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Hidden Gluten in distilled vinegar
Scott Adams and one other reacted to Manaan2 for a topic
@knitty kitty I can't thank you enough! My husband and I already started looking into those supplements. We definitely plan to give it a try. We've been against the Miralax since it was originally advised by PCP, but because of the level of pain she experienced on a daily basis, we decided to try it. We've made many attempts to gradually decrease but...2 points -
My Adult daughter is blaming me for her "possible" Celiac disease.
Scott Adams and one other reacted to trents for a topic
Welcome to the forum, @Marie70! The first thing to know is that celiac disease has a genetic base. The two main genes that have been identified as providing the potential to develop celiac disease are HLA-DQ2 and HLA-DQ8. About 40% of the general population carries one or both of these genes. However, only about 1% of the general population ever develops...2 points -
How to Navigate Gluten-Free Dining at Popular Restaurant Chains
LovintheGFlife and one other reacted to Scott Adams for an article
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Years ago when I told my GI specialist that I'd like to be tested for Celiac he told me that being I had been gluten-free for over a year, I would test negative. In order to get an accurate reading I would have to eat a full gluten diet for 5 weeks. I agreed to do it and on the way home I stopped at the grocery store and stocked up on my favorite breads...2 points
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Welcome to the forum @cameo674! First, let me correct a misconception you have about celiac disease and intestinal anatomy. Celiac disease does not affect the colon. It damages the lining of the small bowel which is on the other end of the intestinal track from the colon. The small bowel, the duodenum, is the part of the intestines right below the stomach...2 points
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Not sure if this is Celiac or just a gluten-free intolerance
MomofGF and one other reacted to Liamclarke for a topic
I was diagnosed with celiac and basically had stunted growth because my body wasn’t taking In nutrients which may explain the weight loss I would take this seriously and get tested2 points -
Can gallbladder issues cause symptoms of celiac disease?
Scott Adams and one other reacted to Mr-Collateral531 for a topic
I have dealt with gallbladder issues on-and-off for about ten years now. I was diagnosed with biliary dyskinesia in 2016 but chose to keep my gallbladder. Then in July 2022, I was diagnosed with celiac disease. Your surgeon is partially right in that your gallbladder can definitely cause some of those issues. However, the flip side to the coin is celiac...2 points -
@LoSmith, what would be helpful to you in this regard? If "Simply saying "You need to eat more vegetables" or handing over lists and recommending recipe books is not helpful when simply READING a recipe can cause someone to reject it entirely" doesn't work for you, what would be a better approach? What would that look like for you? You may need to take the...2 points
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Hey @Morgan Tiernan, Sounds just like my experience. I was diagnosed with dermatitis herpetiformis over 10 years ago. It appeared suddenly as a very itchy rash which looked like Eczema. When a steroid cream didn't clear it up, my Dermatologist (who had come across it before) suspected dermatitis herpetiformis and performed a skin biopsy which came back...2 points
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Another factor revealed in your test results is that you are IGA deficient. Look at the line: Immunoglobulin A, Qn, Serum 35 (L) Reference range: 87 - 352 We also call that "total IGA". IGA deficiency results on in artificially low scores in the individual IGA celiac antibody test scores. In other words, the test score for the tTG-IGA would...2 points
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Thank you so much for the detailed reply! I was just eating my normal diet so wasn't going out of my way to eat gluten. The week before my blood test I actually had a stomach virus so I wasn't eating much of anything so I do wonder if that contributed at all. Before the biopsy I was just eating my normal amount of gluten, I would say two slices of bread per...2 points
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How to navigate living with dermatitis herpetiformis
Morgan Tiernan and one other reacted to trents for a topic
Welcome to the forum, @Morgan Tiernan! I find it outrageous that your physicians refused to test you for celiac disease despite what were obviously outbreaks of dermatitis herpetiformis. Every physician should know that dermatitis herpetiformis is a classic symptom of celiac disease! In fact, celiac disease is the only known cause for dermatitis herpetiformis...2 points -
