I was misdiagnosed IBS over 20 plus years. I was diagnosed IBS by symptoms only. My cousin is a gold standard celiac. My story is complicated my medical records now state I am NCGS. Overtime my convoluted story it has come to light I am a DH celiac.
I have always had gi issues My whole life ! Numerous skin rash issues dermatitis etc, and plenty of odd symptoms that I realize now we're celiac. I had your symptoms and many more ataxia etc.
No IBS was found on my scopes. It might not be IBS for you either.
Just wanted to chime in. During my 2 plus years of healing I had joint pain and muscle pain with some of the nightshade mainly peppers and tomato. I stopped them. I can now eat them again. My theory is when my gut gets cc my holey gut dumps some of my food in my blood stream and my already ticked off immune system let's me know what is allowed. Apparently for a time nightshades of potato, tomatos, and peppers were an issue. I was able to gradually introduce potatoes first and then tomatos, then peppers. It didn't manifest in me as a DH skin or rash issue. I also had an early time I stopped rice as I got itching, but not DH. My body was quite twitchy and sensitive 13 intolerance s then 8 etc over time. My chiropractor (also a celiac also told me to avoid soy at that early time)
As many know now-I am gluten, corn, and milk free. I too am sensitive to xanthum gum. Edit i have never liked oats - as a kid I rarely ate them and I don't eat them now. gluten-free oats are in the house as My daughter likes them.
Although my medical records officially state NCGS, my spouse and I have found I am likely a DH celiac upon cc it's very apparent now. Sadly 😠 Also my former Puppp rash diagnosis (visual diagnosis only) 14 years ago and the 2016 U of I celiac info about the DH /Puppp connection puts a bow on the issue on connect the dots for me. As I say on here all you DH folks have Puppp or My Puppp is DH. Lol 👍
My spouse and I decided to accept I'm a DH celiac as this post challenge life and the occasional dreaded cc has revealed/spoken. We are in no hurry to attempt my undergoing another (incomplete challenge) to prove it. I can't finish 2 weeks now can I give them 12. The cost was too high physically, emotionally, financially, the first time and it's possible my endoscope won't be gold standard ever. My cousin a good standard celiac. So NCGS stays in the medical record, but I very much live as a DH celiac now.
I recently stopped eating in the shared work lunchroom (despite my best efforts) as I was cc 3 times over 5 months. It was the only time I ate away from my gluten-free home. I now eat in my car at work and no longer use the employee restrooms within the lunchroom area . I only use restroom outside of the lunchroom area.
Hoping this works as I re-entered the work force after having left employment during my 2 plus years healing.
Good luck on Fasano I hope with the help from those on here you get well soon.