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Showing content with the highest reputation since 09/18/2018 in all areas

  1. 3 points
    IMHO it was likely the fish taco. For myself 3 days is the time to a gut reaction even though I get some discomfort in muscles and joints and a day of depression before the severe gut stuff shows up. Have you tried some liquid Pepto Bismal for the stomach pain? It usually gives me some pretty quick relief but don't know if it would help you.
  2. 2 points
    I do not know anything about the immunotherapy you will undergo, but if you have celiac disease, you will never get gluten back. It stays with you for life, but it can go into remission while on a gluten free diet. The therapy might help if you have a wheat allergy (IgE). If you have been on the Fasano diet for years and saw no improvement, I would think that you are not dealing with a celiac-related issue. It must be something else. Has Lyme disease been ruled out? Mast Cell Activation? Maybe get an endoscopy? I had a repeat endoscopy after not getting a response from the Fasano diet. Turns out my small intestine was completely healed. Celiac disease was not my current issue. Gastric biopsies revealed Chronic Autoimmune Gastritis. I was doing a great job at being gluten free.
  3. 2 points
    A month and a half is not a very long time when it comes to healing. Issues like you are having with your hand may take some patience. Do supplement with B12, sublingual, at the least. Many benefit from supplementing all the B's. A physical therapist can be helpful if you are able to see one. If you haven't already do read the Newbie 101 thread at the top of the Coping section. If you are dealing with nerve impact you need to be really sure you are as strict as you can be to speed healing. Hope things improve for you soon. The resolution of GI symptoms shows you are doing a reasonably good job with the diet but don't get discouraged if you make a few mistakes it happens to all of us.
  4. 2 points
    Hi, I wanted to submit some new info on the altoids smalls. They have been banned previously by celiacs due to wheat maltodextrin listed as an ingredient. However, I just noticed that on their tin, there the wheat maltodextrin is no longer listed in the ingredients. So, I wrote to wrigley's asking about that. Here's the replyi received: "Thanks for taking the time to contact the Wrigley Company. We really care about your questions and feedback. We had changed the formula with in the last couple years were we took the wheat maltodextrin out of the Altoids Smalls Mints. If the old tin you have says wheat maltodextrin it would be the old formula. If you have any additional questions or comments feel free to contact us at 1-800-WRIGLEY (974-4539) Monday through Friday from 8:30 a.m. to 5 p.m. CST or visit us at www.wrigley.com." I thought that was great. But I wrote them again because I was still wondering about any other gluten possibly hiding in there. Here's their response: "Thanks for taking the time to contact the Wrigley Company. We really care about your questions and feedback. We are not using any oats, rye, barley, gluten or wheat in the Altoids Smalls Mints. The tin will not say gluten free on them. Because the ingredients are not tested or certified as gluten free. The only two products that have ever been certified gluten free are our Skittles Candy and Starburst Candy. Which you will see the gluten free statement on the outer packaging. If you have any additional questions or comments feel free to contact us at 1-800-WRIGLEY (974-4539) Monday through Friday from 8:30 a.m. to 5 p.m. CST or visit us at www.wrigley.com." So it sounds like they are most likely ok now, except for the most sensitive of us. Just thought I'd share the info.
