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Showing content with the highest reputation on 09/16/2013 in all areas

  1. 1 point
    I would not get all worried about an ANA test that comes in at 1:40. It is not indicative of something else going on, either, and the reason I say this is because Celiac disease alone can give you an elevated ANA. ANA is a very general test for inflammation and does not diagnose any one disease in particular. It just means you have inflammion going on and if you are a diagnosed Celiac, that's a no-brainer. I have 4 AI diseases in total, 2 of which will elevate ANA. My latest blood work from a couple of months ago was right around 1:340, give or take a little. I have never seen a rheumy and refuse to go because I am asymptomatic for anything at this point and rheumatologists are not all that helpful. It's a real guessing game, from what the other posters have said, to figure out if you have any of the many AI diseases out there. If you have no symptoms of anything else other than recovery from Celiac, then your numbers may return to normal after awhile on the gluten-free diet. Mine have not but I have 4 AI diseases. I don't worry about it. Unless you are sick and want to be on meds, then rheumatologists aren't of much help.....really. They will keep you coming regularly for blood work, look at the blood work and say "Well...I am not sure but we'll keep track". There are little to no definitives in AI issues, as far as diagnosis is concerned. That's why people tend to get really bad before they will bless you with a diagnosis. Your doctor has you overly worried about a number that is common in healthy individuals with no AI issues. Most will not say ANA is positive until is reaches 1:160...or higher. 1:40 is barely positive, from a labs reference point of view. On paper, normal is defined as less than 1:40......if that makes sense. You also do NOT have to be tested annually for lupus. Lupus takes forever to diagnose and, even if your ANA remains slightly positive, unless you see a malar rash on your face, don't spend precious recovery time worried about things you need not be worried about. I have 4 AI diseases and I have been strictly gluten-free for 8 years. I feel fine. No symptoms of anything but my blood work might scare some. I choose to focus on the positive.
  2. 1 point
    Yes it intereferes but I was on very large doses because I was in the hospital for asthma. I had prednisone in my iv and by mouth. the book "real life with celiac disease" written by 2 gi drs say that it will interfere with testing. Both blood and biopsy. My bloodwork and biopsy were negative 3 weeks after stopping prednisone only to be diagnosed with celiac disease 2 months later
  3. 1 point
    Hi Paul and welcome to the funny farm! I think I got you beat. Let's see, Dads 3rd wife younger than my brother. my daughter graduated with her Uncle and Hubs nephews younger than he is. Oh, and I'm older than my Hubs too. All the best! Colleen
  4. 1 point
    I love the way you cut to the really important stuff! Yeah, more about your adorable stogie stealing dog!
  5. 1 point
    Those are the wrong details! . We want to know the Dog's name, age, anything funny he does!
  6. 1 point
    Welcome Laura! This is hands down the most educated, supportive loving & funniest group of people I've ever met! I was housebound for 3 years and my celiac family kept me going! I'm actually glad igot celiac because it led me to all of these wonderful folks!
  7. 1 point
    From my understanding, it is the ends of the villi that produce the lactase that helps digest the lactose in milk. When the villi are damaged and inflamed, they don't produce the lactase which leads to lactose intolerance. Some individuals however may have a preexisting intolerance unrelated to the small intestinal damage. NCGI does not damage the small intestine.
  8. 1 point
    I feel like a human freaking being today! Sore and tender all over my leg and lower back but after the last week I'll take it. Sore and tender trumps actual pain every day of the week. Tonight is BBQ pork loin, garlic tater wedges and a salad. Later tonight is the late late late show at the second run theater. Heading out to finally go see Lone Ranger. My daughter says its awesome, but she may be biased by her crush on Johnny. Although I think I sort of grossed her out when I told her his age (which is almost old enough to be MY father if he had become a parent at the age I did) and that I've had a crush on him since I was younger than her. Sometimes being a parent is hilariously fun in a really twisted way that involves warping young minds.
  9. 1 point
    Oh man...not this again! I think it's great that you raise chickens for fresh eggs because they really are nice to have BUT there is no trace gluten in any egg. Anyone new to Celiac or the gluten-free diet needs to know...eggs are safe. Really...they are. Good luck with the chickens!