Not All Corn Grits are Safe
Scott Adams and one other reacted to ShariW for a topic
I don't react to corn in general. I think it was cross-contact in manufacturing that got me. But if I do find that I have problems with gluten-free grits, I will see corn elimination in my diet will solve the issues.2 points -
Matthew 18:21-352 points
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Being a burden to family/friends
DayaInTheSun and one other reacted to CatS for a topic
I understand your frustration about socializing while having celiac disease. I also have allergies to nuts, dairy, all forms of gluten including oats, strawberries and MSG. I get anxiety while grocery shopping and really take my time to read all labels. I always carry a magnifying glass with me wherever I go to read labels. Many products are labelled Gluten...2 points -
Opinions on my test results/symptoms
Scott Adams reacted to BIg Nodge for a topic
Thanks again. I've actually convinced my local butcher shop to start carrying Ghostfish gluten-free beer. It's not bad! But you won't often find it at a ski lodge.1 point -
Vaccines
plumbago reacted to Scott Adams for a topic
For individuals who have experienced negative reactions to the flu vaccine, there are alternative formulations that may reduce the risk of allergic responses. Traditional flu vaccines are typically produced using egg-based methods, which can pose issues for those with egg allergies. However, there are now several egg-free options available, such as cell-based...1 point -
Vaccines
Scott Adams reacted to Dawn Meyers for a topic
Mayo is great and yes I had the same experience. They take you seriously and they check everything. I to wish other Dr's cared that much. I sure hope it's not refractory celiac also.1 point -
Vaccines
Scott Adams reacted to trents for a topic
Dawn, yes, once the genes that give the potential for the development of celiac disease are "turned on" so to speak, they will be on for the rest of your life. It is not something that is cured or comes and goes but something that must be managed. Eliminating major sources of gluten from one's diet is pretty straight forward but many don't realize the multitude...1 point -
Royal Caribbean Only, Please
Scott Adams reacted to DebJ14 for a topic
We are off next week on our 9th RCCL cruise since our diagnoses. I send an email to special_needs@rccl.com before every cruise letting them know that I am both dairy and gluten free and my husband is gluten free. Unfortunately, with the new menus they introduced in 2023, they removed the gluten-free designation from each item on the menu. Instead of having...1 point -
Gluten Free Daily Vitamins for Kids w/ Celiac
Scott Adams reacted to Sandi20 for a topic
I really like Thorne! I've researched thier products. Thank you so much.1 point -
My Adult daughter is blaming me for her "possible" Celiac disease.
Scott Adams reacted to cristiana for a topic
Hi Marie Welcome to the forum. I am so sorry your daughter is pointing the finger at you like this. I am afraid children of any age can be very cruel to their parents - I certainly look back at some of the things I said to my mother and father in the past, and wish I could unsay them. Sometimes people just need a safe place to vent, and unfortunately...1 point -
Citracal Petite supplements
Scott Adams reacted to pplewis3d for a topic
Thanks, Scott! I appreciate you looking that up for me. Perhaps that will be good enough for someone but not for me...super sensitive dermatitis herpetiformis here. I don't take any chances that I can avoid. ~Pam1 point -
dermatitis herpetiformis outbreaks while on strict gluten-free diet
knitty kitty reacted to Richardo for a topic
Hi CDW. Some here may disagree with me on this site but, nothing ventured nothing gained. As long as my suggestion does no harm and is a possible help for your struggles I'll throw it out there. I have broached this in another forum.but I know this worked amazingly well for me as I too had return of dermatitis herpetiformis every 3 to 4 months for...1 point -
Brasswell marmalade and jellies are gluten free?
Scott Adams reacted to ElisaAllergiesgluten for a topic
Thank you! Yes I think is best to call. I tried another brand with similar ingredients but the different thing is that second brand did emphasize they were gluten-free. I will post here if they say anything in return.1 point -
Getting rid of the belly bloat
Scott Adams reacted to cristiana for a topic
Karen, welcome to the forum. Another thing to add: Belly bloat can persist if you are lactose intolerant, a situation caused by coeliac disease or it can simply be a stand alone condition. In the case of coeliac disease, it could be your damaged gut cannot break down lactose efficiently but, in time, once the gut heals, your lactose intolerance and...1 point -
Shortness Of Breath (the "sighs")?
