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Crispy chick

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  1. Where are you? I'm UK and was told the wait would be 12 months, but I got a much quicker appointment on a sun at a hospital quite far away. They are doing overtime catch up. Alternatively would you consider going gluten free and doing the 6 week gluten challenge ahead of your biopsy? Rather...
  2. Not seen anyone about my gastritis yet 🤔. Your gp can actually refer you for endoscopy too. Perhaps you could push them rather than wait for gastro?? My situation has been a catalogue of errors from start. Unfortunately, in my experience, the more experts you are seen by, the more they use it...
  3. Hi. I am UK. I test negative on the standard UK blood test. I have recently had an endoscopy and biopsies and am awaiting the results. Keep pushing. Even if you get negative bloods, push for that endoscopy. I felt like crying when in with the gastro who declared he did not think I was celiac...
  4. I don't think the UK service is the same everywhere. My poor sister was diagnosed about 8 years ago. No dietician, no bone scan. No follow up. I'm awaiting my biopsy results. To get to this point has been a catalogue of errors. E. G gastro told me to stop eating gluten as would wait a year...
  5. Just out of interest cyclelady can they tell you the cause of the gastritis from the biopsy? Did they discover yours was autoimmune from analysing your biopsy?
  6. I have read a lot about betaine hcl and supplementing for reflux. Indeed I gave it a try. However, following my endoscopy the consultant could see my gastritis with polyps and erosion. I would be very scared to supplement with acid with the erosion and polyps......🤔
  7. Day 13 Gluten free. My original symptoms of nausea, dizziness and general malice are elevated???! I feel dreadful. With headache on top. Day 13 - withdrawl really??? Or is it proof gluten is not my problem all along? Still awaiting biopsy results.....
  8. So I am awaiting my biopsy results. I have started my gluten-free diet, irrespective. During my endoscopy I was found to have bad gastritis with polyps. I think this may be the route cause of my nausea and some of my other symptoms. However, going gluten-free takes my constant headaches away...
  9. Hi. Do they tell you straight after the procedure if they see damage??? Or do you always have to wait for follow up biopsy results. UK.
  10. Hi. I am finally just one week away from my endoscopy. I will be going gluten-free that day. I only show up as low in vit d, but are there any supplements I should take when going gluten-free??? I managed 13 days before I had to go back on gluten because of my endoscopy appointment...
  11. Hi. I'm still waiting on my endoscopy. I tested negative for the usual iga antibody. They don't offer the full panel in UK. Doc has just called to say I am positive for ANA antibody which indicates autoimmune. Anyone know if this can be linked to celiac? ANA Antinuclear antibodies. ...
  12. Thank you folks. I am going to eat gluten and have the endoscopy in 5 1/2 weeks. As you say Ranchers Wife, my GI is dubious about me having celiac so I guess I need to be in the best place for the test. I've lived with these dire symptoms for 18 months, what's a further 5 1/2 weeks. I'll then go...
  13. Thank you. I have spoken to my GP they recommend caution and eating it for 6 weeks. So have an appointment in 5 1/2 weeks. Back on gluten today - I swear I feel exhausted already after 2 meals. Then gluten-free again with a further 2 week withdrawl. What a busy few months to look forward to. 🤣 ...
  14. Hi. Apologies for my endless posts!!! I was told by gi to go gluten-free as my endoscopy would take 9 months on NHS. So I have done 13 days. Bad withdrawl and just felt I was coming out the other end yesterday when I got a phone call offering endoscopy in 2 weeks. I am well aware of the need...
  15. Hi. I am day 11 gluten-free. Been having some odd withdrawals. Been fed up, off my food and low. But now I have intense anxiety. I'm shaky, feel awful and nauseous. Dizzy. Anyone else experience extreme anxiety giving up gluten??? I just need to hear from others who have gone through it. ...