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Kyalesyin last won the day on October 8 2015

Kyalesyin had the most liked content!

About Kyalesyin

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    Studying, writing, music, dancing, sunsets and sunrises, police work, cooking, getting older without growing up...
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    Plymouth, UK

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  1. My wife gets hives, up inside her elbows. Its only happened twice though- once when we used a lotion that had gluten in it [that was scary. They swelled up like horsefly bites] and once when we totally overloaded her system after a month gluten-free. We had a pizza because she was convinced she wasn't feeling better.... turns out, she'd been feeling a lot better than she'd thought.

  2. I think mine is probably gonna be quite short compared to the stories already here. Partially because its my wife, so I have only my own observations [she's not much of a social person] and partially because we caught her illness so soon.

    She'd always had bad skin. Excema bad enough that we had to resort to ice packs to numb her hands down so she couldn't feel them itching, massive ammounts of dry, flaky psoriasis, all of that. She'd had insomnia ever since she was quite young, and a whole plethora of menstral problems. Suffice to say they were irregular, heavy, painful and slightly abnormal. She didn't eat brilliantly healthily- lots of bread and pasta, not huge on the fruits and vegetables. She was also moderately overweight, although interestingly, her waist/hip/bust ratio was 9 inches- she had a very narrow waist for her figure and the fat wasn't collecting the way it would in someone who was fat through sheer overindulgence. She's always struggled to lose weight.

    When she was 17 [not long after we met] she slipped in her kitchen and managed to gash her shoulder open. Luckily I've never had an issue with blood- I patched it up just fine until we could get her to a hospital. It was quite a deep gash, and took weeks to heal. She always healed pretty slowly. Just after it healed, she got glandular fever severe enough that she spent several days in hospital. She was in for her 18 birthday and everything. We think it was this that was the 'trigger' for her celiac's to manifest, since before that although she'd had the bad skin, insomnia and weight issues, the other stuff didn't start to show until after that, and I mean literally right after.

    We lived pretty much in the dark for the first year- she went off to university, and we blamed the weight gain and insomnia/crushing tiredness cycles on the student lifestyle- living in a dorm room and not being bothered to eat properly because cooking for one is dull. She started getting massive stomach/abdominal cramping all the time. Apparently, it felt like period cramping, but even with her freaky cycle it definitley wasn't.

    We moved into a new place the next year, and her health got worse. Bad mood swings, more weight gain, permenantly low iron count despite my best efforts in the kitchen, she always looked ill and malnourished, she was sleeping 20 hours a day and still tired and unable to move, the cramps got worse. I was at my wits end. We nearly called off our engagement.

    The doctors weren't all that helpful. University doctors have three default questions. What have you taken? How much have you drunk? Who have you slept with? Not very helpful. Towards the end though, simple because we were consistent, they did some thyroid tests [all over the place] and other blood tests for iron and such. Again, all over the place.

    In the end, it was our chiropractor that said she was showing classic wheat-allergy signs, and recomended a private lab that would do the testing. It cost a lot an I was pretty skeptical about sending off a blood sample for testing, but her father picked up the bill and I was on the point of turning to witchcraft by then.

    Lab results weren't brilliantly clear, [lots of numbers] but effectively said 'massive numbers of wheat and gluten *whateverthey'recalls*. Cut this out of your diet.

    We actually ignored the results for a few months. The tantrums from her just weren't worth it. Her hormones were so all over the place that even bringing up the idea has her in huge 'I won't be able to eat anything I like ever again' tantrums. Then in passing I mentioned to an online friend of mine that she'd had this diagnosis. Guess what he suffered from....

    He pointed us here, gave us massive ammounts of advice, and I think to be honest saved our marriage.

    So, no biopsy or anything else here. Just a blood test that the doctors won't recognise or work to because it wasn't done by the NHS and some good advice from a friend. Either way, I don't need a doctor to tell me that its best we keep the gluten cut out. Her skin has cleared up, her mood swings are gone, the stomach cramps are gone, she's lost weight, she's sleeping normally... she's a lot more like the woman I met at a concert when we were still in our mid-teens.

    Talk about taking matters into your own hands...

  3. I have to say that when a teenager decides they want something, very little will stop them. Mayhaps back off from it a bit? I know that both myself [i'm not 19] and my sister [who just turned 14 and damn are we feeling it] pretty much automatically tend towards anything we're not supposed to do. Try cooling off on the issue for a while. Might help ease things up and leave space for discussion.

  4. How do you pronounce it?

    I have two boys. That means "lack of serenity".

    Lack of Serenity? Hmmm... that might be a good one when we have kids....

    Proper pronounciation is kyal-es-yin. The first y is almost silent, heaviest emphasis goes on the es and the yin is short to the point of almost sounding like 'yun'.

    There was a point in my life where I really hated that name.

  5. I always tell people. Even if its just someone saying 'y'know, I feel real bloated today' I pop up with, 'have you ever figured you might be gluten intolerant? Lotta people are...'

    I mention it every time I get chance. Little and often seems to percolate gently into peoples brains... more often than not, people will reject a new concept the first time they hear it no matter what its about, and about 95% of the time, you let them sit and think about it they'll start to come around to it on their own when they've had time to think about it rationally. Its the way I have to do things with my wife- tell her something, then back off for a day or so and let her think about it, and then bring it up again.

  6. My website needs doing and I don't seem to have the time.

    What people call my "real job" is my working for Calgary Transit. I call it my mundane thing I have to do for money.

    I really run my own businesses, write stories, books, and poetry which yes, I have had some published and no, I am not a wealthy writer. I also paint, draw, sew, make my own soaps, lotions, makeup etc and do leather work.

