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Hi @MTAC Welcome to the forum.  I am so sorry to read about your situation.  I'm a UK coeliac so I thought I'd add this  to Trent's and Scott's excellent posts. Here the UK my TTG test results frequently lag behind my other annual lab results.  I think the longest it took was a couple of weeks, but from memory on this forum I've read at least one other person had to wait three weeks or more.  I've never understood why this particular test takes so long to come back, but it does seem to be the way it is.  I wonder if my American counterparts on this forum have the same issue? Anyway,  it is dreadful that you weren't told, but I have friends and family in the healthcare sector and I know that staff are often so stretched, somethings are getting missed, despite their best efforts.  (It's happened to me, too -  I looked up some blood results recently on the NHS app to find that my cholesterol levels were elevated and yet my GP never told me.    I dread to think what they are now and I keep meaning to do something about them.)  Anyway, it is so good you asked for the blood test results and that will be an excellent habit going forward.  I've taken to getting my consultant to print them out now, or I print them out when I get home off the App.   I hope you get some more clarity in the next few days.  Going forward,  I recommend joining Coeliac UK - they do a wonderful App and a Food and Drink Guide that will make it easier for you to shop. Cristiana

To me it seems like a slam dunk diagnosis, and the actual confirmation should be recovery on a gluten-free diet. If her symptoms improve on the diet, it would be final confirmation that she has celiac disease--and likely DH as well.

Thank you for all your help! We agreed with the pediatrician that if further testing is necessary we will reintroduce. Given all the evidence I would never put her out for an endoscopy even if recommended by the GI.  So today I'm purging the kitchen and cleaning.

The blistery rash is almost certainly dermatitis herpetiformis, a classic indicator of celaic disease and for which celiac disease is the only known cause. There really isn't much doubt that she has celiac disease given all the evidence so far.

Thank you! Hers were much higher than 10x plus positive ema. Plus anemia, rash, low vitamin d. The GI appointment isn't till middle of April but the pediatrician said to go ahead and stop gluten as there is no question. We went ahead and she hasn't had gluten for about 36 hours. This morning her rash wasn't blistery for the first morning since it started.