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nickibeaks

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  1. There is way more to obesity than personal choice and "laziness" it is a symptom of broader disease, and this mischaracterization compounds people's health challenges because of the misconception that people with malnutrition conditions are always frail and thin. They are finding that more people with celiac present as obese than underweight.
  2. It’s refreshing that a physician taught that mentality to you! It often feels like doctors are so busy juggling other priorities that patients aren’t really considered very high in the equation even though we are kind of the point of the whole system existing in the first place ?
  3. Oh interesting!! ive been doing more reading today, and every study I find about people who are symptomatic with potential celiac end up having symptom relief on a gluten free diet anyway, so that seems like good justification to just take that route if they are negative. For once my google frenzy was actually stress relief ? they’ll b...
  4. This is really interesting, but to me the bigger question is around the biopsy being the standard of labeling someone as celiac. In every study I have read, PCD patients with symptoms see symptom relief on a gluten free diet. If people are symptomatic and have the blood profile, it seems like that should be enough for them to be diagnosed. It seems to...
  5. Just so frustrated today. I had two different blood tests over the past month from different companies while re introducing gluten, DHP IgG positive and TTG IgA positive on the second. still had to wait for my biopsy because it’s arbitrarily important in diagnosis, fine. I asked if we could do a capsule endoscopy instead because I have extreme tenderness i...
  6. I got Lyme disease 10 years ago around the time when all of my symptoms really started to crop up. I definitely had symptoms before but not nearly as severe. It took 6 years to get diagnosed and another 2 years to get it treated. I have been thinking about whether Lyme has something to do with Celiac getting so bad
  7. Holy cow, I just got the quest lab results that were done a few weeks after the first one, so more gluten exposure. My TTG IgA was high at that point, as well as my total IgA. biospy is Wednesday... maybe it’ll come back conclusive for celiac and I will finally have an answer to a lifetime of illness
  8. This has been a lifetime pursuit to try and figure out my stomachs issues. This is my first time having the DGP tested, and had the imaware screen. It came up positive but negative ttg IgA. Based on my reading, and yes I’m aware that the gold standard is DGP is only for immunodeficiency patients, it seems like DGP is very accurate but is less often used b...
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