  5. 1 point
    Celiac.com 10/08/2018 - A new population based study reveals that celiac disease is associated with a wide range of medical conditions, including liver disease, glossitis, pancreatitis, Down syndrome, and autism, according to a database study of more than 35 million people. Moreover, people with autism have celiac disease at rates almost 20 times higher than in those without autism, reported lead investigator Daniel Karb, MD, a second-year resident at University Hospitals Case Medical Center in Cleveland. That raises the question of whether people with autism should be screened for celiac disease, and whether they might benefit form a gluten-free diet. "If you have a patient who is autistic and they have all these unusual symptoms, you might want to screen them for celiac disease," Dr. Karb told the World Congress of Gastroenterology last year. It is known that there are unusual symptoms of celiac disease, which include anything outside the classic symptoms of malabsorption, steatorrhea, malnutrition, abdominal pain, and cramping after eating, "but this is putting numbers to it," said Dr Karb. For their study, Karb and his fellow researchers used the Explorys database to pull health record data from 26 major integrated healthcare systems in the United States. Their search covered the period from 2012 to 2017. Of 35,854,260 people in the database, they found 83,090 with diagnosed celiac disease. Overall, the age-adjusted prevalence of celiac disease in that group was 0.22%, which is much lower than the 1% to 2% range previously estimated. Those numbers are not unusual, said Dr. Karb says that the researchers “don't think there are fewer people with celiac disease, just that it may be under-diagnosed.” The rates are, he says, “what you might expect when you screen asymptomatic people." Overall, the team found a significant connection between celiac disease and 13 other autoimmune disorders, such as type 1 diabetes, Crohn's disease, and ulcerative colitis. Moreover, celiac disease is associated with every autoimmune disease the team looked at, except for primary biliary cholangitis, Dr Karb says. This is some pretty startling study data. We knew that celiac disease was linked to other autoimmune conditions, and there has been some surprising data about gluten-free diets helping patients with autism, but these numbers are enlightening. It seems that people with autism should definitely be screened for celiac disease, and placed a gluten-free diet, if tests confirm celiac disease. Stay tuned for more information on this important celiac disease topic. Source: World Congress of Gastroenterology 2017
  6. 1 point
    So, mid march 2018 and I go on a family holiday away from home. I was now beggining to grow bored of my gluten free diet so what did I decide to do?.... be an idiot and eat gluten while we were on that holiday! So I ate gluten every day and at first I felt okay... not too great but barely noticeable. Then i started to get more and more symptoms back but because I hadnt eaten anything glutenous in a while now I didnt want to stop again. Then end of april, I started to experience a flare of my asthma and my celiac symptoms got worse. We started going back to the doctors every few days because I was getting worse and worse with my asthma symptoms. It got so bad in the following weeks I couldnt even do any physical activity. Even walking! Without wheezing and my chest feeling tight and breathless. I couldnt even attend school anymore! It continued like this for weeks until I was very ill..... Please leave feed back and leave a like 🙂
  7. 1 point
    I do my own blog of venting and things that come into my mind or my life. Most of it just rambling, but feed back is always welcome. I will admit holidays have become.....different, but I also had family deaths on both sides that make no one want to meet up anymore. I still offer to host and cook all gluten free meals, ham, broccoli casserole, deviled eggs, turkey, stuffing, dinner rolls, sweet potatoes, pecan pies, lemon scones, etc. All gluten, dairy, corn free....even grain free completely and mostly low carb. Heck even started a food blog with some recipes ideas, some work some crazy concepts. I am 100% celiac with other complications and allergies. Diet is life, eating out or something my family made is almost suicide. I just cook for everyone and invite people over often...heck doing stir fry tomorrow and inviting my parents over for movie night.
  8. 1 point
    Celiac.com 09/22/2018 - We’ve done recipes for Caprese salad. We’ve done recipes for peaches. We’ve never done one for peach Caprese salad. This gluten-free treat adds fresh peaches for a sweet summery-sweet twist on classic Caprese salad. Easy to make and wonderfully tasty, this recipe is sure to be a hit at your next barbecue or grill session. Ingredients: 1 ripe tomato 1 ripe peach 12-14 leaves of fresh basil 6 oz. ball fresh mozzarella Balsamic vinegar Extra virgin olive oil Directions: Slice tomato, peach and mozzarella into ½″ slices. Layer the tomato, peach and cheese slices with whole leaves of fresh basil. Drizzle with extra virgin olive and balsamic vinegar. Season with salt and pepper.
