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Showing content with the highest reputation on 06/03/2014 in all areas

  1. 1 point
    I wish you would have gotten tested before going gluten free to see is you have Celiac disease. If it's only been a week, you could start eating a little gluten each day and get tested. Then you would know if you have an actual disease or not.
  2. 1 point
    Beth, I would say, simply, if something makes you sick, don't do it. Eat it, I mean. Er, anyway.... #1 basic rule: If your body doesn't like it, listen to your body. That's the one rule everyone on this board will advise you to follow. The rest of it is, clearly, debatable lol
  3. 1 point
    Yeah, it was a pretty freaky experience. After that, we decided, no more gluten. It really didn't matter what any tests said anyway, I wasn't going to start eating it again. I won't do a gluten challenge to satisfy anybody's diagnostic requirements. No way, no how. It sounds like in the future, celiac testing could be done without eating it at all, through an in vitro gliadin challenge. I hope that becomes mainstream soon!
  4. 1 point
    Remember, the biocard test is not a full panel for celiac. It is a good place to start (and a positive on it might be enough to get your doctor to listen). If I'm not mistaken, it tests for IgA only. IgA has a higher "false negative" percentage because a lot of celiacs are IgA deficient. That being said, if celiac makes sense, and biocard says it's negative, I would still pursue an IgG test panel, and maybe an IgA total count to see if it's low. I know you are hesitant about "hoping for a positive", so look at it how I did: "looking for an answer"
  5. 1 point
    I greatly dislike how much pressure is put on people using this forum to get endoscopies and follow-up testing. My two cents on endoscopies: Pros: • Can compare damage and healing with follow-up tests. Helpful if you're part of the small percentage that doesn't seem to heal. Cons: • Have to have an invasive hospital procedure that requires anesthesia. • Have to pay for the procedure, possibly lose time from work, etc. • False negatives on endoscopies are not uncommon and some studies have shown that villii damage can be a later symptom, so the test may not be indicative of whether or not you have celiac, but more a test of how much damage has already been done. • Doctors might pressure you to have procedures so that they can be paid for performing procedures. If you don't think that the blood tests were reliable enough on their own to be a definitive diagnosis, then that would be a reason to have further testing. Doing your own research into whether or not the type of tests you had are considered the most-reliable seems to be a good place to start. Or if you continued to have symptoms that didn't resolve after going gluten-free, an endoscopy would be one of several types of tests that might tell you more about what is going on. But even then villii damage will heal, so depending on how much damage you had originally or how long you've been gluten-free, an endoscopy may or may not show anything anyway. But ultimately, it is your decision. Don't let anyone pressure you in either direction and do what you're most comfortable with.
  6. 1 point
    This particular forum on celiac.com is described on the main page thus: It is not intended to be about products that are labeled gluten-free. If it were that simple, we would not need this discussion forum. Here, in the Gluten-Free Foods, Products, Shopping & Medications section, we talk about products that are not labeled gluten-free, but which in fact are, for all reasonable purposes. Since the forum opened eight and a half years ago, there have been 12,653 topics started by members here. Obviously there is an interest, if not a real need. We post here to help each other with practical advice. We know there is always a risk of contamination when you buy a prepared food from someone else. We know that, even when a food is labeled gluten-free, there is a chance of contamination--we just know that the level is below a certain limit. It may, in fact, be zero. You just can't prove that.