Scott Adams reacted to Jordan23 for a topic
I would stop Xanax. It will eat away at your DAO enzymes needed to break down histamine . No energy drinks will do the same. I use to have all reactions in stomach now it's changed and started in my chest , which completely sucks and bummed. Maybe your reacting to high histamine foods. But it's hard to avoid cross contamination. I would get pea milk made...1 point -
A New Study Focuses on Understanding Non-Responsive Celiac Disease
Scott Adams reacted to Lucille Cholerton for an article
Thank you so much Scott for these enlightening replies.1 point -
Celebrity Luncheon Loaf Gluten Free
robingfellow reacted to Scott Adams for a topic
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Conflicting results
Scott Adams reacted to Jy11 for a topic
Thank you, I do feel the likelihood is high which is why I am reluctant to do a colonoscopy as I feel we will find the answer. Whatever the endoscopy says though and even if it were to be negative he will be going gluten free as the positive EMA has to mean something with symptoms and one parent coeliac. But there is a niggling doubt as I try and...1 point -
Conflicting results
Scott Adams reacted to trents for a topic
Thanks. Now it all makes sense. So, it looks like he may be IGA deficient or on the cusp of it. So, the reliability of the tTG-IGA testing is dubious. Being that the EMA is positive, my money would be on him having celiac disease, especially with the symptoms he is experiencing. The next logical diagnostic step would be to have an endoscopy/biopsy done of...1 point -
Reaction to gluten or gastro bug?
Scott Adams reacted to cristiana for a topic
Hello @Beck1430 and welcome to the Forum. I am sorry your little boy is going through this. Your question is an interesting one. I would say the majority of posts I have read since joining this forum speak of a fairly quick reaction, and that has been my own experience. The only major gluten hit I've had in more recent times resulted in chills...1 point -
Test result insight
Scott Adams reacted to disneyfamilyfive for a topic
Thank you! This will be so helpful. It’s overwhelming for sure!1 point -
DH and swollen lymph nodes
Scott Adams reacted to Morgan Tiernan for a topic
A little late to the party in terms of seeing this and responding to it, so apologies! But I wanted to responds as this sounds exactly like my experience. I had covid, followed by shingles, followed by strep… that unlucky bout of infections is what lead me here with dermatitis herpetiformis. I was also self diagnosed in the beginning and turns out I was a...1 point -
https://www.healthline.com/health/at-home-celiac-test#_noHeaderPrefixedContent1 point
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Weak positive blood test and marsh type 1
Philly224 reacted to Scott Adams for a topic
This article has some detailed information on how to be 100% gluten-free, so it may be helpful:1 point -
Can food allergies like milk and soy flatten villi?
Scott Adams reacted to Matt13 for a topic
Hi knitty kitty, Scott and all, Thanks for kind words and asking!I will def. talk about histamine intolerance on my next visit to gastro doc. My doc.gastro says that lactose or casein is very unlikely to create marsh 3b histology like gluten in adults in intestines. (that was previous question for Scott) Regarding my last EGD the villy was OK so...1 point -
I’m so confused…
Scott Adams reacted to Kwinkle for a topic
Thank you. I already cut out dairy and eggs because I found out I was having a problem with them. To be honest I’m just getting worn out 😂1 point -
I’m so confused…
Scott Adams reacted to Celiacandme for a topic
You might also be sensitive to other things while you are healing. Dairy, for example. It won't harm you from a celiac standpoint but is inflammatory and could be bothering you. Have you been keeping a food & symptom journal? Might be worth it for a week to see if you notice something you are eating prior to the times you feel your worst. I hope you start...1 point -
I’m so confused…
Scott Adams reacted to Kwinkle for a topic
Thank you - I am fighting the good fight. I feel like when I see improvement then I go back downhill again. What I do know is if I can’t get past this fatigue and loss of appetite I’m heading for problems.1 point -
Not All Corn Grits are Safe
ShariW reacted to knitty kitty for a topic
@ShariW, Some of us react to corn the same as we react to gluten because maize and gluten share some similar segments which trigger the Celiac autoimmune response. Maize Prolamins Could Induce a Gluten-Like Cellular Immune Response in Some Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC3820067/#:~:text=The current treatment...1 point -
New Guy Here...
