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  2. Having read more articles about the university experience now, I am more aware that many universities have already added separate kitchens and dining rooms on their campuses. This is a move in the right direction and I love the “food court” idea where each separate station only concentrates on preparing one dish (preparing it well and in great quantities) so the gluten-free or the Kosher or Vegan ones are all non-contaminated as best as possible.
  3. I agree that the University needs to be aware of and enforce procedures that are required for students with Celiac Disease or other allergies but to expect them to have a separate kitchen is perhaps a little too demanding I think. My friend owns a catering company and she has color coded separate utensils to avoid confusion but there are still times mistakes are going to happen with she or her staff. Even with a separate kitchen mistakes of cross contamination can happen. It’s a real pain but my suggestion is to bring your own food everywhere in order to be safe when forced to eat out.
  4. Today
  5. 04/22/2019 - A gluten-free diet can improve symptoms of schizophrenia in certain patients, new research suggests. In the small pilot study, Deanna L. Kelly, PharmD, professor of psychiatry, University of Maryland School of Medicine, Baltimore, and colleagues studied the effects a gluten-free diet in schizophrenia, especially in patients with elevated gluten antibodies. Kelly and her team set out to determine whether a gluten-free diet would improve psychiatric symptoms in this subgroup of patients with elevated AGA IgG. They found that schizophrenia patients with elevated gluten antibodies, specifically, elevated antigliadin antibodies (AGA IgG), who followed a gluten-free-diet for 5 weeks saw a greater reduction in negative symptoms compared counterparts on a non-gluten-free diet. "With a gluten-free diet, we do have the potential to improve psychiatric symptoms, particularly negative symptoms, which is a symptom domain with a high unmet clinical need," said lead investigator Deanna L. Kelly, PharmD, professor of psychiatry, University of Maryland School of Medicine, Baltimore. Currently, there are no good treatment options for negative symptoms of schizophrenia, "so this could be a treatment for people if they have these antigliadin antibodies," Kelly said. Nearly One-third of Schizophrenia Patients Gluten Intolerant Elevated AGA IgG may be present in about 30% of all patients with schizophrenia. The antigliadin antibody is not related to the antibodies seen in celiac disease, which affects roughly 1% of the overall population. Schizophrenia patients with elevated AGA IgG show substantially lower positive schizophrenia symptoms than those who test negative no AGA IgG. They also have higher levels of kynurenine, a metabolite of the amino acid L-tryptophan. Kynurenine has been linked to schizophrenia pathology, and to other conditions, Kelly noted. The tryptophan kynurenine pathway also has important links to neurotherapy. Strategies for treatment of schizophrenia are still largely "one-size-fits-all." The team's study began largely after a single 2-week gluten-free trial in two people with elevated AGA IgG and schizophrenia showed "robust symptom improvements, particularly in the domain of negative symptoms," so we wanted to do a feasibility study and enroll more patients," Kelly told reporters. The team's findings were presented at the first annual Congress of the Schizophrenia International Research Society (SIRS) 2019. Read more at Medscape Medical News
  6. Do you have kids? Having a firm diagnosis can make it easier to get a diagnosis for them since celiac disease is genetic. It does take some “trigger” to activate it, but it definitely runs in families. Testing is not that inaccurate. It is not perfect, but it is pretty darn good. While I am diagnosed officially, my hubby is not. He is doing well on the gluten-free diet for 20 years. But the medical industry does not really take him seriously and that includes family and friends. I get way more support. Just something to think about when you get pressure to deviate from your diet. A lifelong gluten-free diet is pretty serious. It is not like falling off the Weight Watchers wagon. Whether it is celiac disease or not, you should see a doctor, specifically a Gastroenterologist. A PPI is just a bandage. What is the source of your GERD? Could it be too many NSAIDS? What if it is Crohn’s or cancer?
