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By knitty kitty · Posted
@lasthope2024, I'm thankful I can help. An Erythrocyte Transketolase test is a better test for Thiamine deficiency than a blood test. The Erythrocyte Transketolase test needs to be taken before starting vitamin supplementation. Otherwise, the vitamins you take will invalidate the results. I take Ecological Formulas Allithiamine (Tetrahydrofurfuryl Disulfide TTFD). I take Life Extension Benfotiamine and B Complex. I like these brands because they don't use rice flour fillers and they are gluten free. These are available online. Thiamine needs magnesium to make enzymes, so be sure to take a magnesium glycinate or magnesium citrate supplement. Magnesium Oxide is not a good choice as it is not absorbed well and pulls water into the digestive system, causing diarrhea or relieving constipation. Vitamin D needs to be between 75- 100 nmol/L in order to work as it's supposed to. Vitamin D is frequently low in Celiac Disease. Try the Autoimmune Protocol Diet (AIP diet), a Paleo diet that can help inflammation and promote intestinal healing. Choosing low histamine foods helps further. Remember to consume healthy fats that contain Omega Threes (olive oil, flaxseed oil, algal oil, fish oil, sunflower seed oil) because our brains are mostly fats. Choose low carbohydrate foods. The more carbohydrates you eat, the more Thiamine is required. Excess carbohydrates feed SIBO bacteria. Thiamine helps keep them in check. Thiamine also helps stop the release of histamine from overly sensitive mast cells. Malabsorption due to Celiac Disease can also affect trace minerals like molybdenum, iron, selenium, zinc, copper and iodine. Calcium should be checked as osteoporosis is common in Celiac Disease, especially if we avoid dairy. A discussion with a Nutritionist can be helpful. References: Thiamine deficiency disorders: a clinical perspective https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8451766/ Hiding in Plain Sight: Modern Thiamine Deficiency https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/ B Vitamins and the Brain: Mechanisms, Dose and Efficacy—A Review https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4772032/ The Effect of a High-Dose Vitamin B Multivitamin Supplement on the Relationship between Brain Metabolism and Blood Biomarkers of Oxidative Stress: A Randomized Control Trial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6316433/ -
Hi Scott Thank you for your reply I don't think I'm having any gluten in my diet. I only cook fresh food at home and I'm really careful about reading labels. On the whole my symptoms have improved and I'm feeling very much better. However, I still do have the occasional 'attack' severe stomach pain and vomiting which probably happens about once a month. My partner eats gluten containing food and I think these attacks may be due to cross contamination in the kitchen. I think the new sensitivity the airborne allergens may be just a coincidence.
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By lasthope2024 · Posted
I will look into this first thing tomorrow, as when I was first diagnosed I was tested for b12 and I was deficient. This has been incredibly helpful and I thank you. If there's anything else you can think of as you read my story I'd really appreciate it. My only concern when taking supplements is if they're deluded/low quality and not really gluten free, are there any brands you recommend? or possibly have it made in pharmacy? Thank you for approving my post, you give me hope. All the questions you ask are answered within the first 2 paragraphs of my post. Any advice is greatly appreciated. -
By knitty kitty · Posted
Welcome to the forum, @lasthope2024, Blood tests are not reliable measures of vitamin deficiencies. Antibiotics are known to cause Thiamine Vitamin B1 deficiency. Gastrointestinal Beriberi is caused by Thiamine deficiency. "At age 14 I started having constant, chronic abdominal pain and acid reflux (also constipation and reduced appetite, fatigue, moodiness,etc." All your symptoms here are the same symptoms as Gastrointestinal Beriberi caused by Thiamine deficiency. "My mind is not the same, my sleep is not the same, my body has never been the same, I don't think the same way." Thiamine deficiency can produce alterations in brain function, called Wernicke's Encephalopathy. Thiamine has antibacterial properties. Thiamine has analgesic properties. The Gluten free diet, even if followed strictly, can be nutritionally deficient in essential vitamins and minerals. There are EIGHT Essential B vitamins, Vitamin C and four fat soluble vitamins. They all work together interdependently. B12 cannot function properly without sufficient Folate B 9, Pyridoxine B 6, and Thiamine B1. "Supplementation with functional medicine vitamins (B12, D, C, GABA, etc.) had no effect." Doctors are not given sufficient training in nutrition. They forget to correct the malabsorption caused by Celiac Disease. They don't recognize the subtle symptoms of Thiamine deficiency outside of alcoholism which presents differently. Eventually, Thiamine deficiency symptoms, with or without alcohol, overlap and can result in Wernicke's Encephalopathy, 80% of cases are diagnosed postmortem. The World Health Organization recommends taking Thiamine and looking for improvement because blood tests for vitamin deficiencies are so unreliable. Talk to a nutritionist. Take a B Complex supplement with all eight essential vitamins and additional high dose Thiamine in the form Benfotiamine (shown to promote intestinal healing) and Allithiamine (Tetrahydrofurfuryl Disulfide for brain function improvement). Niacin B3 deficiency can cause GERD and reflux problems. Another form of Niacin, Tryptophan, is necessary to make melatonin which regulates sleep cycles. Riboflavin B 2 makes essential life sustaining enzymes with Thiamine. Pyridoxine B6, Cobalamine B12, and Thiamine B1 together have analgesic properties. Read my blog for excerpts of my journey through vitamin deficiencies. Hope this helps! -
Welcome to the forum community, @lasthope2024! Many of the symptoms you describe seem to have been temporary and transitory. What would you say is your biggest current cause of concern and suffering? May we ask you age?
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