  9. 1 point
    I do not have any specific ideas, but I battle with this occasionally as a result of working out in an indoor community pool. Change out of your workout clothes immediately after a work out. Be sure they are dry before dumping them into a laundry basket or wash immediately. Wear flip flops in the locker room. Wear them at home to prevent exposures to family members. Dry throughly. I leave my gear (swim, bike, run) in the sun occasionally, but Southern California is typically dry except in August. Things can dry in an hour! Use fungus cream. I keep a tube next to my bed. Try tree tea oil. Change out your towels after every shower until you have eliminated the problem. These big old fluffy towels now are hard to dry in the dryer and air drying takes so much longer. Do not use fabric softener on towels. Other countries tend to swap out with thin “body-sized tea towels” during humid summers. Wonder why we do not do that? It would save energy for sure. Change out your shoes daily, if possible. Cut down on sugar in your diet. I hope this helps!
  10. 1 point
    Victoria, It can be. Up to 40% of Celiac's have some Neurologic/Psychriatric issues. Here is the research on the anxiety and depression issues common in celiac's entitled "Neurologic and Psychiatric Manifestations of Celiac Disease and Gluten Sensitivity" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3641836/ I used to have terrible anxiety (un-natural anxiety) almost to the point of a panic attack. Taking Zinc lozenges (they self regulate) with a metalic taste in your mouth helped many of my anxiety issues. Later (or around the same time I cant remember now) I learned magnesium and B-Vitamins could also help. Taking a B-complex as I think Ennis_tx mentioned (in another thread) and taking Magnesium Citrate helped many of my depression issues. Here is a good article that explains some of the vitamins/minerals that some one can take that can help anxiety and depression issues entitled "The Role of Vitamins and Minerals in Psychiatry" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3046018/ I hope this is helpful but it is not medical advice. Low Iron is also common (IDA) in celiac's and has been shown to be associated with panic attacks. Here is the research on low Iron and B-6 entitled "Low serum concentrations of vitamin B6 and iron are related to panic attack and hyperventilation attack" https://www.ncbi.nlm.nih.gov/pubmed/23603926 I didn't know any of this then. But it is not all in your head as doctor's some times are prone to say. The anxiety is real! Again I hope this is helpful and good luck on your continued journey. There is hope I used to be you! Waking up on the "wrong side" of the bed. . . days in a row never knowing why? At least you know how gluten is effecting you or are at least right to suspect it and you can avoid it. . . . And sometimes just avoiding the issue once you have identified it is easier than dealing with the after math. And why would you want too anyway? It is not all in your head! Be your own advocate! Note/Remeber the research was on the "Neurologic and Psychiatric Manifestations of Celiac Disease and Gluten Sensitivity" which you seem to have. You don't need to be full blown (officially) diagnosed celiac for gluten to affect you poorly as you are noticing. Again I hope this is helpful but this is not medical advice just some of the things I found helped me. And if they help you. Pay it forward and tell others. I wish I knew some of these things years and years ago as many of us do on this forum and why we still participate/share our experiences to help those still looking for answers sadly we had to find out on our own too often! 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included Posterboy by the grace of God,
  11. 1 point
    For the life of me I cannot understand the negativity towards Nima by so many celiac sufferers! It’s is a TOOL, not a CURE- use it or don’t, you aren’t losing any ground by continuing to avoid risky foods/situations. For us, my daughter’s diagnosis was life-changing but Nima has given us back some peace of mind. Yes, my daughter (7) has HORRENDOUS reactions including ataxia, so we are vigilant. Her antibodies are monitored every three months and are falling steadily. We used Nima to take a family vacation to Aruba this summer...35 tests, five positive for gluten. The thirty smiley faces that we trusted resulted in a healthy little girl having a dream vacation. Yes, there’s a cost but this is the hand we’ve been dealt. The alternative is that we teach her to live in fear and never go anywhere or do anything until that “perfect” solution presents itself. I’m not a scientist but I’m a mom whose child has been helped by Nima’s technology and that’s enough for me.
  12. 1 point
    Hmm. Did the Japanese steak house have a gluten-free menu? Do they cook their gluten-free steaks on a cleaned surface or the same surface as gluteny foods? How about the spices they put on the food? Are they gluten-free also? Another worthwhile question, do they even know what gluten is? Any wheat, rye or barley or derivative such as malt? Do they marinate their steaks in a gluteny mixture? All these are good reasons not to eat out when starting the gluten-free diet.