  7. If you have celiac disease, gluten causes your body to attack itself, damaging your intestines. So it's essential to avoid the stuff—but a new study ... View the full article
  8. In children with "potential" celiac disease—positive serology but negative biopsy—who are not on gluten-free diets, factors that may help predict risk for eventual villous atrophy include age at diagnosis, gamma delta lymphocytes, ... View the full article
  9. Five Guys fries are the best. They don’t sell any thing fried except French fries so no chance they mix oils, accidentally fry chicken in the wrong fryer,etc. they also taste really good.
  10. Thank you for your reply GFinDC, much appreciated. Still having second thoughts on testing and going back to eating gluten. I have read that the testing can be inaccurate...still not sure what to do...
  11. Hi, Welcome to the forum! Yes, yellowish stool can be a symptom of celiac disease. There are hundreds of possible symptoms of celiac though. If you want to get tested, please start eating gluten again right now. The testing looks for antibodies in the bloodstream. Testing is not accurate of you are not eating gluten for at least 12 weeks prior to the blood draw.
  12. Hi Dale, Welcome to the forum! :) Your symptoms could be caused by celiac disease. Celiac disease can affect every system in the body. The reduction in symptoms when gluten-free and resumption of symptoms on gluten exposure is very telling. Unfortunately the actual diagnosis process does involve eating gluten to enable accurate testing. Celiac disease is an auto-immune disorder. In celiac the immune system creates antibodies that attack some part of the body,. Sometimes the attacked body system is the gut (small intestine) but other times it is the skin or some other body organ(s). When we go gluten-free the immune attack slowly subsides because the body reduces and then stops making gluten antibodies. Those antibodies are the primary thing they run tests to find evidence of celiac disease. So the standard testing requires eating gluten for 12 weeks to be sure there are enough antibodies to detect in the blood stream. Two to 4 weeks for the endoscopy. If you've never had a colonoscopy or endoscopy, don't worry. They are easy as usually the patient is sedated. However, you may not be able to complete the gluten challenge due to your symptoms. In that case, it may be better to just stay gluten-free and live as a celiac from now on. There are not any great treatments for celiac disease right now, so a diagnosis is of limited value. There is also a gene test they can do which doesn't require you to be eating gluten. However it only shows if you have the genetic possibility to become celiac, not that you are celiac. About 30% of people have one of the genes, but only 1% become celiac. Lots of doctors are unfamiliar with celiac disease and testing for it. So it can be helpful to search for a celiac aware doctor in your area. Sometimes there are celiac disease support groups in an area that can recommend a doctor. We also have a thread with doctor ideas for various states. Usually a gastroenterologist is the specialist doctor for celiac testing.
  13. hi there, i'm new here. I just want to know if anybody here experienced having yellowish stool? I have been to doctors but cannot find anything wrong. Been prescribed with PPI for my GERD. To my research, it seems all the symptoms are pointing to Celiac disease. I have started gluten-free diet for 3 days now. feeling better and my energy is better, my GERD is also better. I'm just worried about having yellowish stool for months. Is it also part of this disease? When should I expect to have normal stool again? Thank you in advance for the replies.
  14. Yikes Ennis. I have not come across this before. I do want to chime in to wish you clarity, health, and healing soon.
