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Showing content with the highest reputation on 01/09/2011 in all areas

  1. 1 point
    Regardless of what you decide about proceeding with the testing, there is no reason you can't start upping your vitamins now. You could start taking sub-lingual B-12 and a B-complex now and it might help with the nerve issues.
  2. 1 point
    I'm afraid my opinion of the Australian Coeliac Society has moved down several notches with their "push" to have the gluten free status of food raised from <5ppm to <20ppm . We were always the frontrunner in Coeliac Disease ....no more.
  3. 1 point
    This article is about food allergies, not autoimmune reactions. Celiac disease is an autoimmune condition, not an allergy. The referenced tests measure IgE levels. Tests for celiac disease measure IgA and IgG levels.
  4. 1 point
    Hi, and welcome! Gluten is actually an all or nothing proposition. Just a little bit can hurt a lot. The idea of reducing wheat intake makes no sense to me at all. For a sensitive celiac, all it takes is one crumb of bread to cause a reaction. Some people react from breathing flour in the air of a bakery. So no, reducing gluten intake will not keep your baby safe. As you are still breastfeeding, you should be totally gluten free as well if you want to find out if gluten is her problem, as you will be passing gluten to her in your breast milk. Also, most oats are wheat contaminated, and some celiacs do not tolerate the certified gluten free oats - I don't touch oats myself, not worth the risk. So yes, there is a lot more you can do to try to pinpoint if gluten is the problem. Celiac testing is notoriously inaccurate in children under five, both blood and biopsy, so no, the endo is not definitive. Even in adults it is at least 20% falsely negative. Also, if she has been mostly gluten free there may not be enough damage in the small intestine to show up on biopsy. The lactose intolerance from the cow's milk, however, would seem to suggest that she may have some villous atrophy, although the diarrhea could be also an intolerance to casein IF she apparently tolerates the breast milk just fine, although the fact that she tolerates yogurt where the lactose has been consumed by the enzymes leads back to celiac in a roundabout way and is perhaps an indication of reaction to gluten in the breast milk. Gluten intolerance can increase over time. My best guess would be that she is probably gluten intolerant/sensitive - whether or not she is celiac cannot be predicted at this point. As I said above, I think you two should both be totally gluten and oat free to see how she does. Whether celiac or gluten intolerant, the treatment is the same - a gluten free diet.
  5. 1 point
    I like the look of your meals incidences per day (5-6). I was initially afraid that you may have only been eating three times. I also like the fact that you're eating plenty of fruits and vegetables throughout the day --- especially the broccoli. And, your rice consumption looks good too. Here's are my suggested changes. WATER: Try and consumer 3 liters a day instead of 1.5. I know it sounds like a lot, but it really is a great way of continually flushing your system. Try adding a green tea bad or a splash of juice and that will help as well. POTATOES: Three a day seems a bit excessive. Try and find another variety of good carbs to replace it (gluten-free slice of bread, corn tortillas, multi grain rices) DAIRY/FATS: We actually need fat to grow lean muscle, and I didn't see that you had an issue with dairy. Add some cheese, yogurt, cottage cheese to your snacks. NUT BUTTERS: Try almond butter on the apples. YUM MEATS: If you eliminate the three large potatoes, you could probably eat about 25% more meat each day. It's amazing what increase meat will do to adding lean muscle. FISH OIL: By all means, get fish oil capsules into your regiment every day. Again, you need your good fats! Keep us posted.
  6. 1 point
    Curry rice with steak, as follows: long grain brown rice cooked in chicken stock with turmeric and curry powder, chopped shallot + minced garlic + frozen peas + frozen chopped green pepper steamed in chicken stock on the rice cooker, chopped hard-boiled egg whites, cubed steak leftovers (marinated in soy sauce, roasted red pepper flakes, garlic, and shallots), with extra frozen chopped green pepper added once the whole meal was combined. It had to travel to a family gathering and I microwaved about 3 minutes on HIGH once I got there, stirring twice during cooking.
  7. 1 point
    All grains have gluten. In this context it is referring to the potein in all grains. So in that sense there is corn gluten, rice gluten, wheat gluen, etc. For celiac patients gluten is the proteins in wheat, rye and barley do damage that we should avoid. The gluten proteins in corn, rice, and other safe grains are not harmful to celiacs. However there are patient that do better completely grain free.
  8. 1 point
    Thanks Michelle - I will see if I can find these local but stay afway from truffle...
  9. 1 point
    thanks - I'll check these out - need my chocolate fix!
  10. 1 point
    YOgurt, some dried fruits, a lot of Aldi canned goods now say 'gluten free' on the label. They also have Fit and Active meatballs that appear to be gluten-free, I bought a bag to try. Some lunch meats and all their hummus is labeled gluten-free.
  11. 1 point
    We are also dairy-free and the 2 brands we buy are Enjoy Life (already mentioned) and Terra Nostra. Not all of the Terra Nostra Ricemilk Choco bars are soy-free though. Stay away from the truffle filled one. It has soy. Michelle Western Washington State
  12. 1 point
    Enjoy Life makes some soy-free chocolate chips for baking and soy free chocolate bars: http://www.enjoylifefoods.com/ You may also want to look at some high-end organic dark chocolates. I know I saw someone post a few companies that make organic dark chocolate with not much more than cocoa but I don't recall the names. They were really pricey though. I also really enjoy chocolate coconut milk ice cream made by Turtle Mountain. It's soy free as well as dairy free: http://www.purelydecadent.com/products/purely_decadent_Coconut_Milk_Chocolate.html
  13. 1 point
    Sauteed onions, ground turkey and peas on top of brown rice with broccoli and brussels sprouts. Also making tapioca pudding from scratch using the recipe on the Kraft Minute Tapioca box.
