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Showing content with the highest reputation on 01/19/2015 in all areas

  1. 1 point
    Hi Nora Welcome to the Forum. Further to that great advice above, I just wanted to tell you so sorry you found out about Ibuprofen the hard way - I did too. It took a few weeks for my stomach to stop feeling sore. I don't say that to discourage you, I'm just saying in case it happens and you are concerned. I have a couple of coeliac friends here in the UK who have had such an easy run with their celiac disease since diagnosis whereas I seem to have had one thing after another and it seems the doctors find my test results so fascinating I am always being sent for more! So discouraging! But this is such a good place to visit when you need that extra help, there are so many understanding people here who will know exactly what you are going through. You will pick up friends here you can offload with and it will make such a difference being able to do that, with people who really understand. For myself I try to visit here when I am feeling low, rather than offload on my poor husband all the time and it makes the world of a difference. For our families I guess it is just as disappointing if we don't bounce back healthwise; if we can't eat with them at a restaurant at the drop of a hat. But this website will really equip you to deal with these difficulties. I have found it really inspiring to read people's stories and see how people get to grips with this thing. Just try to take one day at a time at the moment. xx
  2. 1 point
    The gluten-free version of Blue is around the same price as Royal Canin. My cat now eats the Royal Canin Feline Urinary SO prescription food, it helps with her urinary tract problems. The regular one is gluten-free, the lower calorie one has wheat gluten as a top ingredient, so we just make sure to be strict on portion control. We fed her Blue before, she liked it a lot. The can version of her RX food is gluten-free as well, we feed her those sparingly as a treat when we have to mess with her to clean her and such. I feed her gluten-free because I keep the food in my kitchen, she licks herself, I pet her, etc. I am sure the risk of transmission and issues is very low, but it is worth the peace of mind for me to make sure her food is gluten-free. We do occasionally give her greenies which are not gluten-free. They work wonders on that bad cat breath!
  3. 1 point
    There is most definitely a connection with probiotics and histamine or something to do with the liver's detoxification pathways. I will preface this by saying I have had fluoroquinolone toxicity syndrome (floxing) from Levaquin for over two years. I have severe bodywide damage, especially neurological. The first few months of floxing I had severe multiple chemical sensitivities, but went away after a few months. I also have a pre-existing pancreatic biliary disorder and coupled with the floxing's damage to my GI tract my doctor wanted me to try Align a few months ago. Within a few days I couldn't clean my house due to the smell of the chemicals (even the natural stuff), forget standing near someone with perfume on, and I couldn't even stand in a room with new carpet. I went off the Align and my symptoms improved. I then tried Culturelle and immediately couldn't stand chemicals in any form. Went off that and improved. Went on a hypoallergenic "clean" probiotic by Klare Labs called Vital 10. I was ok for a few days, then very mild chemical sensitivities began. After a week or so my nails started lifting from the nail beds and I could barely breathe from simple hand soap or shampoo. I have gone off these but am yet to fully recover. All that being said, there is most definitely an issue with probiotics causing histamine issues. I may be one case report, but that's enough for me. I do not believe probiotics are for everyone. I am done with them and will be happier all the same.
  4. 1 point
    I've seen a huge difference going low histamine. The allergy-like symptoms have improved, I see positive changes in my digestion, and my joint pain is better so I can sleep more comfortably again. I have more foods to choose from now, so it's easier. I'm on the right path, getting better, and moving forward
  5. 1 point
    When it comes to celiac and the issue of histamine intolerance (which is poorly understood, really) I always read current research from reputable sources, check in with my GI doctor and discuss things with him , talk with people who have also researched HIT for a few years besides me (GottaskiLisa, Jebby aka jess) and then, I do what's best for me. Lisa and Jess and I have had great success controlling the histamine levels in our bodies and we all have to do different things to obtain that. They both require medications, whereas I do not because I do not suffer anaphylaxis. I take quercetin, probiotics, fish oil caps and stay low histamine on the food intake. Symptoms that troubled me for 2 years--even after going gluten-free and being monitored by my doctor--- are almost obsolete. It was not pleasant to continuously suffer from allergic reactions, sores on my face and scalp, fatigue, wonky bowels, joint pain etc. so I did everything in my power to make that stop. I hope you can find your tolerance level and enjoy a wider variety of foods at some point. I know how hard it is to have so many foods out of the rotation.I did it for a long time. Good luck!