  15. Hi Dale, Welcome It is possible based on what you shared you may have had a gluten reaction. Did your joint pain return as well as the gi pain? Is this your regular physician? If he is sending you for colonoscopy it maybe worth telling the gi Dr about your gluten NCGS or celiac concerns. The colonoscopy will not see small intestine damage that requires a endoscopy. 3 years ago they gave me both scopes, but prior to that I only had a colonoscopy. My colonoscopy was ordered in my early 30s due to another relatives health issue not celiac. I was missed at different intervals with a variety of symptoms in my early 20s, 28, 30, 32, and 38. I only became official in medical records 3 years ago at 42. If the gi wants to pursue celiac testing often they will want you on gluten for 12 weeks. Occasionally a gi will do a 2 week gluten challenge with an endoscopy, but the 12 week challenge is the norm. Unfortunately I was misdiagnosed and missed for quite a long time. My cousin is also a celiac and was missed until her 30s. She was diagnosed before me. We also present symptoms differently. So if you feel this maybe your issue you need to ( despite your other Dr poo poo ing your concern) let the gi know. Best wishes Good luck
  16. Yesterday
  17. justwantcure, I don't know if this will help you are not ...but it is worth a shot. There is a genetic condition than cause you to smell like rotting fish. https://www.medicinenet.com/fish_odor_syndrome_trimethylaminuria/article.htm#how_do_people_inherit_fish_odor_syndrome_trimethylaminuria You said B.O. but are you sure it's not your breath? I used to have an ulcer (being undiagnosed) that caused a condition called "dragon breath" or bad breath on steroids....my friends would tell me I had bad breath ...despite brushing my teach regullarly. https://www.sciencedaily.com/releases/2008/11/081123222846.htm It was bad enough ...I could cup my hand and test my breath for it's smell and I was repulsed by the smell and when I have encountered other's with dragon breath ....I can usually tell them it' an ulcer (I can stand 10 feet away) and still smell their breath....It is quite an abnormal thing. Bad breath is also known as Halitosis ...but when it is ruining your life...it is probably most likely from an ulcer and you don't know you have one. try buying your some mastic gum ...it really works wonders for ulcers. https://www.dailymail.co.uk/health/article-97549/A-gum-cure-stomach-ulcers.html I hope this is helpful but it is not medical advice. Posterboy,
  18. Ennis_Tx, If you want to try and bird dog it yourself and don't have enough insurance to go see a doctor at the moment. Here is the AAFP site article about this topic of a Fever of an Unknown Origin (FUO) https://www.aafp.org/afp/2003/1201/p2223.html Again I hope this is helpful but it is not medical advise. Posterboy,
  19. Ennist_Tx, I am not saying this is what it is ...but it bears checking into. Persistent, intermittent fever could be reactivated EBV. ... it also known as CAEBV. Here is some research about it. https://www.wellnessresources.com/news/new-findings-with-epstein-barr-virus-the-sleeping-giant https://www.doctoroz.com/article/secret-life-epstein-barr-virus https://www.ncbi.nlm.nih.gov/pmc/articles/PMC358181/ Persistent, intermittent fevers is one of the main characteristics of CAEBV. Your probably don't have fatigue most people have because you are taking Magnesium. http://simmaronresearch.com/2015/08/epstein-barr-virus-the-magnesium-connection/ I hope this is helpful but it is not medical advice. Posterboy,
  20. So it used to VERY common for me to run fevers for days growing up. But I have not had issues with it in a few years till recently. For the past few months I have been running a fever nonstop 102-104F, would not have really noticed it aside from constant sweating sometimes. Anyway I keep checking my temp and seeing it always in this range, no fatigue, sometimes a bit of a mild headache, no pains, the vomiting stopped weeks ago with diet eating habits, and enzymes, stools formed solid and going 3-6 time a day...but I eat a ton. Really odd part here, a forehead thermometer will show my temp to be 97,6 all the time. Oral, Underarm, or rectal core temp is is the 102F-104F sometimes spiking to 105F. Wondering if autoimmune related. I even have spreadsheets of them throughout the day, with no correlation to foods, meds, exercise etc. Just completely random. I welcome any insight or opinions.
  21. Thank you so much for all the great help, small update I seem to now be only have very soft stools one in 5 or 6 looking more to normal but still all are a bit soft but an improvement. I had a repeat Tissue Transglutaminase (IgA) this week and it’s down from 9.9 to 1.1. I was told on the NHS here in the UK a repeat endoscopy is not done... Left wondering should I get a private endoscopy done and also get other panels of bloods done to see if all the blood levels are reduced (on the NHS they are only doing the Tissue Transglutaminase (IgA) ) and at what stage in the process to do these if I should (I don’t mind paying for these if it’s a good idea? ). Thank you to all...
