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  1. Yesterday
  2. But if you have been off of wheat for a period of weeks/months leading up to the testing it will likely turn out to be negative for celiac disease, even if you actually have celiac disease. Given your symptoms when consuming gluten, we certainly understand your reluctance to undergo the "gluten challenge" before testing but you need to understand that the...
  3. I'm sorry to hear about the challenges you've been facing with your health. Dealing with celiac disease and multiple food sensitivities can indeed be overwhelming. Here are a few thoughts and suggestions based on your experience and the replies you've received: Confirming Diagnosis: It's great that your gastroenterologist confirmed your celiac disease...
  4. Thank you very much for your reply. I hadn't heard of celiac disease but began to notice a pattern of pain. I've been on the floor more than once with agonising pain but this was always put down to another abdominal problem consequently I've been on a roundabout of backwards and forwards with another consultant for many years. I originally questioned this...
  5. Wow! Fascinating info. Thanks so much! I really appreciate the guidance. @Spacepanther Over the years I have had rheumatologists do full lab work ups on me. They told me they had screened me for arthritis, lupus, and Lyme disease (all negative). In addition to joint pain and stiffness I had swelling in both knees that later moved to my elbow as well. I also...
  6. @Spacepanther, I found these articles about the connection between Celiac and joint pain. Musculoskeletal Complications of Celiac Disease: A Case-Based Review https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10201087/ And Intestinal microbiome composition and its relation to joint pain and inflammation https://www.ncbi.nlm...
  7. @Shireen32, Take some deep breaths. Your labs are fine! Your tTg IgA is so low! Well done! Your endomysial IgA is fine. There's not a level on the endomysial test. It's just "yes or no" for if you have celiac disease. No, it's too early to call it refractory. What are you eating? Please tell us more than meat and veg. Do you...
  8. thank you knitty kitty I don't have a vitamin deficiency and I supplement omegas. Are there other more mild symptoms that co-occur with your joint pain as well @Moodiefoodie? I am suspicious my own joint pain could be related to another autoimmune issue. I am wondering if it is Crohn's or something similar because I've continued to experience some...
  9. Here are some more publications on this topic: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/fertility-pregnancy-miscarriage-and-celiac-disease/
  10. Yes, it could be. Anti histamines help with the symptoms but I don't really like to take them long term.
  11. There is a product call Quinoa Flakes that might be a good substitute for oats.
  12. I would assume that he used gluten-free beer, otherwise he could not win the gluten-free category of this contest.
  13. How much gluten daily were you eating before your blood panel was taken? Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:
  14. It's certainly possible, but since it just turned spring it could also be something that is blooming now that you are allergic to. Perhaps new plants around the new houses?
  15. Napoleon Bonaparte's itch was reported to have affected various parts of his body, including his hands, legs, and body in general. However, specific details about the exact location or severity of the itch are not extensively documented in historical records. It's often mentioned in broader terms, such as "Napoleon suffered from an itch," without specifying...
  16. I am not a medically qualified person, but I think in your shoes I would do the same. If you are in the UK, there are some really good gluten-free aisles now. The largest range near where I live, currently, appears to be in Tesco's.
  17. @cristiana I’ve got an appointment with the midwife next week so will speak to her then. Waiting for gp to get back to me. I’ve made the decision today to cut gluten out regardless due to the risks I’ve read about
  18. Hi Katie I am so sorry you had two miscarriages in the past. Try not to worry, though, because it could be that they were unrelated, perhaps? Well done for contacting your GP. Is it possible that you can speak to your midwife in the meantime for a chat? Cristiana
  19. @cristiana hi! the things I’ve read online about having untreated coeliac disease whilst pregnant has really scared me and made me very hesitant to continue eating it. I feel like the best option might be to eliminate gluten from my diet now and then continue with testing after I’ve given birth. I’ve got in touch with my gp and am due to get a pho...
  20. @Katiec123 Welcome to the forum. I started to have symptoms related to coeliac disease (mouth ulcers, aura migraines etc) but no gastric symptoms during my first pregnancy. That went to term, in fact, I was 10 days over and had to be induced. But my second baby, born 21 months later, arrived at 33 weeks. He's now doing well, and taller than all...
  21. Hi , since being gluten free I am still having bad stomach problems . Such as constant gas in my stomach 24/7 ,burning, constant bubbling noises coming from my stomach and gurgling sounds that never stop .Pain under the left side of my rib cage when ever I eat and just always there’s pain there . My symptoms have not improved at all since being gluten f...
  22. Vitamin D deficiency. Not enough Omega Threes. Another autoimmune disease like arthritis, maybe.
  23. @RMJ it makes sense as it’s something I’ve experienced more than once. Currently 24 weeks and baby is doing well! Will be seeking more medical advice today
  24. Thank you! This is great information and perfect timing because we have our first appointment for a second opinion tomorrow.
  25. Well, you asked how it could be gluten free and I was just explaining how it could be. And that must be the case sense the entire dish is being marketed as gluten free. If one of the ingredients is not gluten free, then the entire dish is not.
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