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  1. Celiac-in-AZ

    Celiac-in-AZ

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  2. GF-Cate

    GF-Cate

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  3. Wheatwacked

    Wheatwacked

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Showing content with the highest reputation on 08/06/2022 in all areas

  1. Celiac-in-AZ
    That is very telling, indeed. It helps me a ton to read the accounts from you and others who've been navigating these waters for awhile. I have been taking 6,000 IU of D3 daily for over a year and just got blood work done -- I'm at 30ng/ml. Exactly where I was before I started supplementing. And homocysteine at 14.5 despite taking a good amount of B...
    2 points
  2. GF-Cate
    Hi Turtleseaba, I don't know if it would help (and maybe you have already tried this), but perhaps a phone call (or email) to the pantry manager/ director/lead volunteer on a day that is not a distribution day to talk, explain your situation and explain about celiac and ask if it's possible to receive safe food and/or have gluten-free food service aside...
    2 points
  3. Scott Adams

    Kratom

    The Mayo Clinic is not "big pharma," and certain unregulated supplements can have negative side effects, and many have been known to cause injury. It's important to mention that this particular one does have risks associated with it.
    1 point
  4. Kate333

    Off topic

    I recommend trying acupuncture. I had really terrible "tennis elbow" tendonitis several years ago. Tried PT, braces, ice, meds, steroid shots. Nothing really worked. After all that failed, ortho was really gung-ho about surgery. Elbow is such a complex joint I wanted to at least try AC before I let him cut me up. Although I was squeamish about needles...
    1 point
  5. Wheatwacked
    You are welcome. Yesterday I got the results of my fasting labs and there were two things that stood out to me. I stopped all vitamin and mineral supplements July 5. Usually I don't stop because I want to know what I am actually at but this time I listened to @knitty kitty and @trentsto see my status without. Except for vitamin D, homocysteine and cholesteral...
    1 point
  6. Celiac-in-AZ
    Scott, thanks for the reply and for creating this resource for all of us! You have a great point about insurance that I had not considered. That said, I decided more information can only be useful in the long run. For the time being, I'm being extremely cautious about cross-contamination, not eating out, and treating all of the cross-reactivities on...
    1 point
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    • WednesdayAddams13
      Hello,   I contacted the makers of Alpine Original Spiced Cider Drink Mix and they sent me this email.....   Subject: [EXTERNAL] Fw: Ref. ID:1335211 Alpine Original Spiced Cider Drink Mix.               On Friday, December 6, 2024, 1:04 PM, Consumer <baking@continentalmills.com> wrote: December 06, 2024   Dear Janie, Thank you for taking the time to contact us regarding our Alpine Original Spiced Cider Drink Mix. We appreciate your interest and are happy to provide you with additional information. This product does not contain gluten. However, it is not manufactured in a gluten free facility. If I can be of further help, please contact me at 1 (800) 457-7744, weekdays 7:00 a.m. to 4:00 p.m. (PT), or visit www.alpinecider.com and select "Contact Us." Sincerely, Kristin Kristin Consumer Relations Specialist Ref # 1335211   I hope this helps everyone.  I am currently looking for a spiced hot apple cider drink and have yet to find one that is not made in a plant that manufactures other gluten products.  It's so frustrating. 
    • trents
      @Rogol72, dermatitis herpetiformis occurs in a minority of celiac patients and if the OP hasn't developed it yet I doubt it will show up in the future. I think it unwise to use a scare tactic that probably won't materialize in the OP's experience. It has a good chance of backfiring and having the opposite effect.
    • Rogol72
      Hi @trents, You're correct. The OP mentioned fatigue and vitamin deficiencies as the only symptoms at the time of diagnosis. Since the family are not taking him/her seriously and find them to be too fussy, I suggested showing them pictures of dermatitis herpetiformis as one of the consequences of not taking the gluten-free diet seriously ... would make life easier for him/her, and the family might begin to take his/her strict gluten-free diet more seriously. A picture says a thousand words and the shock factor of dermatitis herpetiformis blisters might have the desired effect. The OP did say ... "How do you deal with people close to you who just refuse to understand? Are there any resources anyone could recommend for families that are short and easy to read?".  @sillyyak52, It might also help mentioning to your family that Coeliac Disease is genetic and runs in families. Any one of them could develop it in the future if they have the HLA DQ 2.5 gene. Here's a Mayo Clinic study calling for screening of family members of Coeliacs ... https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-minute-celiac-disease-screening-for-family-members/ https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-study-calls-for-screening-of-family-members-of-celiac-disease-patients/ I got glutened a few months ago because I missed the may contains statement on a tub of red pesto. It was my own fault but it happens.
    • peg
      Thank you, Scott!  This is just what I needed.  Appreciate your site very much and all of your time and energy that goes into it! Kind Regards, Peg
    • Hopeful1950
      Oh yes.  I would never recommend taking it for an extended period of time.  When 70% of my body was covered in blistering itchy sores, an amazing doctor prescribed it diagnostically because I was unwilling to do a gluten challenge after already going strictly gluten-free in desperation after 10 years of suffering and being poo pooed by dermatologist after dermatologist. The fact that it stopped the itch and mostly cleared the rash after about 2 months was diagnostic for him.  I stopped it and have remained strictly gluten-free with very few flares since that time (over 10 years ago).  So the fact that it cleared the rash was diagnostic for me.     
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