  6. 1 point
    Could possibly be all the above, but a question I have is. Do you eat a lot of potatoes, tomatoes and/or eggplant? You might be having a problem with nightshade vegetables. Remove all of those for a few days and see what happens. Just a thought. Hope you get to feeling better.
  7. 1 point
    Hi, don't know if anyone is still interested... I just called Nature's Plus about Maltase (from barley malt) in their enzymes that are labeled gluten-free and here is what they told me: they can label a product gluten-free if the gluten content is less than 20 parts per million. In other words, it does have gluten, but it can be labeled gluten-free, because there is not a lot of it. I spoke with their product specialist and she said if I just call them and ask them if it's gluten-free, they will say say. Beware!!!!!
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    • Thanks for the kind thoughts. The test results I got back a few comments ago and I said what they were which was negative on everything. I just don't think it's celiac but something that created this domino affect. I plan on going to my regular doctor because honestly I feel the GI one was useless. When I told her back in Feb that I wasn't sure I'd be able to have the colostomy and endo she said "well then we won't be able to help you". 😕 The peanut butter I bought was organic . I had looked at the Aldi brand which I never had any issues with and it had soy so that's why I looked for a brand that didn't have any soy. I haven't had chocolate since February either due to the soy. I hadn't eaten anything but fresh fruit, vegetables, Chicken or fish since mid Feb. I did have some dried fruit which I seemed ok with but now the last two days I've gotten gas from that :(. I did have prunes awhile back and they also gave me gas which never happened before. I rarely eat prunes as it as always done the opposite of what it commonly is used for .
    • Sounds like the blood test is useless in your case.  Some times people have elevated antibodies for a few months after gluten-free.   The tests have a range for normal because it is normal to have  those numbers.  Two months from now, they may be slightly different.  There are other things that can cause low levels on these tests.  
    • Thank you for your help! Now I am beginning to understand more about this disease.  
    • Becca4130, Cyclinglady is right.  Most have those genotypes but they have found other gene types that doesn't always fit that mold. I haven't always known this (and I am not good at gene tests) I having only been diagnosed on blood serology alone. This verywell article explains it well. https://www.verywellhealth.com/hla-dq8-one-of-the-main-celiac-disease-genes-562571 depending on your ethnicity you might not type out well depending on where your ancestors are from. see their (verywell) paragraph about DQ8 variability by regions of the world. Be your own advocate your nutritionist is right to be cautious. see also this research about variations in genotyping can cause certain world/countries population to fail to show a positive gene typing depending on the region DQ2/DQ8 prevalence in the population mainly in Japan according to verywell. But it has shown up in people of Brazilian (assumingly) Portuguese ancestors as well (different gene typing). https://www.ncbi.nlm.nih.gov/pubmed/21484038 In their conclusion they noted in a subset of brazilians at least the wrong Regional gene typing test (American or European) might effect someone's test's causing a negative gene typing test. quoting CONCLUSIONS: "In this study, celiac disease was associated with the genotypes DQ2 and DQ8. DQ2 predominated, but the distribution of the frequencies was different from what has been found in European populations and was closer to what has been found in the Americas. The high frequencies of the HLA genotypes DQ2 and DQ8 that were found in first-degree relatives would make it difficult to use these HLA genotypes for routine diagnosis of celiac disease in this group." Assuming you don't have any of this mitigating factors then it is uncommon to be diagnosed as celiac disease without these gene types. You might only be able to get the more vague NCGS diagnosis.  But do a month food allergy elimination diet then when you re-introduce you will know if gluten is the culprit. You won't have to get  a doctor's confirmation of what your body already knows. Here is one more research article but a little older so there is probably newer research that might replace it. that might answer your question entitled "HLA-DQ typing in the diagnosis of celiac disease" https://www.ncbi.nlm.nih.gov/pubmed/11922565 I hope this is helpful. ******This is not medical advice. 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the Grace of God,  
    • I would put my money on a latex allergy or intolerance.  You can not even bring latex balloons into the hospital anymore, just the Mylar ones.  Did you call to confirm the “gel”.  It makes not mention of a gel on the Amazon or Costco website.  
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