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Showing content with the highest reputation on 08/12/2016 in all areas

  1. 3 points
    We found a great GI doc and saw her yesterday. She said my daughter's total IgA of 49 should be high enough for the test to register correctly. However due to her symptoms and former positive reaction to gluten free diet, she's scheduling an endoscopy and after that either confirm celiac or assume non-celiac gluten intolerance and she'll start her gluten free diet again and I hope it helps her! I will post the results just for informational purposes here in case anyone searches for total IgA posts in the future. Thanks for your support!
  2. 1 point
    This is obviously just a publicity release from General Mills and picked up by the newspapers. The Canadian Celiac organization does NOT recommend Cherrios! http://www.celiac.ca/b/wp-content/uploads/2016/08/CCA_Statement_on_Cheerios.pdf
  3. 1 point
    I think you're smart to go for a 2nd opinion. Thanks for letting us know what happened. We really do pay attention on here & wonder how things turned out for people. It's so nice when someone thinks to tell us instead of drifting off into never, never land.
  4. 1 point
    For those of you that are curious of the outcome of all this, my daughter's genetic test came back positive for DQ2 gene. I mentioned the 4 out of 5 rule to the GI and he said he only uses a positive biopsy and positive blood work to give an official diagnosis. And he suggested seeing an allergist to rule out allergies and repeating the endoscopy in a few months. He said that in a few months, the prevacid would clear up the inflammation in her duodenum if it was from acid inflammation. If it was celiac, the inflammation would be the same even though she has been on prevacid for a few months. He said that he would also take more biopsies to see if they could find the damage. I am so frustrated and overwhelmed by this process and not sure if we should take any of the steps he recommended. I guess we will make an appointment with her pedi to try and get a referral for a 2nd opinion...
  5. 1 point
    Then there is no point in you keeping that doctor appointment & getting the serum celiac panel.
  6. 1 point
    Heck no! I'll keep going and see what happens. If I do have celiac disease, what's the "solution"? Don't eat gluten. If I don't have celiac's disease and am just sensitive to gluten, what's the "solution"? Don't eat gluten. I frankly don't care if I have celiac's disease vs just being sensitive for whatever reason (or a false negative) - the end result is the same and, as far as I can tell, "Celiac Disease" is nothing but a label for "sensitive to gluten, but we can actually quantify it".
  7. 1 point
    Thank you all for your thoughts and assistance. I'm more hopeful knowing there are supportive people out here!
  8. 1 point
    Having only one positive (DGP Iga and I was not even IGA deficient, but the opposite high out of range) on the celiac panel, my GI proceeded with the endoscopy/biopsies. I did not even have gut issues, but I was anemic and had Hashi's too. Biopsies revealed a Marsh Stage IIIB. The celiac antibody tests are not perfect. I would get a opinion from a GI. Something is wrong with your daughter. Trust your gut (no pun intended). Keep advocating on her behalf!
  9. 1 point
    I feel really sad that your family are not supporting you or your health. Accidentally ingesting gluten can make you very sick and ultimately damage your gut indefinitely. Quite frankly that alone would mean my entire family (who are a TEAM) would work together to ensure the safely and wellbeing of the person with coeliac. I have one child with a severe allergy to all fish, and seafood. I have several children who LIKE tuna. To keep the allergic child safe NO ONE is allowed to eat fish if they are coming home within 6 hours and fish/seafood is NEVER allowed in the house. Home is his safe haven. Therefore when his three older siblings were diagnosed with coeliac it simply wasnt ever an issue that everyone was going gluten-free (except a small amount for him in order to allow him be diagnosed in the future). Naturally your family cannot be 100% gluten-free but they could sure be more supportive. As the mother I do the shopping and cooking, so quite frankly I choose the food we eat. Dinners are absolutely easy to be gluten-free, and healthy. You say they won't eat potatoes or rice - what do they eat every night then? What would happen if you simply served a gluten-free meal of meat and veggies of your choice? Why tell them the pasta is gluten-free? Why not just cook it and serve it and if they question it (because I sure cant tell the difference in taste) then tell them its a new brand. Why not slowly replace your sauces etc with safe gluten-free options? They don't need to know they are supporting you if they won't do it voluntarily.