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  1. Past hour
  2. Smith-Ronald started following Lymph nodes
  3. Smith-Ronald
    Smith-Ronald joined the community
  4. Today
  5. icon cristiana reacted to a post in a topic: Constant low back, abdominal and pelvic pain!
  6. lortaine
    lortaine joined the community
  7. Random.user556
    Random.user556 joined the community
  8. Bayb
    Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep...
  9. SoCalSuzy
    SoCalSuzy joined the community
  10. Mcqueen23
    Mcqueen23 joined the community
  11. Aussienae
    I agree christina, there is definitely many contributing factors! I have the pain today, my pelvis, hips and thighs ache! No idea why. But i have been sitting at work for 3 days so im thinking its my back. This disease is very mysterious (and frustrating) but not always to blame for every pain.
  12. saiam14
    saiam14 joined the community
  13. Yesterday
  14. trents
    "her stool study showed she had extreme reactions to everything achievement on it long course of microbials to treat that." The wording of this part of the sentence does not make any sense at all. I don't mean to insult you, but is English your first language? This part of the sentence sounds like it was generated by translation software.
  15. trents started following Why?
  16. trents
    What kind of stool test was done? Can you be more specific?
  17. William day
    William day joined the community
  18. Michelr
    Michelr joined the community
  19. mishyj
    Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
  20. mishyj started following Why?
  21. mishyj
    My daughter has celiac disease and has had for a long time. She fell loses strictly gluten-free diet and recently got rid of all cutting boards in any gluten in her house at all. She just had a stool test and it came back showing of gigantic response to gluten in her diet. What could be going on since she doesn't eat any gluten and is very careful about any...
  22. Julez13
    Julez13 joined the community
  23. mishyj
    mishyj joined the community
  24. cristiana
    I think sometimes the pain described here can be a result of a sort of 'perfect storm' of contributing factors. Recently I had an appalling bout of lower back pain, lower burning gut pain and what felt like cramps. I then started to think about what could have caused it and I realised it was several things that had set it off: I'd been carrying heavy luggage...
  25. cristiana
    HI @Kirbyqueen That's great news your insurance will be kicking in soon. Sorry to see that you have been dealing with this for six months now, but I do hope you have managed to find some relief with some of the suggestions in the meantime. Perhaps come back and let us know what the doctor says. Cristiana
  26. icon cristiana reacted to a post in a topic: Have this rash forming on the back of my legs. Looking for relief outside of going to the doctor.
  27. Scott Adams started following Trying to read my lab results
  28. Scott Adams
    I agree, and hopefully your doctor will contact you soon about the next step, which will likely be an endoscopy to confirm your diagnosis. Do you have celiac disease symptoms?
  29. icon Scott Adams reacted to a post in a topic: Constant low back, abdominal and pelvic pain!
  30. icon Scott Adams reacted to a post in a topic: Constant low back, abdominal and pelvic pain!
  31. icon Kirbyqueen reacted to a post in a topic: Have this rash forming on the back of my legs. Looking for relief outside of going to the doctor.
  32. icon Kirbyqueen reacted to a post in a topic: Have this rash forming on the back of my legs. Looking for relief outside of going to the doctor.
  33. Kirbyqueen
    Still dealing with this rash on my legs. I've eliminated ringworm (through use of topical ointments). And I also know it's not shingles, as I've never had chickenpox before and I'm still fairly young. Through a lot of online research, I'm leaning more towards dermatitis herpetiformis, eczema, or psoriasis. I've actually got a doctor's appointment in...
  34. icon Scott Adams reacted to a post in a topic: Isolated DPG-Iga
  35. dixonpete
    Day 2, the day after incubation, I found 1 inactive larvae after sampling both jars. By sampling I mean inspecting about 15 mls of water extracted from each jar. Day 3, nothing. Day 4, I saw one larva in each jar. Day 5, I estimate there were 15–20 larvae in each jar. Enough to inoculate. So I guess that's the answer. 5 days. Waiting l...
  36. trents started following Trying to read my lab results
  37. trents
    You have three celiac disease specific antibody tests that are positive: Endomysial Antibody IGA (aka, EMA), tTG-IGA, and tTG_IGG. Furthermore, your Immunoglobulin A at 55 is low, meaning you are IGA deficient. This one is not an antibody test for celaic disease per se but a measure of "total IGA" levels and if low (yours is low) it can suppress the individual...
