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  1. Thanks everyone , it's means a lot to me to have some support. I went to a new GP and got some bloods for thyroid, iron and vitamin levels and she's sent me for a bone scan next...
  2. I don't have him anymore, I had considered the dust and had my allergies tested for it. He was on a pellet diet not seed so there was no wheat (although it did have barley and oats...
  3. My kidneys should be OK, I get them looked at regularly, had the scans, x-rays, bloods etc (I have a genetic kidney defect that causes me to get a lot of stones) I have a bit of...
  4. I think it could be my thyroid, mum just told me tonight her and my GM have thyroid disease, I've had tests previously and as usual the doc is an idiot, they do things like order...
  5. Thanks flourgirl, it's really frustrating I'm just so fed up. I've been on the diet in its strickest sense a little over a year. I cut out the obvious gluten before the allergy...
  6. I'm about at the end of my rope, doc is hopless, all the docs here are hopeless, allergy clinic didn't do coeliac test pre elimination diet so now they want me to do a gluten challenge...
  7. My antibodies were negative (not suprising since I'm gluten free) My genotyping was apparently positive HLA DR/DQ Genotyping for coeliac disease HLA-DR ...
  8. I had bloods done and when the results came back I was negative for the antibody test but positive for the gene test. My GP doesn't know what this means and told me he'd have to...
  9. About 18 years ago was when I had the worst of my symptoms (just after I had my eldest son, yes it's been going on this long and a stack of misdiagnosis in the mean time where the...
  10. Well I finally got to the allergy clinic after several doctors refusing to send me and wanting to blame it on anything from depression to irritable bowel to chronic fatigue (I thought...
  11. Well I got about half of it sort just going gluten free, then I felt fine and thought I could start eating it again and you guessed it I got sick. After speaking to a doc familiar...
  12. Whew, I'd been looking for an alternative to sandwiches so I thought I'd try sushi rolls but with meat and veg instead of the raw fish, I got the gluten free soy sauce (doesn't...
  13. Now I know why I'm sick from it some of the time not others. Beware in pubs, most are honest but I used to work in one that topped up with the cheap stuff.
  14. I have trouble with Flagyl which ironically the doc gave me when I went there with stomach pain.
  15. Is glutenous rice a problem or is it just a name mix up? What about rice vinegar? The ingredients said it's mostly gluten from rice?
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