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SaraE

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  1. Hello all! I have celiac disease and am currently writing a research paper about designing a mobile app for supporting celiac disease patients. The goal of the app is to serve as a support system for the specific celiac patient. The app would be used by the patient and their circle of family and friends. The celiac disease patient would have to 'invite' their family members, friends, coworkers, etc. in order for them to have access to the app. The idea is the app would have information tailored to the preferences of the celiac disease patient. There are many apps to help you find gluten-free food (and personally I don't trust them very much because facilities change, ingredients change, every country has their own regulations, etc. so I prefer to do my own research and not rely on an app). This is why this new app would focus on the personal experience and preferences of each specific celiac patient. You know how we have to explain our disease to everyone and it feels like we've explained it 1000 times? How we have to think about where to go, where to eat and plan everything? Well, the app would help us explain our condition to our loved ones, and also provide ideas on how to support us with sections such as: >> Social support (understanding celiac disease, activities and socializing, dating, etc.) >> Emotional support >> Physical wellness (the benefits of meditation, exercise, etc.) >> Food (pre-approved -by us- restaurants, grocery list, favorite foods, etc.) Also, subsequent versions of the app would allow the inner circle of the celiac disease patient to provide new ideas for each section and these would have to be approved by the celiac disease patient to be published in the app. My ask is the following: I would love your input on the sections and subsections of the app. Thank you very much!!! 🙂
  2. Hello! It can be hard and overwhelming at the beginning, it just takes a little bit of time and lots of reading. I would suggest giving your kitchen a thorough cleaning, and buying new appliances that might be contaminated (toaster, blender, oven). Also, check lipticks for gluten ingredients. It's awesome that you both will adhere to a gluten-free diet, otherwise you might get her sick. Make sure you check the ingredients list on everything you buy, also check for disclaimers like: "made in a facility that also processes wheat". Cooking at home with meats, fruits and vegetables is the best. I found a Paleo-like diet to be the best. Avoid eating out at the moment while you get the hang of it, unless it's at 100% gluten-free places. Cross-contamination is probably the biggest and hardest issue to handle. How to feel better? Drink lots of water, activated charcoal helps me as well. Lots of sleep, exercise if you can. Meditation and breathing exercises have been life-savers for me. Just take it easy and be kind to yourself, it will get better! 🙂
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