NNowak

Neither of my parents had celiac, but 3 of 4 daughters have it as well as the majority of grandchildren. I have both genes and know my mother only carries one gene. If my 4 children, 2 have celiac and 1 has a sensitivity to gluten. All...

Don’t beat yourself up. During the teen years the pressure to fit in and “just be a kid,” outweighs a strict diet few understand. I was diagnosed at age 24, I carry both celiac genes. I have 4 children that each have one of the genes...

Your efforts are good, but the form of your supplements need guidance. I’ve experienced much of the same as you (tinnitus, heartbeat in the ear, etc, etc). The only way to properly measure Folate and B12 are to include MMA and homocysteine a...

I’m sorry you’re not feeling great - yet. You are wise pursuing an evaluation with a rheumatologist. Celiac is connected to certain types of autoimmune arthritis, specifically spondyloarthropathies. I was Dx Celiac in 1995 and continued wit...

After diagnosis at age 24, I experienced infertility and three second term miscarriages. I also have 4 beautiful children- now ages 15-24. Ask your practitioner about progesterone. Methylated B complex prior to your pregnancy, and during...

It’s not probable that the human body has a single deficiency of one B vitamin. The methylation process and how the body uses/recycles/stores our B vitamins is the likely cause of any B deficiency. That said, it’s more likely a collective defi...

Oftentimes cancer is treated by starving the cells of glucose - ketosis. Epilepsy is another condition known for using ketosis for treatment. You may want to clarify the fasting window and how she wants you to approach this. Most people n...

A functional medicine doctor will evaluate your GI function, as well as your other systems to see where you need assistance with your healing. I strongly recommend you look at a functional medicine professional to form a relationship ...

I’m terribly sorry this happened to you. Unfortunately, I feel most of us can relate. In my opinion, the larger a healthcare system grows, the less healthcare is given. These docs and nurses are expected to see a certain number of patients d...

Corrine,
It really seems like your body is having a hypersensitivity reaction.  This is exactly what I experienced.  The docs I saw, and docs who have MCAS, have stated it’s extremely difficult to diagnose.  There are many vari...

I was diagnosed at age 24 (1995), prior to children.  I have both genes (HLA-DQ2 and HLA-DQ8).  My first child was born in 1998 and 5 months later diagnosed with immune deficiency. At 14 months a celiac diagnosis was obtained with a ...

When I was diagnosed 25 years ago (blood and biopsy) I was told to avoid gluten for 3 months, then I should be fine. “Most people with nontropical sprue can tolerate some gluten,” said this GI doc who is a teacher at MSU, and the sen...

I’m sorry to hear you aren’t feeling well. My first thought when reading your post is that you wouldn’t have visible damage from just one or two accidental exposures to gluten. Inflammation below the first mucosal layer would be unlik...

With you being gluten-free for an extended period of time, I believe the only other test available is a genetic test. You cannot have celiac if you don’t have one or both of the genes. The antigliadin antibody is now the biomarker for...

I’m so happy for you!!  That’s how I felt, too, about 80% better. My stomach pain was also considerably less as well as the bathroom visits. There is a lot of research that states the very things we experienced,  but the GI may say t...

It sounds like the correct procedure was followed to diagnose you properly. Please understand that Celiac is an autoimmune disease. The serum tests available to us are not sensitive, which means a lot of damage is done before there is...

Cyclinglady, you are a prime example of mind over matter, and so inspirational!!  A little tweak with the diet to address health challenges, time and ambition makes those with autoimmune conditions unstoppable. I am soooo much healthier ...

I’m glad you got an official diagnosis and are on the road to recovery. From personal experience, I can give you some suggestions. I dealt with dizziness/mental fog that seemed to worsen over the years. As I was in the process of growing m...

Keight,
Be very hopeful and expectant of your ability to build once you recover. I was diagnosed in 1995 and began running after 6 months of recovery. After 18 months I was cut and could run 15 miles no problem - I became bored ...

Applying common sense and personal preference to this topic, it’s a reasonable argument that if you weren’t susceptible to viruses before your celiac diagnosis, you won’t be more susceptible after. In fact, now that you are addressing the h...

Responding to the topic about cough with Reflux......I don’t have Reflux, but a severe case of esophagitis (that I’ve had since 2007).  My pulmonologist told me this week that the cough was from acid in the esophagus, not allergies as I...

Thank you, Posterboy. I remember you posting about left side sleeping before. That is usually how I sleep - propped up on a huge pillow. I addition to the esophagitis, I have had pain in the URQ of my stomach which gets worse on my right...

Well, listen to your doctors!  
I assume you had been gluten free or light prior to your endoscopy which visually showed damage.  By making you wait four weeks more, the antibodies tests (blood tests) should concur with the bi...

At a time when I was having multiple miscarriages, I spent countless hours researching cosmetics - I had already addressed everything else. Briefly, it didn’t make a difference. Celiacs can not possibly get enough gluten from cosmetics t...

You are grieving.  This is normal.   Over time, it becomes easier.  Feel free to vent anytime on this forum, as we have all been in your shoes!  
I am sure you are thankful that you do not have an immediate life-threatening illne...