knitty kitty reacted to trents for a topic
I have concern as well about the long term use of any PPI. I understand it was given to you to address the GERD but PPIs were never intended to be long term solutions. Yet, docs prescribe them like candy and never monitor for the ongoing need. They just leave people on them indefinitely which has long term negative health consequences from raising gut PH...1 point -
Top Brands of Gluten-Free Canned Chili
Scott Adams reacted to trents for an article
My wife just brought home some Wendy's canned chili from Costco. I've eaten it at Wendy's and it's on their menu there as gluten free. However, it's not stated as such on the can. On the other hand, wheat is not in the allergen list on the can.1 point -
Top Brands of Gluten-Free Canned Chili
Scott Adams reacted to Roadqueen44 for an article
Wendy’s canned chili is gluten free. My husband just brought home canned skyline original chili. Is it gluten free? It’s not stated on the can and does have dried yeast, spices and natural flavors.1 point -
Gluten Ataxia and Malabsorption
Beverage reacted to knitty kitty for a topic
@Soleihey, Do get checked for thiamine deficiency. Blood tests for thiamine deficiency are not accurate. You can have "normal" levels in the blood, but still be deficient because thiamine stores inside cells are depleted. Thiamine deficiency can cause ataxia, tremor, muscle twitching, leg weakness, constipation, and slurred speech. I had these...1 point -
Being a burden to family/friends
knitty kitty reacted to cristiana for a topic
I must admit I've been on both sides. Before my diagnosis, and in my ignorance, I thought all the special diets we see around us today were unnecessary and people were making a big fuss over nothing. There is a shop in the small town where I live that sells organic and gluten free food and I used to see people walking in and buying things and thought they...1 point -
Shortness Of Breath (the "sighs")?
Beverage reacted to knitty kitty for a topic
Thiamine supplementation will help this "air hunger" . It's known as "sailors' asthma" because sailors used to get thiamine deficiency at sea without fresh meat. Thiamine Hydrochloride supplements will help. So will Allithiamine, so called because it is derived from plants in the Alum family, onions and garlic. Benfotiamine will also help.1 point -
The symptoms of a newly diagnosed celiac
Francziszka reacted to Mell2 for a topic
I am officially a Celiac now and I want to share my food and symptom story as no physician seems to understand anything I describe. I was an undiagnosed Celiac for quite a few years therefore quite a bit of damage to my intestinal tract. For reference to other new Celiacs here is a list of symptoms I had that every physician seemed to be unfamiliar with but...1 point
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By Scott Adams · Posted
The first set of results show two positive results for celiac disease, so at the very least it looks like you could have it, or at the least NCGS. Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. -
By Scott Adams · Posted
Elevated tissue transglutaminase IgA (tTG-IgA) levels are highly specific for celiac disease, and they are a key biomarker used in its diagnosis. However, there are some rare instances where elevated tTG-IgA levels have been reported in conditions other than celiac disease. While these cases are not common, they have been documented in the literature. Below are some examples and references to studies or reviews that discuss these scenarios: 1. Non-Celiac Gluten Sensitivity (NCGS) - NCGS typically does not cause elevated tTG-IgA levels, as it is not an autoimmune condition. However, some individuals with NCGS may have mild elevations in tTG-IgA due to intestinal inflammation or other factors, though this is not well-documented in large studies. - Reference: Catassi, C., et al. (2013). *Non-Celiac Gluten Sensitivity: The New Frontier of Gluten-Related Disorders*. Nutrients, 5(10), 3839–3853. [DOI:10.3390/nu5103839](https://doi.org/10.3390/nu5103839) 2. Autoimmune Diseases - Elevated tTG-IgA levels have been reported in other autoimmune conditions, such as type 1 diabetes, autoimmune hepatitis, and systemic lupus erythematosus (SLE). This is thought to be due to cross-reactivity or polyautoimmunity. - Reference: Sblattero, D., et al. (2000). *The Role of Anti-Tissue Transglutaminase in the Diagnosis and Management of Celiac Disease*. Autoimmunity Reviews, 1(3), 129–135. [DOI:10.1016/S1568-9972(01)00022-3](https://doi.org/10.1016/S1568-9972(01)00022-3) 3. Chronic Liver Disease - Conditions like chronic hepatitis or cirrhosis can sometimes lead to elevated tTG-IgA levels, possibly due to increased intestinal permeability or immune dysregulation. - Reference: Vecchi, M., et al. (2003). *High Prevalence of Celiac Disease in Patients with Chronic Liver Disease: A Role for Gluten-Free Diet?