  13. 1 point
    Do you want to feel better faster? Do NOT eat out for the next few months or until all your symptoms have resolved. Eating out and not mastering the gluten free diet (e.g. reading labels) are the main reasons celiacs tend to take a year or longer to heal or bring down their antibodies. Each gluten exposure you have will trigger the immune response triggering your celiac disease to flare up until your body decides to calm down (weeks or months). In theory, the GI tract can heal fast, but not when you keep activating your celiac disease. You can do it. You are on your way! You just might get there faster if you do not eat out.
  14. 1 point
    When going to a party I find out what type of food they are serving. I then make my own equivalents and bring them with me. I have a cooler that looks like a messenger bag so it's not totally obvious. That way when they have cupcakes so do I.
  15. 1 point
    gadamek and hummingbird, I just want to echo what Ennis_tx said. A good B-complex, Magnesium and Vitamin D might (not cure) but it could alleviate many of your symptoms. Gadamek you said you had ringing in your ears it is called Tinnitus and Magnesium has been show to help Tinnitus. http://tinnituswise.com/remedies/tinnitus-magnesium-treatment-deficiency/ Low Vitamin D and B-12 has been associated with Neuropathies. Here is the research on B-12 entitled "The histopathological evaluation of small fiber neuropathy in patients with vitamin B12 deficiency." https://www.ncbi.nlm.nih.gov/pubmed/29052170 Here is a medscape article about it entitled "Low Vitamin D Levels Common in Painful Diabetic Neuropathy" https://www.medscape.com/viewarticle/846044#vp_2 where the reviewing doctor says it well. This finding was/ has not been followed up on because quoting "Dr Malik noted that a large randomized clinical trial of vitamin D would probably have to be funded by the government or other interested party rather than the pharmaceutical industry. "The key problem is, nobody is going to make money from vitamin D [research and development], so nobody's pushing it. It's extremely cheap." And if you don't have diabetes that doesn't mean it (Vitamin D) won't help you. Knitty Kitty talks about she feels much better when her Vitamin D levels are twice what is considered low normal. Here is where Vitamin D has been linked to pain associated with Fibromyalgia https://www.ncbi.nlm.nih.gov/pubmed/21375201 And Low Vitamin D status has even been associated with Hashimotos https://www.ncbi.nlm.nih.gov/pubmed/23337162 But you never people (doctor's) say take Vitamin D for your thyroid. They (the researchers) concluded quoting CONCLUSIONS: "We demonstrated that serum 25OHD levels of HT patients were significantly lower than controls, and 25OHD deficiency severity correlated with duration of HT, thyroid volume, and antibody levels. These findings may suggest a potential role of 25OHD in development of HT and/or its progression to hypothyroidism." This knowledge has not made it down to the clinical level. It was called the "Clinical Gap" that on average takes 17 years for new research to be applied/used in a clinical setting. It could also be what is called a subclinical deficiency. If 50 OHD + is neeed (like in Knitty Kitty case) to feel better from being low in Vitamin D then for her she would test normal but feel terrible. This may be what is happening in your case. I echo what Ennis_Tx said --- it is common especially with Magnesium and B-Vitamins like B-12 etc and as we see in Vitamin D. Here is an article about subclinical celiac disease entitled "Subclinical coeliac disease: an anthropometric assessment" https://onlinelibrary.wiley.com/doi/abs/10.1111/j.1365-2796.1994.tb01281.x where they found that concerning their results quoting Results. "The overall prevalence of malnutrition in our series of celiac disease patients was 53%. Prevalence of malnutrition (actual body weight less than 90% of the ideal) was significantly higher in classical coeliacs (67%) than in subclinical ones (31 %," And why it was concluded 8+ years ago (only another 8+ years until it gets down to the clinical level) that "Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet." https://www.ncbi.nlm.nih.gov/pubmed/19154566 In fact it can take as long as 10 years to overcome