this is a pretty old thread, so this member may not respond. Your child should see a doctor. You could ask for celiac disease testing or have him elvaluted for something like EoE.
Yes, the photo link worked. Again, DH is not diagnosed visually because it resembles so many other rashes.
Is it possible to get an appointment at the celiac center at Texas Children in Houston? I do not know your insurance, but it might be possible to pay for a visit (cash) but get tests, etc. via your in-network insurance. It would be worth a call.
I do not understand why they think he is too young to develop celiac disease.
Just because he may be meeting all his growth markers, does not mean he can not develop celiac disease. Not all celiac babies are malnourished. That is an old school way of thinking. There are skinny celiacs and fat celiacs and those with diarrhea or constipation. Those with DH and those without.
So, consider getting to a celiac center or work with your PED by sharing data. Be nice. People in white coats do deserve some respect, but they can make mistakes and are human. Consider documenting via a letter. Nothing a potential lawsuit for a doctor to react. They do not want to be negligent. Be nice!
Anyone, anyone in your family is at risk of developing celiac disease at ANY age. All first-degree relative should be tested regardless of symptoms.
My doctor and my extended family doctors have never hesitated in testing for celiac disease when I have a firm diagnosis (I provided a letter to my family members to share with their doctors). My kid just was retested (awaiting results). There was no hesitation at all. They were following recommended published guidelines.
Your symptoms do seem consistent:
So the hard part, at least with some doctors, is getting them to order the blood tests. If you have trouble with this imaware (a sponsor of this site) and other companies do offer inexpensive home test options.
He has not been tested for anything celiac related yet. I just assumed he did not have it because that is what everyone thought, and he is so young. It wasnt until my aunt came down to visit and brought it up that I started thinking about the potential for celiac again(she is the only one in my family that had the rash).
All my family who has celiac besides my mom live in different states, so using their doctors would be impossible. My mom who lives here (Houston) had a very hard time finding a doctor but just went straight to an endoscopy center to get tested with a guy who knew what it looked like. I just dont want to go straight to having him put under.
Ive considered calling my pediatrician and asking them to just do the tests. They are very nice but they also refered me to a dermatologist because they were out of options to figure out what it was, so I don't know if they would check just because I say to.
Did the pictures link work?