This is an old thread but I just need to get this out of my system! I am just so fed up with how every caregiver has been dealing with me case.
My enzymes have been abnormal and my doc continuously asks me if I'm binge drinking - I literally haven't had a sip of alcohol in 2 years. and haven't actually been drunk since my early university days (which was long long ago). She also tells me that all of my troubling neurological symptoms - sensory hypersensitivity, tinnitus, jaw/pain, headaches, fatigue, teeth grinding, nightmares, and EPILEPSY are "all in my head." ??? When I told her my symptoms had decreased on a low gluten diet and I was interested in being tested for celiac, she asked me "why bother? if you're feeling better, just eat less gluten" - not understanding that a formal diagnosis can significantly change my health behavior to be more strict with the diet.
I just wish I had some other disease that was more medically recognized and understood. Its so demeaning, and I try to see my doctors as little as possible now. I do my own research on PubMED and google scholar. And I don't even think I've had it the worst- I'm totally appalled by all of the crap I've read on this thread. Anyways, I'm done ranting.
Has your Dr mention Microscopic Colitis at all. You mentioned taking PPI's. I took them for over a year - 2 morning and 2 night. I think that's how I ended up with Microscopic Colitis. I don't think I have Celiac disease but do think I am very sensitive to gluten. My GI dr. told me to eat whatever I want , but have learned from research, partly from microscopiccolitis.org that almost everyone with MC is sensitive to gluten and most to dairy and some to soy. I know some on this site don't agree with some of what is said on that site, but they are really good people who want to help. Just said all that to say, maybe you should ask your GI if you could have MC. Hope you get it all figured out. I know the frustration. It can take over your life.
Yeah their shreds raw are nasty but melted in recipes they are decent, they make 2 different shreds a cutting board super stretchy version and a plain, they also sell that mac and cheese sauce by itself for use in other recipes. https://store.veganessentials.com/daiya-deluxe-cheeze-sauces-p5079.aspx The company makes a decent cream cheese and cheese cake also if you can stomach the xantham gum.
I am going to copy and paste something from another thread thread and link you a list of alternatives.
Violife...makes vegan Feta...I have been dying to try their cheeses and hear good reviews. They also make other cheeses.
Kite Hill makes great Ricotta, the truffle cheese from them....yeah you will eat the whole thing in one sitting stuff is addictive, decent cream cheese if you can stomach xantham gum (only one they have that has it).
Miyoko Creamery makes great mozzarella and even a smoked version I hear they make great cream cheese and wheels also but I have not gotten any.
Leaf Cuisines makes the best smoked gouda, and a strong garlic and herb cheese
Tree line Scallion is glorious, and their garlic and herb is milder then Leaf cuisines but decent flavor...the peppered is meh.
Daiya Blocks flavor wise are better then the shreds, the jalapeno Havarti is one my my dads favorites and he loves their cheddar...again xantham gum so not for me. Their cream cheese is decent but noticeable artificial. Their shreds come in 2 formulations a high melt version (cutting block) and standard I they taste better cooked into recieps over raw.
Daiya recently started offering cheese sauces...like the stuff they used to sell with their mac&cheese but just the sauce.
Lissanatti makes the best "raw" shreds for cheddar and mozz.
Parma makes great Parmesan sub...the better then bacon one is SUPER addicting.
I heard good reviews on so delicious cheese....but corn makes makes me not even able to do a chew and spit taste without an allergic reaction.
I recently found a creamery you can contact about getting cheeses...I found their sauce on a site and got it.....great Alfredo sauce.
Dairy Free cheese products NOTE CHECK FOR GLUTEN FREE ON THEM
Dairy is dairy on a elimination diet, your trying to void all the proteins, lactose, whey, casein, and the enzymes, hormones, pus, etc that could be setting off issues. I would even say wait at first on the dairy free alts. IF anything go with the fewest ingredients ones without starches or gums like the plain kite hills, tree line, leaf cuisines and miyoko. And completely sideline the crazy ones like daiya, or the blends of more then 2-4 ingredients.