  22. Just realized I messed up on the easter roast a bit. My chef side was like, Rub the meat with 6 cloves of garlic and some sprigs of thyme and olive oil and let marinate for 24 hours, set to room temp then oven 275F 3 hours with celery, beef stock, and onions and finish 350F with the potatoes, and carrots 1 hour, let the meat set on plate strain the broth, simmer in saucepan to reduce and thicken with coconut flour or egg yolk and stir with rosemary sprig. My family used to do it minus the herbs and garlic, like just do simple black pepper, onions, celery, and add in the veggies later. then thicken the juices with white flour to make a gravy all super simple. Ramsey side be like, Rub the meat with 12 cloves of garlic and some sprigs of thyme and olive oil and let marinate for 24 hours, set to room temp then sear in a skillet on high and roast open in roasting pan with garlic and tyme at 375F for 45 min (med rare) or a hour for medium, then set the meat to a platter and place roasting pan over stove on low heat with 4 large onions cut thin, for 20-30mins stirring til caramelized, sift in 50g of coconut flour and 500ml red wine and bring to a boil til reduce by half then stir in 1.5liter hot beef stock and cook over medium heat til a thick gravy forms Really annoying have inner chefs arguing over how to prepare a dish in my head. I sort of just take tips from all points of view and sometimes get mixed up.
  23. Avoid the standard gluten-free cakes etc. Starches/sugars/carbs will do nothing for healing, and putting on healthy muscles. Look to real food full calories of stuff your body needs. Fats, Go for nut-based baked goods (look up keto baked goods/bread recipes on ketosummit, or brands like mikey's, Julian bakery or flour foods pizza crust, even Know foods) and healthy fats for baked goods, Look to almond butter, sunbutter, avocados, macadamia nuts, coconut, almond flour, eggs, whole meats, and fish. Even using stuff like Primal Kitchen mayo and their condiments dressing, Fats are one of the primary fuel for the body, and without the sugar/carb triggers your body will not store it. Protein, like soft slow cooked/stewed meats, collagen powders, bone broth powder, eggs/egg whites, vegan protein powder blends, can be added in along with creatine, and some BCAAs with meals. Easy to digest proteins your body needs to rebuild damage and build, remember protein is the building blocks of our body. Taking digestive enzymes with your meals, in ratios for what you eat like the ones from RealZymes for your diet so you break down the foods and get more nutrients from them. Option options include EnzymePedia, and SilverFern. or even the bases with pancreas enzymes by Jarrow. But remember it takes certain amounts of each one in your body to break down the ratios of food you eat. If your gut is still iffy using stuff like Celiac Support Comprehensive Clear Meal from Pioneer labs can help. it is a nutrient shake for those with celiac and damaged guts include stuff to soothe the intestines and get you nutrients. AND THIS is counter-intuitive but FASTING helps. I was against this for years thinking I had to eat every 4 hours at least a scoop of protein powder. BUT I was wrong, the body will burn energy and focus on digesting first, and not repairing and building the body with this method. A small fast of 12-16 hours eating NO calories at all but just unsweet tea and coffee will lead to your body focusing on healing damage and building muscles. 12-hour window stop eating at like 7pm and do not eat till 7 am next morning slowly expand on this til you reach your sweet spot. For me, this is 16 hours window, but I have some friends that body build with a 20 hour fast daily.
  24. I stick to spicely organic for most spices, I also use Big Axe Spice blends in some cooking. Never had issues for myself or those I cater for.
  25. Not sure if someone has posted this before, but I found it interesting UIC Chicago researchers found celiac permanently reshaped immune cells in the intestines. https://www.uchicagomedicine.org/forefront/gastrointestinal-articles/2019/february/celiac-disease-permanently-shapes-immune-cells-in-the-intestine PS: Note: UIC is University of Illinois (Chicago campus) vs University of Illinois (Champaign Urbana campus)
  26. I use Stubbs’ rub, chili mix and BBQ sauces. It is made in Austin Texas and certified gluten free. Otherwise, I use single spices. Hope someone can tell you about their experiences with Lawry’s.
  27. I know it has been some time since this thread was posted. I am planning on using Lawry's seasoning, along with hot chili powder, pepper and paprika for a rub on my beef brisket. Is it safe? All indications are show safe. Anybody been using it - love to hear your experience. Thanks
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