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amanda12 last won the day on January 31 2020

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About amanda12

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  1. Thanks for your response. I have already have been tested for RA and every other disease under the sun I feel! All blood levels and imaging came back normal. I sincerely appreciate your advise and input!
  2. I was diagnosed with Celiac disease with a biopsy at the end of January 2020. My doctor wants to do a repeat EGD next month, only 5 months after diagnosis. From all my reading this does not seem to be standard. I wonder if anyone could offer some insight on if there is any benefit with proceeding...
  3. Thank you! I was actually searching to see it there was a group in Central Ohio yesterday and much not of searched the right thing. Thanks for this info, I asked to join! Great asset on top of this forum.
  4. Interesting because the two I saw were both younger! One was actually a fellow.
  5. Thank you I appreciate the kind words. I think they have just gotten into my head that they still dont seem to be certain that it is Celiac even though it's been diagnosed. At this point I can't think of any other auto immune diseases to ask to be tested for. I guess I'm so eager to get better I...
  6. Thanks for the input. I do have an official diagnosis of celiac disease. They gave that to be after the biopsy. They just keep saying its consistent with Celiac but not specific but with my labs they make the diagnosis. This new doctor just didnt seem like he was 100 percent confident. Sounds like...
  7. My PCP is great, but I dont get the idea he is comfortable managing celiac disease. I do know he have no trouble referring me out. I will keep looking for a doctor and hopefully I will find one that is good. Columbus is a large city, you would think it wouldn't be this hard!
  8. I actually printed and took the celiac.org one with me to my appointment. The doctor didnt seem to care to look at it. I read labs and recommendations from the sheet during the appointment. I carry my folder of information and lab results with me each appointment. I just feel like I can't trust...
  9. Thank you both. This has just not been a good experience for me so far. I feel like I have just been bounced around the medical system for the last year to rheumatologists, neurologists and different primary cares. Each one just making me feel like it was all in my head. Then fast forward to...
  10. All, I was hoping for some advice and input. I met with my new GI doctor today and while he agrees my labs I first posted is a strong indicator of celiac disease that he was very surprised my HLA-B27 was negative. I was doing some research and getting mixed results on how often its positive...
  11. Great. Thanks for elaborating. I sincerely appreciate the advise!
  12. Thanks for the advise. I will take that into consideration. How long do you suggest do the fasting for?
  13. Great thanks. I switched doctors because I had poor experiences with mine and I don't see the new one until March 31st so I can talk to him more then about the issue. In the meantime I can switch to a non NSAID for any pain I may have (hopefully that decreases soon). Another question I had...
  14. I don't think I had been taking a ton of OTC but I definitely had been taking more than I ever have in my life. As for alcohol I'd say I have 2 or so drinks on the weekends which I don't consider a lot. In the last few months I have had very little because I was on a med for a month that didn't...