the nutritional deficiencies (without supplementation) to overcome the deficiencies that develop in a Celiac patient and why I prefer to supplement. See this research about the topic entitled "Evidence of poor vitamin status in coeliac patients on a gluten‐free diet for 10 years". Here is the link https://onlinelibrary.wiley.com/doi/full/10.1046/j.1365-2036.2002.01283.x?inf_contact_key=ea0f2a766da007cd64921c490e0f3144800b47a6bffe30d3db72e448ff52727e& It may be because gluten free foods are not enriched like gluten containing foods or it might be because your stomach acid is not strong enough to dissolve them so your small intestines can absorb them. Here is an article that explains how low stomach acid (being misdiagnosed) as high stomach acid can be a very bad thing. https://www.naturopathiccurrents.com/articles/hypochlorhydria-not-enough-good-thing 99% of Naturopaths conclude restore your body stomach acid production and improve your health. They know that low or no stomach acid can restrict your bodies ability to absorb critically important nutrients. quoting from the naturpathic currents article Vitamin Mineral Deficiencies "As noted previously, deficiencies of folic acid, vitamin B12, Vitamin D, Zinc, Vitamin A, calcium, iron, and zinc are associated with low stomach acid [1,7,10]. These deficiencies are due to a decreased ability to disassociate minerals and vitamins from food stuffs, as well as related affects on gastric secretions other than hydrochloric acid that facilitate absorption [4]" If we are clinical or subclinically low it better to find the root cause of the deficiency or we have to supplement the rest of our lives (the way we might take a hormone replacement) or medicine instead of finding out Vitamin D, or Magnesium or B-12 can help us with our Neutropathies. I must stop for now but I hope this is helpful. ****this is not medical advice but just some of the things I have learned from being low in stomach acid and being misdiagnosed. And what I have done to help my neuropathies. I used to wake in the middle of the night from pernicious anemia a B-12 deficiency until I treated my stomach acid so I could begin absorbing it naturally. I had terrible leg cramps (also that would wake me up too), the spasms continued until I took Magnesium Citrate. I had a SAD disorder until I took Vitamin D. ... who knows if it helped my thyroid anomalies or not it has been too long to remember if I was taking it at the time it (thyroid) got better.. .. but I know it was around the time I received my Celiac diagnosis that I caught up my Vitamin D levels because they then knew to test my levels. . which to my surprise was low and had been low apparently for the 30 years before I received my Celiac diagnosis. ****Again I hope this is helpful but this is not medical advice just things I have learned that supplementation is a much easier way to catch up on a deficiency and why I still take Magnesium (and probably always will) it helps soooo much but I don't no longer take Vitamin D or Vitamin B-12 since I caught up on those. A always “Consider what I say; and the Lord give thee understanding in all things” this included 2 Timothy 2: 7 Posterboy by the Grace of God,
  16. 1 point
    Those look like gluten removed beers and are not really gluten free. They are made with barley and wheat and supposedly the “special” brewing process reduces or elimates the gluten below 20 ppm. But the celiac community says these beers are not gluten free enough to be safe for celiacs. Consider selecting a distilled alcohol beverage, wine or a gluten free beer (not made from gluten) in the future. https://www.gluten.org/branchnews/gigbeerstudy/ https://www.gluten.org/toxic-truth-gluten-free-beer/ https://glutendude.com/alcohol/do-not-trust-gluten-removed-beer/ I hope you feel better soon.
  17. 1 point
    In general we don't discourage replying to an older post, and do encourage, before you post, searching the board to see if your topic has been covered. You will likely find that it has, and in that case you have a choice to reply to that thread if your question wasn't covered there, or start a new one. I will see if there are settings that allow the closing of older threads, but it may have to be done manually, and if so...there is no way we could do that.