  14. 1 point
    Thank you for your informative and thoughtful reply. I wasn't as strict as I should have been over the holidays (remained totally gluten-free but didn't adhere to IBS restrictions) and I'm still paying for it. I'm changing doctors and have heard excellent things about my new one. My appointment is on the 20th and I'm counting the day. I did finally get over the bug I had but think I was CC'd at the New Year's party I attended. in the future I'll bring a ziplock bag of food. it was the first time we met everyone in our neighborhood (we just moved to a new city and state in June) so I was concerned about looking batty. When it comes to health I don't think it should matter and I learned my lesson. Wishing all of you a healthy and happy New Year, Loey P.S. my old GI in NJ thought that my Celiac had gone undiagnosed for decades.
  15. 1 point
    At first it is so overwhelming. I had panic attacks when I went to the grocery store the first few times. I will be gluten free one year in January and it is so easy now. It's a steep learning curve at first and you feel like you're skiing downhill at top speed but very soon it gets to be your new normal. The best part is feeling well and not being sick. Here's a few tips. 1. Eat clean at first. You have a lot of gut damage that needs to heal and your body can't do that unless you give it the best fuel possible. Lean meats, fresh fruits, fresh vegetables, plain rice. It's only for a short while and it will speed you on your way to health. You can pig out on gluten free cakes, gluten free donuts, gluten free mac and cheese, and gluten free pizza later when you are fully healed. 2. the tips of the villi are where you make lactase to digest dairy, so until that heals dairy may be out for a bit. I can eat it with no problem now after years of lactose intolerance. 3. Many also find they need to cut other things for awhile. I can't tolerate soy, except in small amounts like soy lecithin, but for awhile I had to cut dairy, soy, tapioca, xanthan gum and nightshades. 4. Use the search function on these forums and look at old threads. Look for withdrawals and newbies and things like that. Read read read read. You will learn FAR more on here from those of us who have been there done that than you will in any books you have to spend money on. 5. Find one pasta and one bread you like. My favorites are Tinkyada rice pasta and Gluten Free Pantry Basic White bread mix. That bread is also simple ingredients and I was able to tolerate it pretty early into the diet. It's super easy to make, not expensive and it tastes the most "normal" of any bread I've tried. You can actually make a regular sandwich out of it and it doesn't fall apart. I also like Arrowhead Mills All Purpose baking mix for pancakes. I do one cup mix, one cup milk (or almond milk) and one egg. It already has the baking powder in it. 6. If your body acts weird don't freak out. You will have withdrawals and it will do strange things while you adjust. There was a period where every single thing I put in my mouth made me sick but it passed in about a week. 7. Start researching restaurants and find a few places ahead of time where you can eat out. Prepare now so that you aren't panicking when you are out somewhere and you need to eat. 8. Get used to taking food with you. Apples, bananas, nuts, oranges. Kettle Chips and Baked Kettle Chips are gluten free and travel great in the car. I love the baked ones a lot. 9. Honor your grieving process. At first you will feel deprived and you will go through many emotions. It passes and it's good to process it and come here to vent. We are here to listen if you need to rant. 10. Welcome to the best club you never wanted to join! It does get easier I promise!!!!
  16. 1 point
    Hi Kaelin, and welcome to the board. I am sorry that you are feeling even worse now than you were before. That is truly miserable The first thing to do is eliminate dairy because most celiacs are unable to digest it because of damage to the small intestine. Once you heal you will probably be able to add it back in. Without the enzyme to digest it, dairy just ferments in the gut and produces gas, bloating and diarrhea. Step No.2 is to check all your over-the-counter and any prescription meds for gluten (and no, the FDA does not require that gluten be labelled on these so that makes it harder. ) You may have to call drug companies, ask the pharmacist, go online (glutenfreedrugs.com) to get this information. Step No.3 is to discard any scratched nonstick or plastic cookware/containers, all wooden spoons, colanders and cutting boards - anything that cannot be cleansed of gluten.. Do not share spreads or peanut butter with any gluten eaters because their knives can leave crumbs in the jars - keep your own specially marked jars. Step No.4 is to eat mostly a whole foods diet of single ingredient whole foods so that you know what's in your food. It means a lot more cooking, but you know that you are not getting gluten because everything that's in there you put in yourself (in your new or newly cleaned) pots and pans using your new wood and other utensils which you keep separate from everyone else's. Eliminate as much as you can the processed food especially the special gluten-free substitute foods that contain starches and grains your body is probably not used to digesting yet. Make sure your kitchen work surfaces are clean (use paper plates if necessary) and do not share dish sponges or towels (assuming a group living situation). If you do not have to share with a gluten eater it makes it much easier. Read every label for the hidden glutens, If you have done this and are still feeling just as bad, then it is time to eliminate the soy for a good week and see if that helps (and soy is just as sneaky as gluten in the places it hides). A good number of us do not tolerate soy either. If you want to test yourself for nightshades, try leaving out tomato or potato for a week, and then adding it back in and see what happens. If none of this gives you any answers, then you may have to go to the full-blown elimination diet where you pare your diet to, say chicken, fish, rice, steamed veggies - eliminate down to where you don't feel bad any more, and then add foods (or food groups) back in one at a time every three or four days and see how you respond. I hope these suggestions are of some help and that you are soon feeling better.