  38. icon Grlybrainiac reacted to a post in a topic: Seeking Gluten-Free Advice for My Trip to South Korea!
  39. icon Grlybrainiac reacted to an article: Ensuring Medical Rights: A Recent Court Ruling in Phoenix v Amonette Sheds Light on Prisoners' Access to Gluten-Free Diets
  40. icon Grlybrainiac reacted to a comment: Ensuring Medical Rights: A Recent Court Ruling in Phoenix v Amonette Sheds Light on Prisoners' Access to Gluten-Free Diets
  41. Bayb started following Trying to read my lab results
  42. Bayb
    Hi, I received my labs via email yesterday and have not heard back from my doctor yet. Can anyone tell me if these results indicate I have Celiac? Endomysial Antibody IgAPositive Ft-Transglutaminase (tTG) IgA6 H0-3 (U/mL) - Negative 0 - 3 - Weak Positive 4 - 10 - Positive >10 - Tissue Transglutaminase (tTG...
  43. Aussienae
    Mine is definitely triggered by inflammation and stress! I do also have arthritis in my spine, but the pain is more in my pelvic area. Im sure i have other food intolerances or other autoimmune isues but the more I focus on it and see doctor after doctor, it just gets worse. Best thing is get of Gluten! (I also avoid lactose). Try to limit stress and...
  44. ButWhatCanIEat
    Good morning, I got an email about replies to this post. Some of my doctors had blamed a slipped disc for the pain I had and that contributes, but after meeting with a gastroenterologist AGAIN and trying some lifestyle modifications, I found out I have IBS and can't tolerate corn or excessive fructose to any degree. Cutting out corn AFTER having...
  45. trents
    So, I contacted Scott Adams, the author of that article and also the creator/admin of this website, and pointed out to him the need to clarify the information in the paragraph in question. He has now updated the paragraph and it is clear that the DGP-IGA does serve the purpose of circumventing the false negatives that IGA deficiencies can generate in the...
  46. knitty kitty
    Here's a link... Thiamine Deficiency Causes Intracellular Potassium Wasting https://www.hormonesmatter.com/thiamine-deficiency-causes-intracellular-potassium-wasting/
  47. Soleihey started following Lymph nodes
  48. Soleihey
    Has anyone experimenced enlarged lymph nodes with celiac? Both in the neck and groin area. Imaging of both areas have said that lymph nodes are reactive in nature. However, they have been present for months and just wondering how long this may take to go down. Been gluten-free for about two months. Blood counts are normal.
  49. Kmd2024
    Hmm interesting I just assumed that any “IGA” tests including the DPG iga would be negative in a person who is IGA deficient but maybe that is not the case for the DPG test.
  50. Scott Adams
    If you were just diagnosed I can say that if you go 100% gluten-free should should see dramatic improvement of your symptoms over the next few months, but the hard part is to stay gluten-free. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):
  51. Last week
  52. trents
    From the article I linked above: DGP-IgA and DGP-IgG (Deamidated Gliadin Peptide) Blood Tests for Celiac Disease These tests measure the levels of antibodies in the blood, but specifically targets deamidated gliadin peptides, which are a type of gluten protein that can trigger an immune response in people with celiac disease. The test is not always...
  53. Kmd2024
    No they did not run a total IGA. But wouldn’t the DPG-IGA also be negative also if I was IGA deficient? They did also run a TTG-IGG and a DPG-IGG and they were also negative.
  54. trents started following Isolated DPG-Iga
  55. trents
    The DGP-IGA is valuable when celiac is suspected but the person being tested is IGA deficient. Were you tested for IGA deficiency. In other words, was there a test known as "Total IGA" ordered? Here is an overview of the various blood tests that can be run when diagnosing celiac disease:
  56. Kmd2024
    Has anyone ever negative blood work except for the DPG-IGA? Mine was 42 (reference range negative is >20. The TTG iga was negative. I have always suffered from bad gas issues and lately have been having bouts of diarrhea and constipation. I also have a bumpy rash that comes and goes below both elbows. i have an endoscopy scheduled in May but...
  57. trents
    Welcome to he forum community, @DjinnDjab! You wrote: "i just found out i may have celiac. so needless to say i no longer have friends or relationships." Are you saying that the need to eat gluten free has resulted in losing all your friends and your entire social life?
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