  18. 1 point
    I tested the spice islands (?) Chili powder with my nima tester after i got extremely sick the first time i made chili... it tested positivr, twice. I have a completely gluten free kitchen and home, so there is no "spoon cross contamination," which is a novel idea and possible issue for mixed households. I was diagnosed celiac in 2007, and because i must take it very seriously, i very rarely eat out, i read labels, websites, and contact companies. I have been very pleased with the nima tester, and would trust it over a mass produced, designed-and-printed- long-ago-for-a-product-manufactured-and-handled-by-hundreds-of-mistake-possible (not perfect) humans- label any day. Twice. I tested every spice after that, and the chili powder had gluten in it.
  19. 1 point
    This post is ancient but I just had to comment I also get the most extreme pain when I ingest gluten even if it's a little bit more than a cross-contamination accident you can bet that's going to be a level 10 pain. At that point I just want to die or be put under general anesthesia. I don't think any pain reliever would work as this is an inflammatory reaction and I don't think there is a powerful enough NSAID out there that would help at all. One time I had a migraine and had pain from gluten ingestion and took some Percocet for migraines that stuff didn't make a dent in my level of pain. My course of action is to drink water with glutamine as it increases healing and laying down as it reduces my pain substantially.
  20. 1 point
    EmilyLMT, I do a lot of nutrition research and the key is finding something that works for someone else . . then it usually works for others too! I had a friend who used to have the same problems you mentioned. Antibiotics typically is the knee jerk response. But look up D-Mannose. It is a simple sugar. It is the active ingredient in the popular cystex line of health products for UTI's. https://www.cystex.com/about-cystex/cystex-urinary-health-maintenance/ It can be found at Walgreens and most other pharmacy's and can be taken when your UTI flares up or taken prophalytically (maintenance dose) to keep UTI's at bay. It works' on this principal. Because bacteria likes the simplest sugars best. They jump/release from the bladder/urethra wall to go to eat the D-Mannose and are flushed out by your urine in the process. She used to have fever's from her outbreaks and would get better in a few days even without antibiotics. It sounds too good to be true but it works like a charm. See their reviews on the product page out of 35 reviews 28 reviews are ***** Five Stars. You can buy it other places and in different products. But you need to find one with D-Mannose in it. Some diabetic products have Mannitol in them because it increases blood sugar less than sucrose but Mannitol in higher doses can have a laxative effect and why they say don't over do it. But you usually have to take in large doses to be a problem. Mannitol is popularly used in diabetic friendly gums as an alternative sweetener for this reason. Here it the webmd information page about D-Mannose. http://www.webmd.com/vitamins-supplements/ingredientmono-1114-D-MANNOSE.aspx?activeIngredientId=1114&activeIngredientName=D-MANNOSE *** this in not medical advice but it helped my friend with the same problems. I hope this is helpful. 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included. posterboy by the grace of God,
  21. 1 point
    Hello Christina, I know that this may be a year late, but I do feel compelled to let people who are proactive know the results of my last 40 years as a Type I Diabetic, and 7 years (knowing) that I have Celiac Disease. If you, "do research" you will get mixed results, just like my blood glucose numbers when I went to Disney world, and ate all their sugary gluten-free foods. What I would suggest is to get a book, like Corinne T Netzer's Carbohydrate counter, so you may understand what a large carbohydrate count looks like. This is commonly known as, "High Glycemic Index." Then, understand that research in the last year has proven that eating "good" (meaning less-refined, and without such high glycemic foods, like white potatoes) carbohydrates are not "bad" for you. As a matter of fact, clinical trials on American women showed that [animal] fat, from the typical American diet increase insulin resistance. https://foodandhealth.com/cpecourses/insulinresistance.pdf I would recommend what some food and health organizations are saying about "good" (unrefined, fresh vegetable oils) are in terms of being up to 35% of a "balanced" diet (you won't be as hungry later). Examples are: Avocadoes, coconut oil, flax and hemp seed oils (for Omega3 fatty acids), and less fruit (it has fruit sugar, to be eaten in small quantities). I personally like Japanese foods, like Miso soup and use Kale, as it has all the iron, and vitamin C you probably need, without all the additional carbohydrates. Weight my personal advice against the diets you are willing to try, in that you have to eat them, and at least pretend to like them, so that the changes you wish will begin to happen.
