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Just to understand the timeline here. You say you cut out the wheat, dairy, and high FODMAP foods for two weeks, but you "just" got your lab results back? So you were not eating the aforementioned foods at the time of the blood draw? It's confusing because you also say that after the negative tests you stopped eating those foods. Let's first clarify the timeline here - what were you eating two weeks before the blood tests?
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I second this!! I was diagnosed with POTS too and thiamine was a lifesaver along with going low carb (carbs and sugars deplete b1, and diabetics are ubiquitously deficient). It helped my vertigo, nausea, shortness of breath, and tachycardia that had me in and out of the hospital with mild acidosis. I was strict gluten and dairy free for years but continued to deteriorate and now I finally feel like I’m turning the corner. It seems very random but it’s helpful to research the symptoms of thiamine deficiency.( It’s a water soluble vitamin so there is minimal risk in supplementation compared to fat soluble. )
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Hi all! I’m new here, but am at my wits end…I’ve been struggling with what seems like classic celiac symptoms and just got results of my blood tests which came back negative. I don’t WANT to have celiac, but feel scared/frustrated with not knowing what’s happening with my body and am worried about what else it could be? For the past year I’ve had intermittent diarrhea issues, but became a major problem about 5 months ago- like a light switch, my body just changed on me (several times a day, yellow in color). I was taking Bentyl (IBS med) on a daily basis and on some days that didn’t even work. I also noticed hair loss, occasional sore mouth with metallic taste (has anyone had that?!), abdominal pains after eating (like central abdomen area, not severe or cramping, just sharp noticeable pains that I’ve never had before), undigested food in stool and now more recently fatty and pale stools depending on what I eat. My other labs were unremarkable, except low vitamin d and lower end of normal for B12 (I’ve been low for years and have needed shots in the past). I also have several years history of hormonal acne and migraines. This is random, but I also tend to get heart palpitations and feel like my heart is beating out of my chest after eating most meals (haven’t noticed if it’s only gluten foods or not). It seems like I’m just not absorbing any food or nutrients and it’s freaking me out! When the tests came back negative I cut out wheat, dairy and high fodmap foods anyway just to try to figure it out on my own and felt great (except that I was losing more weight bc I couldn’t eat much). But recently since I’ve been feeling good have gone back to regular foods and am so sick again. I will say, since cutting out those foods for 2 weeks my abdominal pain has basically completely gone away! Just diarrhea, and within like 6 hours after I eat a meal, I’m seeing those foods in the toilet - sorry this is so descriptive! Anyway, I see GI in three weeks and wonder if anyone can ease my mind if they had similar symptoms? Could it still be celiac, or should I be freaking out about some other health issue?
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I have also benefited from thiamine for lower leg neuropathy, trouble breathing, vertigo, etc. In addition to supplementing, I do low carb (under 20g) bc carbs and sugar deplete thiamine and I feel so much better not eating them. No more nausea Or dizziness after eating and I don’t have to sit up while I sleep to breathe. I am also putting on muscle when I usually can’t weight. I have also benefited from thiamine for lower leg neuropathy, trouble breathing, vertigo, etc. In addition to supplementing, I do low carb (under 20g) bc carbs and sugar deplete thiamine and I feel so much better not eating them. No more nausea Or dizziness after eating and I don’t have to sit up while I sleep to breathe. I am also putting on muscle when I usually can’t weight. I have also benefited from thiamine for lower leg neuropathy, trouble breathing, vertigo, etc. In addition to supplementing, I do low carb (under 20g) bc carbs and sugar deplete thiamine and I feel so much better not eating them. No more nausea Or dizziness after eating and I don’t have to sit up while I sleep to breathe. I am also putting on muscle when I usually can’t weight. I have also benefited from thiamine for lower leg neuropathy, trouble breathing, vertigo, etc. In addition to supplementing, I do low carb (under 20g) bc carbs and sugar deplete thiamine and I feel so much better not eating them. No more nausea Or dizziness after eating and I don’t have to sit up while I sleep to breathe. I am also putting on muscle when I usually can’t weight. I have also benefited from thiamine for lower leg neuropathy, trouble breathing, vertigo, etc. In addition to supplementing, I do low carb (under 20g) bc carbs and sugar deplete thiamine and I feel so much better not eating them. No more nausea Or dizziness after eating and I don’t have to sit up while I sleep to breathe. I am also putting on muscle when I usually can’t weight. I have also benefited from thiamine for lower leg neuropathy, trouble breathing, vertigo, etc. In addition to supplementing, I do low carb (under 20g) bc carbs and sugar deplete thiamine and I feel so much better not eating them. No more nausea Or dizziness after eating and I don’t have to sit up while I sleep to breathe. I am also putting on muscle when I usually can’t weight.
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I wasn’t feeling great even after eating strict gluten and diary free for years. I eliminated grains which helped and then eventually adopted a low carb, high fat, medium protein diet that really helped. I think I was too focused on the celiac diagnosis, and kept going back to my go for colonoscopies and endoscopies that didn’t lead to anything (the drs didn’t have any helpful suggestions either). The experiments I did on my own helped…( I also avoid nightshades too). In noticed taking out sugar and carbs really helped. My symptoms were more severe fatigue and dizziness and nausea after eating but it’s worth a shot!
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