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  1. Michelle1234

    Michelle1234

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  2. Posterboy

    Posterboy

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Showing content with the highest reputation on 01/09/2021 in all areas

  1. Michelle1234
    I saw an ad for Daily Harvest and they say they are gluten free so I put in an order for a box. Tried a smoothie first and no reaction. Then tried the flatbread and had a gluten reaction. Also had a questionable reaction to their scoops. But it was the same day as the flatbread so not sure if it was just a follow up to the flatbread reaction. Two other items...
    1 point
  2. Blue-Sky
    In general I think the idea is that people should get enough zinc magnesium selenium and copper. If you are talking about treated celiac disease, it does seem like zinc level tend to normalize. However is is more confusing because of the overlap between IBS and Celiac disease. Technically celiac disease is a type of IBS. Also the two groups overlap...
    1 point
  3. GodsGal
    Hi Madmichie! Thanks for posting. Definitely request the testing. I am not a medical professional. Celiac disease can have a wide variety of symptoms. I feel like it is a disease that is not well known, even in the medical community. If the doctor seems dismissive or reluctant, I would ask for a referral or seek out a second opinion. I didn't have...
    1 point
  4. Posterboy

    Stupid Liver ?

    Scott and DJFL Et Al, Here is that thread I mentioned early on the issues with getting a Clinical diagnosis of a Thiamine Deficiency.... Note: DJFL was involved in this thread. So it for Scott and who ever might else read this thread.... It probably describes many of us who have ever tried to get a Celiac diagnosis.... It is the best...
    1 point
  5. PJWM
    Red Robin Chick Fil A
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    • trents
      Were any other celiac antibody tests run besides the DGP-IGA? Was a total IGA test run to check for IGA deficiency? There are multiple IGA tests that can be run as well as several IGG tests when checking for celiac disease. The DGP-IGA test is helpful when diagnosing children whose immune systems are immature.  
    • trents
      I think we all wish that managing celiac disease was a simple as just avoiding gluten. And I think we all enter into the journey with that naive misconception. And for some, it is that simple. But for many, it is not. The same processes that resulted in the immune system misidentifying gluten as a threat opens the door for misidentifying other food proteins as threats. At it's core, all this simply is the result of an immune system that has become dysfunctional in some ways and is hypervigilant.  I assume you already know that genetic testing cannot be used to diagnose celiac disease since 40% of the general population has the genetic potential to develop celiac disease while only about 1% develop active celiac disease. However, genetic testing can be used as a rule out and thus to distinguish between celiac disease and NCGS (Non Celiac Gluten Sensitivity). 
    • bpritch27
      It doesn't look like either avenin or casein would contribute to her IgA levels being high. From my understanding, that is only an indication of gliadin, which is only in gluten.  I should have noted that she does not have any symptoms of being constantly exposed to gluten as the test result shows. No intestinal discomfort, no brain fog, no lack of energy. She is still growing and gaining weight, which was the first indicator that she was not absorbing nutrients properly and led to her celiac diagnosis. 
    • bpritch27
      That is very disheartening... She's due for the celiac genetic test, and the gliadin test again in 3 months.  Oats are easier to avoid, the milk is going to be an issue.  Thank you! We'll see how this goes. 
    • ShariW
      No problems (that I know of) to cellulose, but I have found that I have a "glutened" response to products containing inulin. Another thing to check for on labels!
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