  22. 1 point
    Just curious if a metallic/strange taste in the mouth when eating gluten foods in a symptom of celiac. My child has the genetic markers for celiac and positive on one blood test but not a confirmed diagnosis. Recently she stopped eating some gluten foods because she said they taste funny to her - give her a metallic / bad taste in mouth. Just curious if this a symptom anyone else has had.
  23. 1 point
    Hi everyone, I'm 20 years old and want to share my story and my perspective, on some common issues for people with celiac. I have been gluten-free for various periods of time in my life, as I tried different diets to help get rid of fatigue, brain fog, and anxiety. When I look back, I can see now that I have been allergic to gluten ever since I was 13, maybe even before then. I ignored the symptoms for the most part, until at 16 I began to realize how I would feel different after eating certain foods. So I tried a variety of different diets over time: Atkins, Paleo, Vegetarian, Vegan, and Fruitarian. In between all of these diets I would try to go back and eat "normal" foods again, and would inevitably get sick, and the cycle would start over again. However, some of these diets, particularily Paleo and Fruitarian, made me feel really good. I realized what they had in common: they were gluten and dairy free. I did some research and figured out that I had celiac and was lactose intolerant. I've been on a gluten-free, vegan diet for about 9 months now. It's been tremendously successful for me. However, there are aspects of life that can be challenging for this lifestyle, namely college, work, travel, and dating. College is difficult because the beer&pizza stereotypes exist for a reason - college is full of it. The way I have gotten around it is to have a mini fridge, microwave, and large rice-cooker in my dorm room, which allows me to prepare essentially all my own food. Classes are also only a couple hours a day, so it's no problem. The problem for me right now is with work. I have two internships this summer back-to-back through-out the day. I leave my house around 6:30 am and don't get home until 5:00 pm. This represents a huge challenge to me, as I now have to either bring enough food to last me all day, or I have to bring some food and eat out at lunch. The problem is that there is essentially NO gluten free place in the area I'm working in that can provide me with 100% gluten free food on a daily basis. It's a challenge. Right now I'm just bringing enough food for the day, but it's hard to do. Travelling is difficult for obvious reasons. You can't prepare your own food most of the time, and you're constantly on the move. However, I've found it to be significantly easier than work. Since you're not tied down to being in any specific location, you're more free to hunt and explore for places that have gluten-free accommodations. A lot of people on here have expressed concerns about dating, and I would like to echo some of the advice already given on here. It's really about respecting yourself first and foremost. Celiac is a disease. It is a medical necessity to you that you are gluten free. When you find the right person for you (and you will), they honestly will not care about the restrictions this poses to them. Life is about people and human contact first, and food second. Having celiac has made me more aware, empathetic, and tolerant of others' struggles and disabilities, and it's made me realize that we all have them. Nobody is perfect, and that's the point. When you're dating someone, it's because they want to be around you, not because they like to eat pizza (and besides, there's always gluten-free pizza). So there's both hope and despair, for on the hand being gluten free has allowed me to live once again! It has represented the largest single change that has brought me the most clarity, and I'm very thankful for that. But on the other hand, it feels like it has severely restricted my ability to be free. My life has become more routine and structured and isolated, and I sometimes feel irrationally afraid of the world (filled with gluten). So it's bittersweet, and I'm sure it's a normal part of the process as I learn to live with this. It's really interesting how much diet truly does matter.
  24. 1 point
    I also have a problem with dehydration. I just thought it was because I have diarrhea all the time.
  25. 1 point
    If it helps I've been drinking it every morning for several months with no problems. I'm very sensitive and having something every day if it has gluten in sets off essential tremors and trigeminal neuralgia for me and it hasn't done that. My daughter has also had it many times with no reaction. I've also been using Reddi Whip with no problems. Hope this helps.