    What I would like to do is get the book I am working on published because it is the most important thing to me, go back to visit Cuba, travel the world and afford to go art college to get my degree. I want my BFA so I can say I have a worthless degree to most but worth everything to me.

    I have one son that I raised all by myself and two grandchildren and they are all bright, crazy, and creative like me.

    I sent you a PM with the links to our webdesign portfolio. Hopefully we can help! My wife is a writer too- its hard finding the time when you still need to do a real job eh?

  7. I like the comics from the 70's and 80's. In the 90's the comics changed and I just didn't care for them anymore. In the early 90's there was a Saturday morning animated X-Men series that was excellent and I never missed it. A few years ago there was another animated X-Men series that was terrible. The three movies were quite good. I didn't have any particular favorite as far as characters were concerned,

    I think I'm in love.

    The Xmen evolution cartoon was suckage in a can. The original series? Was what got me into the comics in the first place. I never saw the suck in the 90's stuff though until recently when I started picking up the back issues. Damn but things did change...

  8. I am a mechanical engineer/project manager for a company that makes machines for the fiberglass industry. Prior to that I was an engineer for a heavy equipment manufacturer. I am also a single parent with an 11 year old son.

    X-Men Rule!

    Comics or series? You're looking at a die-hard Gambit/Wolverine fan here...

    All of them. Especially Janeway and 7 of 9 in the Voyager series.

    I have all of the movies of X-Men excellent action.

    7 of 9? Oh yeah. I'm seeing good taste here already. I'd hit that. Janeway got on my nerves though. I prefered Picard pretty much from the off.

  9. Hi everyone.

    I've learned so much from everyone. Everyone adds so many wonderful qualities to the collective.

    Is anyone a fan of StarTrek?????

    Lisa I don't have words to say thank you for bringing this topic.

    Its great to be here. :rolleyes:

    Kirk or Picard?

    OH heck... I just admitted to something then, didn't I?

    Any Xmen fans?

  10. Kyalesyin -- thank you VERY much for lighting a candle for me. I appreciate that very much. I also like the idea of the wig-thing! If I shaved my head like Britney, I would have enough hair to make a really decent wig! My hair is below my shoulders now, so that would be a good idea!

    Actually, I do think that if I have to have surgery, it will be just a small area that they shave. If it's a larger area, then, I'll just have to "shoot from the hip"! And, quite frankly, I just wouldn't care. My mom lost her hair two years ago when she had chemo -- we're used to "baldies" in our family!!! My daughter bought scarves for both of us, and we tucked our hair up in them and wore them like Mom did. We wanted to shave our heads in solidarity, but mother kind of threw a fit when we said that! So, we decided that tucking our hair up in the scarves was second best.

    Tomorrow is the big day . . . . I'm getting nervous about finding out what the neurosurgeon is going to say. Definitely a case of butterflies now.

    Hey Vincent -- Luckily, the surgeon has LOTS of hair. He performed my sister's surgery, and she has hair like me, so I may be relatively safe!

    Hey, its no problem! I suck at prayer, but I've often been told that a candle and a quiet thought can work as well as a prayer cried to the heavens... I normally have a few candles on the go. I'll keep yours lit until you're outta the woods!

    Maybe if they can't make you a wig from your hair you get yourself something in day-glo... pink or orange.

  11. When you say she gets glutened by chocolate are you saying that it's not gluten free? If it isn't I am going to be mad. I read labels what am I suppose to look for? I didn't see wheat, rye, barley or oats so I eat it now and again, usually just plain dark chocolate

    We're not sure what it was- it was some fancy stuff her boss brought into work, and she felt it'd be rude to ask if she could read the ingredients. My money is on one of the fancy truffle-type things having something in it. We stick now to plan dark- the 70% stuff doesn't seem to have room for gluten!

  12. I'm a chemistry professor. Yes I do enjoy blowing things up. :P

    There always seems to be a disproportionate number of science types in forums. I guess many of us science types hang out more than average on the computer.

    That is so cool. My chemistry proffesor is about the most amazing person I know. He's been helping me revise for my biology exams because he actually knows more about biology than my biology teacher...

  13. Apologies if this is a little clumsy, but I've had a worrything thought.

    Is there any correlation between having celiacs, and having appendix problems? I mean, with everything else going wrong in the gut, its a risk right?

    I'm making this post becase my [supposedly healthy] appendix went foul about a month ago. I had it out no problem. My wife started getting the same symptoms this morning that I had a month ago, [Pain sat high on the left that took two days to move over, backache, C, bladder issues], and is swearing blind that she's just glutened herself and there isn't anything wrong. Am I worrying senselessly, or do I have cause for concern?

    As it is, if she's not better by tomorrow I'm hauling her to the doctor. Even so- tell me I'm just making a fuss! :(

  14. I think I'd vote with it being psychological more than anything- Getting my father to the doctor when he had classic meningitis tells was like trying to push an elephant. My mother went to the doctor every time she had a cold.

    It'd be interesting, actually, to see if its a race thing- I mean, if one particular race suffers it more than another. If thats the case, it could streamline testing and everything else.

  15. WHY isn't there some kind of universal gluten-free stamp that can be pasted across things so shopping for it would be a little easier? Kind of like how the 'lite' or 'reduced fat' moniker has become a green swoosh/flag/bar with the words in it? Gluten-free is anywhere from tiny lettering tucked into the corner on a label to giant letters emblazoned across the top of a box. It would save time if there was some agreed-upon method for gluten-free foods, as I'm sure it would be for peanut, soy, and milk allergie issues.

    Y'know... that is a really, really good idea. I honestly wish they'd do something like that. It'd make all our lives a lot easier! I guess the only issue then is all about what is actually classified as 'gluten free'.