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    • Thank you - I had my endoscopy today and the doctor said he didn't see the telltale signs of celiac but he did biopsy. There were a number of other things he noted, like a polyp found in the fundus, and my stomach was very inflamed.       He said to start a gluten free diet right away anyway.  It is hard not to get ahead of myself and wonder about the results and if they come back negative.   
    • Congratulations!!🎆🎇🎊🥂  
    • Becca4130, Being gluten free for a while would cause your blood serology to test negative but many people choose not to finish a gluten challenge because of how bad they feel on gluten. NCGS is a real thing even though most doctors don't recognize it today. See this care2 article that explains what might be  happening in your case. https://www.care2.com/causes/new-study-confirms-existence-of-non-celiac-gluten-sensitivity.html The rate of positive blood serology is 2x higher than biopsy confirmed Celiac disease. see this new research about the rate of NCGS (serology postive Celiac)  in the general public without positive biopsy.  . . though for this research they considered both serology (blood tests) and biopsy confirmed celiac diagnosis as the real rate of Celiac disease in the general public. quoting Overall global prevalence of celiac disease was 1.4% in 275,818 individuals, based on positive blood tests for anti-tissue transglutaminase and/or anti-endomysial antibodies. The pooled global prevalence of biopsy-confirmed celiac disease was 0.7% in 138,792 individuals." Which they say  quoting again "means that numerous people with celiac disease potentially remain undiagnosed" or I think in many causes NCGS is not being declared because they consider a blood positive test inconclusive in the absence of a confirmed biopsy. and it sounds like what is happening in your Case especially since you have been gluten free long enough to not test positive on your blood work. See the Care2 article which is typically 6 months and your antibodies goes down naturally when you are gluten free that long. quoting "Though the cause of the two conditions seems to be very different, the study confirmed that the best treatment is the same for both conditions. After six months of only consuming gluten-free grains, the NCGS group reported a significant improvement in their digestive and non-digestive symptoms, and the immune system markers identified earlier in the study had normalized." ****this is not medical advice but what makes sense to me after having been serology (blood) positive for antibodies that went down on a gluten free diet. You might also see this thread that talks about some of these same issues. I hope this is helpful and good luck on your continued journey. I also meant to add this link http://www.mdmag.com/medical-news/not-everyone-predisposed-to-celiac-disease-develops-it Or It could be you have not developed celiac yet because your gut biome has protected you so far from developing it. quoting "The study authors determined that while about 40 percent of the population have a genetic disposition to celiac disease, just about 1 percent develop the condition upon exposure to gluten. Mice who housed Pseudomonas aeruginosa bacteria (Psa) in their guts – transplanted from celiac patients – metabolized gluten different than mice treated with the probiotic Lactobacillus.

      The researchers further observed that Psa produced gluten sequences that initiated inflammation in celiac patients. Lactobacillus was used to detoxify the gluten.

      "So the type of bacteria that we have in our gut contributes to the digestion of gluten, and the way this digestion is performed could increase or decrease the chances of developing celiac disease in a person with genetic risk,” senior study author Dr. Elena Verdu explain(s)" Again I hope this is helpful. 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the Grace of God,
    • Fun fact, google your doctors name, 2-4 review sites will have them and their info. You can submit a public review of your doctor.......inform people of this story on the review sites and this doctors "incompetence" in relation to your disease.
    • After I posted this, he called me because I replied to the note questioning if I was reading the test results correctly because they didn't look negative to me. He told me that A. diarrhea is not really a symptom of celiac (huh, wonder why all the poop jokes about it then...) B. if I had both genes plus a positive antibody test, that would mean that there was about a 95% chance that I do have celiac right now, not a potential to develop it and C. if I stay on a gluten free diet (which I don't have to because he says I don't have celiac) then he won't retest the antibodies because of course they will go down and there is no need to test. I'm pretty much speechless. It is abundantly clear why he was the first available when others had a wait.
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