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Showing content with the highest reputation on 05/30/2017 in all areas

  1. 1 point
    Please know that the TTg tests are not for "gluten intolerance" They are for Celiac. YOu need to eat gluten for further testing. Celiac disease is a serious disease and can cause osteoporosis as you have seen. Please don't take this casually. the bone loss may have nothing to do with your messed up knee. But Celiac can cause a lot of other issues, too. Please educate yourself and find a doctor that will take Celiac seriously. http://www.cureceliacdisease.org/symptoms/
  2. 1 point
    Hello, Was the popcorn contaminated with gluten, maybe a flavoring? Corn has "stuff" in it that may trigger a reaction. https://www.ncbi.nlm.nih.gov/pubmed/24152750 Corn is also high in Sulfites which can cause problems for some people if they developed a sensitivity or have asthma. It's not all in your head. You're body is trying to tell you something....just have to figure out what it's saying. Hope this helps.
  3. 1 point
    It happened to me multiple times. One time a product actually contained wheat. I wrote them twice then finally canceled. A bummer because it was a fun idea.
  4. 1 point
    Yeah, this happens a lot and is why many of us stick to gluten-free certified foods and certain brands. The gluten free but may contain wheat is a legal thing they do to cover themselves in case someone gets sick. Note these are more targeted at the gluten free bandwagon people then the medically required. Oh and with urthbox one of my friends had a huge problem canceling her subscription with them...wish you better luck
  5. 1 point
    I am sorry that you are not well. I am not a doctor, but many members have been diagnosed with EOE? Has this been ruled out? http://www.aaaai.org/conditions-and-treatments/related-conditions/eosinophilic-esophagitis
  6. 1 point
    I use this company called solgar for the iron 25mg and the vitamin c 1000mg. They are gluten-free and formulated to be gentle on the stomach. They cost a bit more then what you might find at Walmart but I think it's worth it. Good luck to you. Let me know how it works.
  7. 1 point
    So great to hear! Actually makes sense with the iron, as vitamin C helps in the absorption of iron. Sounds like a good theory that it is either the vitamin C, or vitamin C aiding in the absorption of the iron. Thanks for all the feedback. Going to try adding iron as well. Hoping this will help us both feel better and worry less
  8. 1 point
    Gaerty, I am glad to hear that you've ruled out the worst stuff. That at least helps clear any anxiety or worry you might have. I know that would clear up mine. I have good news! About three days ago my splinter hemorrhages cleared up 100%! The one that was on my right thumb was long and was there for about 2 to 3 months. I started taking this Vitamin C supplement 1000 mg once a day about 3 weeks ago. Whats crazy is that on the day I started the Vitamin C I noticed a small hemorrhage cropping up on my left thumb. It was very small. By day 7 of taking the vitamin C the one on the left thumb started growing out. By the second week I noticed the one on the right thumb shrunk drastically and by the end of week 3 they were all gone. By day 10 I also started taking 25mg of iron because all my muscles keep twitching. My B's and Magnesium came back good 5 months ago. I heard low iron can cause that symptom as well. So thought I'd give it a try. I am not sure if it was a combo of the C and Iron or just the C that helped clear the splinter hemorrhages but for sure it was one of those things because they are the only things I have changed recently with supplements in the past 30 days.
  9. 1 point
    Hi Spencer88- just wanted to update you on the splinter hemorrhages. I went to my GI doctor and he ran a bunch of bloodwork. I didn't actually get the bloodwork done for a few weeks as I wanted to go back to consistently taking my B-12, D3, K, and multi.(Solgar VM-75) When I did get the bloodwork done, all the numbers came back fine. Vitamin C is water soluble so harder to test for than A,D,E, and K but I thought A,D,E, & K would serve as an indication of how my body was absorbing. Splinter hemorrhages have grown out on my one toe and seem to be growing out on my other foot as well. Today, I think one may be starting on another toe, so am increasing my clementines to 3 a day again and seeing what happens. (I had gone down to one a day). This seems so non- scientific, but I am giving it a shot. My GI also wanted me to check with a rheumatologist, but my tests for RA and Lupus all came back fine, so not sure I will be making an appointment. Getting tired of jumping from doctor to doctor. So far have seen General practitioner, GI, Cardiologist, & Dermatologist. We have ruled out a lot, but no answers as to why. Getting tired of hearing the word "idiopathic". How are you doing?
  10. 1 point
    You need to get a full celiac panel including ttg, dgp, ema and overall iga. all of those should be ordered I would be suspicious of a doctor who did not order the entire panel. a lot of people on here including myself started off with a GI doctor who was not too Savvy with celiac disease and ended up having to get second opinions. you may want to consider getting the genetic tests as well however know that 30 to 40% of the population carries the gene it does not mean it will be activated. If you do not carry the gene It practically rules out Celiac. If you do carry it you will need to undergo further testing. do not stop eating gluten until all the testing has been done. a lot of folks make that mistake as well. Keep us posted. you should probably get some vitamin levels done as well iron, vitamin D, B12 to start.
  11. 1 point
    You are correct that if you don't go back on gluten you can't be tested for celiac and the gene tests are not diagnostic. Those can only tell you if you have one of the two most common celiac genes. You do seem to have found the answer to your issues though. With the seriousness of your problems I don't think I would be willing to do a lengthy challenge either. You may have to just be happy being gluten free and healing. Perhaps you might want to talk to your doctors and see if they will make the diagnosis based on your resolution of symptoms. Welcome to the board and do read the Newbie 101 thread at the top of the Coping section it has a lot of good information. I hope you continue to feel better and better.
  12. 1 point
    Edema in celiac people can be almost always put down to protein malabsorption. Since we have a hard time digesting and absorbing protein, our bodies will retain water. This is a side effect of protein deficiency, and thus, of celiac disease. To combat this, try incorporating digestive enzymes to break down protein and diuretic foods like garlic, celery, and dandelion tea (or Dandy Blend) after an exposure. Also, don't stand or sit for too long. Try to lay down and elevate your feet. Lastly, closely minute your water intake. Edema can become harmful quickly.
  13. 1 point
    If you have had positive blood tests you need the diet BUT you shouldn't have gone gluten free until after the endo is done as that will cause a false negative. You can go gluten free for life the day of the biopsy. Celiac can cause edema. In my case it was because celiac was attacking my kidneys but that isn't the only reason as far as I know. In my case the edema resolved within a month or so very strictly gluten free. Use the time before you can go gluten free to learn as much as you can about the lifestyle as it does involve more than just watching what you eat. Precautions need to be taken in the way food is prepared also. Ask as many questions as you need to while you wait for the endo.
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