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  1. desirun

    desirun

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  2. jetladuke

    jetladuke

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  3. ravenwoodglass

    ravenwoodglass

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    IrishHeart

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Showing content with the highest reputation on 03/27/2018 in all areas

  1. desirun
    My daughter is 13. She was diagnosed last August. She also had horrible neurological symptoms. We went to a highly recommended and regarded GI doc who was stumped by her neuro symptoms and didn’t believe they were celiac related. We finally took her to the best Celiac GI specialist in our area who understood that her systems were related to gluten and celiac d...
    2 points
  2. IrishHeart

    Newbie Info 101

    You have been diagnosed and you do not know what to do next. First, do not panic! and Welcome to the Forum! I have posted this information in pieces and parts on this site during the past year so many times and some newbies suggested it would have been helpful if they had seen it ALL --right away after they were DXed.... so, I thought, why not paste...
    1 point
  3. AnneR

    7 year old and biopsy

    Hi everyone My 7 year old daughter was juat diagnosed 2 days ago by a celiac blood test (after over 2 years of constant stomach aches, constipation, unexplained anemia and headaches). Should she have a biopsy done as well? I'm on the fence as it can be a little invasive and the bloodwork already indicated that she has the disease. Her GP doesn't think...
    1 point
  4. cyclinglady
    I think Ravenwoodglass meant a GI and not an Endocrinologist! But her advice is spot on. It is critical for you to keep consuming gluten until that endoscopy! Now your blood tests. Yes, you have a positive! It only takes one positive. Why so many celiac tests? Because they are not perfect. If they just offered one type, they might miss some celiacs...
    1 point
  5. ravenwoodglass
    Welcome to the board. You only need one test to be positive to have celiac. In fact you can be negative on all blood tests and still have celiac! Your doctor seems to be unaware of this and should have had you get an endo after they had that positive test. Do be sure to keep eating a regular gluten diet until after your endo. Also make sure they are taking...
    1 point
  6. Jssmith
    It WILL get easier as you begin to find some staples. Clearly, fruits, vegetables, and meat you have prepared are healthy and safe. When you are just starting and on the run, you need a few things you know are gluten free that you can grab. Cinnamon Chex wit blueberries, or banana and Almond milk have been a life saver. Eggs and bacon and grits are great...
    1 point
  7. tessa25
    Here's what I found out regarding food: Note: insert the words "gluten free" in every item mentioned as some of the companies also sell non gluten free stuff. It's tedious to write that phrase all the time. Get a chest freezer to store all of your frozen gluten-free foods. Makes things easier. Bread: - Canyon bakehouse without question...
    1 point
  8. jetladuke
    Yes - Holidays are worth extra cash on food! I have been making yogurt in my instant pot with lactose free milk and when i drain it with cheese cloth i can make it about the same consistency as cream cheese. it's really good. Headed to google what's wrong with xantham gum. . . I'll look for your pina colada pie recipe that sounds really good. I am...
    1 point
  9. LilyR
    Lots of yummy ideas. I am still figuring out certain ingredients beside gluten that I can't seem to eat, so that can limit some recipes and store-bought products even more, but it's a learning process, that's for sure. Oh, and just a note about the manicotti crepe recipe I mentioned above, the easiest way to flip them when cooking is to flip them onto...
    1 point
  10. Alwayssomething
    Rotisserie Chicken Ham Green Bean Casserole Deviled Eggs Potato Salad Spinach apple salad with this amazing dressing Strawberry Dessert The only thing we will have that will not be gluten free is Mac n cheese. Because we make it for the kids and we use a old recipe and I don't care if I don't have it, we just continue...
    1 point
  11. Ennis-TX
    Fish, Ham, Deviled eggs, Baked Beans with bacon or Ham, broccoli and mushroom casserole over miracle rice (going to post my recipe soon on this), MY grain free rolls (https://www.celiac.com/blogs/entry/2145-keto-grain-free-dinner-rolls/) Dessert I am doing my grain free paleo muffins for the family. Myself ....I was actually going to make a keto grain free...
    1 point
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    • PixieSticks
      Hi yes! I was diagnosed 10 years ago through a biopsy. I’ve been gluten free ever since but no one I’m around is gluten free. I sometimes wore a surgical mask in the kitchen. but I believe particles were still getting through. I’ll definitely look into n95 instead. thanks for the reply. 
    • BoiseNic
      Ya I used to react to iodine, but it doesn't bother me anymore after strict adherence to a gluten-free diet for many years now. I am happy to report that for the first time ever in my life, a probiotic formula is not making me break out, but actually seems to be helping. The strains in this formula have been specifically tested to help with skin issues. It is gluten and dairy free also. 
    • knitty kitty
      @Whyz, I take a combination of Thiamin (Benfotiamin), B12 Cobalamine and Pyridoxine B6 for my pain and headaches.  Really works well without hurting the digestive tract.  Riboflavin B2 also helps with migraines.  Most newly diagnosed people have vitamin and mineral deficiencies.  Check with your doctor and nutritionist.   If you follow the updated gluten challenge guidelines, you can wait until two weeks (minimum) before your appointment, then eat lots of gluten, like six slices of gluten containing bread or "name your poison".   Here's the Updated Gluten Challenge Guidelines: Recommended intake of gluten should be increased to 10 grams of gluten per day for at least two weeks. Or longer. While three grams of gluten will begin the immune response, ten grams of gluten is needed to get antibody levels up to where they can be measured in antibody tests and changes can be seen in the small intestine.   Keep in mind that there are different amounts of gluten in different kinds of bread and gluten containing foods.  Pizza crust and breads that are thick and chewy contain more gluten than things like cake and cookies.   References: https://www.beyondceliac.org/celiac-disease/the-gluten-challenge/ And... Evaluating Responses to Gluten Challenge: A Randomized, Double-Blind, 2-Dose Gluten Challenge Trial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7878429/?report=reader  "In our study, limited changes in Vh:celiac disease (villi height vs crypt depth - aka damage to the small intestine)  following 14-day challenge with 3 g of gluten were observed, in accordance with Sarna et al.  While the 3 g dose was sufficient to initiate an immune response, as detected by several biomarkers such as IL-2, the 10 g dose was required for enteropathy within the study time frame. Based on our data, we would suggest that gluten challenge should be conducted over longer durations and/or using doses of gluten of ≥ 3 g/day to ensure sufficient histological change can be induced." Keep us posted on your progress!
    • Scott Adams
      I don't believe that existing life insurance policies require such notifications--health checks are typically done before such policies are obtained. I believe it would primarily affect any new policy you get, and perhaps any policy renewal.
    • Scott Adams
      You could go gluten-free now, and then start eating lots of gluten for at least 2 weeks before your endoscopy--just be sure to tell your doctor about this beforehand. If your symptoms go away on a gluten-free diet, it is further evidence of celiac disease and/or non-celiac gluten sensitivity.  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.  
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