* Gastroenterology, 125(5), 1522–1523. [DOI:10.1016/j.gastro.2003.08.031](https://doi.org/10.1016/j.gastro.2003.08.031) 4. Inflammatory Bowel Disease (IBD) - Some patients with Crohn’s disease or ulcerative colitis may have elevated tTG-IgA levels due to intestinal inflammation and damage, though this is not common. - Reference: Walker-Smith, J. A., et al. (1990). *Celiac Disease and Inflammatory Bowel Disease*. Journal of Pediatric Gastroenterology and Nutrition, 10(3), 389–391. [DOI:10.1097/00005176-199004000-00020](https://doi.org/10.1097/00005176-199004000-00020) 5. Infections and Parasites - While infections (e.g., giardiasis) are more commonly associated with false-positive tTG-IgA results, chronic infections or parasitic infestations can sometimes lead to elevated levels due to mucosal damage. - Reference: Rostami, K., et al. (1999). *The Role of Infections in Celiac Disease*. European Journal of Gastroenterology & Hepatology, 11(11), 1255–1258. [DOI:10.1097/00042737-199911000-00010](https://doi.org/10.1097/00042737-199911000-00010) 6. Cardiac Conditions - Rarely, heart failure or severe cardiovascular disease has been associated with elevated tTG-IgA levels, possibly due to gut ischemia and increased intestinal permeability. - Reference: Ludvigsson, J. F., et al. (2007). *Celiac Disease and Risk of Cardiovascular Disease: A Population-Based Cohort Study*. American Heart Journal, 153(6), 972–976. [DOI:10.1016/j.ahj.2007.03.019](https://doi.org/10.1016/j.ahj.2007.03.019) Key Points: - Elevated tTG-IgA levels are highly specific for celiac disease, and in most cases, a positive result strongly suggests celiac disease. - Other conditions causing elevated tTG-IgA are rare and often accompanied by additional clinical findings. - If celiac disease is suspected, further testing (e.g., endoscopy with biopsy) is typically required for confirmation. If you’re looking for more specific studies, I recommend searching PubMed or other medical databases using terms like "elevated tTG-IgA non-celiac" or "tTG-IgA in non-celiac conditions." Let me know if you’d like help with that! -
I called zero water and they state their filters do not contain gluten or gluten containing ingredients.
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I agree. Doesn't look like you have celiac disease. Your elevated DGP-IGG must be due to something else. And it was within normal at that after your gluten challenge so it is erratic and doesn't seem to be tied to gluten consumption.
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By Jack Common · Posted
Hello! I want to share my situation. I had symptoms like some food intolerance, diarrhea, bloating, belching one year ago. I thought I could have celiac disease so I did the blood tests. The results were ambiguous for me so I saw the doctor and he said I needed to do tests to check whether I had any parasites as well. It turned out I had giardiasis. After treating it my symptoms didn't disappear immediately. And I decided to start a gluten free diet despite my doctor said I didn't have it. After some time symptoms disappeared but that time it wasn't unclear whether I'd had them because of eliminating gluten or that parasite. The symptoms for both are very similar. Giardiasis also damages the small intestine. The only way to check this was to start eating bread again as I thought. Now about my results. These are my first test results (almost a year ago) when I had symptoms: The Tissue Transglutaminase IgA antibody - 0.5 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) The Tissue Transglutaminase IgG antibody - 6.6 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) Immunoglobulin A - 1.91 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) IgA Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) IgG Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) Deamidated gliadin peptide IgA - 0.3 U/ml (for the lab I did the tests 0.0 - 6.0 is normal) Deamidated gliadin peptide IgG - 46.1 U/ml (for the lab I did the tests 0.0 - 6.0 is normal) Then I didn't eat gluten for six months. Symptoms disappeared. And I started a gluten challenge. Before the challenge I did some tests. My results: The Tissue Transglutaminase IgG antibody - 0.5 U/ml (for the lab I did the tests < 20 U/ml is normal)) Deamidated gliadin peptide IgG - 28 U/ml (for the lab I did the tests < 20 U/ml is normal) During the challenge I ate 6 slices of wheat bread. After the challenge my results are: The Tissue Transglutaminase IgA antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) The Tissue Transglutaminase IgG antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.31 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgA - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Deamidated gliadin peptide IgG - 2.13 U/ml (for the lab I did the tests < 20 U/ml is normal) To be sure I continued consuming gluten. I ate a lot each day. Two months after I did the tests again. My results I got today are: The Tissue Transglutaminase IgA antibody - 0.7 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.62 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgG - 25.6 U/ml (for the lab I did the tests < 20 U/ml is normal) Nowadays I didn't have any symptoms except tiredness but I think it's just work. I think it was this parasite because two years ago, for example, and before I didn't have these symptoms and I always ate gluten food. But I'm still not sure especially because the Deamidated gliadin peptide IgG results are sometimes high. What do you think? @Scott Adams
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