS because I am trying to find a way to clear up my seborrheic dermatitis that I have since I was a teenager. Recently, it is all over my face as well, usually after light sun exposure. The dandruff is annoying and I was checking to see if it because of gluten. I really do not notice any difference with my skin. It has not helped. Should I give it more time? Is 6 weeks enough time to start seeing results? I don't want to be on any medicines. Shampoo's help, but not with my face. Any help would be appreciated. Thanks,    
    • Hello and welcome Its good that your doctor has ordered the celiac test, not sure why your GI didn't, as you say perhaps he was presupposing IBS... You mention cutting out food, you haven't tried cutting gluten yet have you? That can throw the results of any testing. You are best to stay on it for now at least, once testing is done it would be worth trying the gluten-free diet regardless of results. Dont lose heart, be persistent, get those answers and best of luck!
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