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Gemini

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  1. Upvote
    cyclinglady
    Gemini got a reaction from cyclinglady in Latest bloods ,EMA neg but TTG borderline ?   
    The fact that your blood work has normalized is a good thing.  You are doing a pretty good job with the diet, if these tests were a lot higher when diagnosed. Are these the only two tests your doctor ran?  They are a part of a panel of ...
  2. Like
    Scott Adams
    Gemini got a reaction from Scott Adams in Blood Test Results HIGH?   
    Ahhhhhhh........that changes everything!  😉. With a high positive tTg and a positive EMA, you have a 99% of it being Celiac.  It probably should be 100% but you know that doctors cannot give it the 100 without actually seeing it on bi...
  3. Upvote
    Gemini
    Gemini reacted to Scott Adams in Blood Test Results HIGH?   
    I find it strange that your doctor would instruct you to go gluten-free while at the same time referring you to a gastroenterologist. You do need to be eating gluten daily for at least a couple of weeks before doing a biopsy, and going...
  4. Like
    GFinDC
    Gemini got a reaction from GFinDC in Blood Test Results HIGH?   
    JD........low white cell counts are common in autoimmune disease.  Mine were very low for my entire life ( I am now 61) and they have gone up to almost normal range now once I had been gluten free for awhile.  It did take a long time f...
  5. Upvote
    Gemini
    Gemini reacted to RMJ in Rice -- tips for safest brands/types?   
    Lundberg has certified gluten free rice. I don’t know if all of their rice is certified but a lot is.
  6. Upvote
    Gemini
    Gemini reacted to docaz in Is it worth getting a second opinion?   
    The term gold standard is used for endoscopy but I am not sure that one can really apply it because the gold standard entails that it is the best possible way to confirm or to refute a diagnosis. I think that an endoscopy can only confirm...
  7. Like
    Scott Adams
    Gemini got a reaction from Scott Adams in TTG-IgA testing - any insight?   
    Yeah, good luck with that! There are few doctors who really understand Celiac and how to diagnosis it correctly.  According to their criteria, they want you to advance to severe damage because then they can find it more easily.  Meanwhile, yo...
  8. Like
    frieze
    Gemini got a reaction from frieze in TTG-IgA testing - any insight?   
    Yeah, good luck with that! There are few doctors who really understand Celiac and how to diagnosis it correctly.  According to their criteria, they want you to advance to severe damage because then they can find it more easily.  Meanwhile, yo...
  9. Upvote
    Gemini
    Gemini reacted to trents in Could the RA Medicine XelJanz let Celiacs Eat Gluten Again Intriguing New Research   
    "While these results are encouraging for patients with celiac disease, the authors caution that potential side effects limit the use of tofacitinib to refractory disease only."
    1. The percentage of celiacs with refractory disease...
  10. Upvote
    Gemini
    Gemini reacted to Scott Adams in TTG-IgA testing - any insight?   
    I can’t speak for other forums, but the info in this forum, which has outstanding long-term moderators, is very good, especially with regard to celiac disease testing. 
    I actually hear far more horror stories coming from bad doc...
  11. Like
    notme
    Gemini got a reaction from notme in Is it worth getting a second opinion?   
    Cyclinglady.......
    It’s funny you should mention looking to older photographs regarding the fitness levels of people back then vs. today.  I have long said that also.  Not only are the food habits today really bad, but people just...
  12. Like
    notme
    Gemini got a reaction from notme in Is it worth getting a second opinion?   
    It might be my age showing here but if you are that worried about the food supply, you are going to have a tough time with this diet.  I am 61 and have been gluten-free for 15 years, long enough to know that you can eat processed gluten-...
  13. Like
    notme
    Gemini got a reaction from notme in Is it worth getting a second opinion?   
    There is a lot of misinformation here that I wanted to address.......and this comes from someone who has been diagnosed and successfully gluten-free for 15 years.
    You can safely eat processed, gluten free items and heal.  It ...
  14. Like
    Scott Adams
    Gemini got a reaction from Scott Adams in Is it worth getting a second opinion?   
    I don’t think that the issue of raw ingredients needing to be 100% free of cc matters.  If people think that they need to consume 0% gluten, then they will be relegated to eating fruits, veggies and meat only.  I don’t think that it is ...
  15. Upvote
    cyclinglady
    Gemini got a reaction from cyclinglady in Is it worth getting a second opinion?   
    There is a lot of misinformation here that I wanted to address.......and this comes from someone who has been diagnosed and successfully gluten-free for 15 years.
    You can safely eat processed, gluten free items and heal.  It ...
  16. Like
    ravenwoodglass
    Gemini got a reaction from ravenwoodglass in Positive antibody a year ago now negative 34 weeks pregnant   
    I’ll add my 2 cents worth into this and no, I am not a doctor.  Being pregnant suppresses your immune system to an extent.  We have had people on here previously, I remember, who had GI problems pre-pregnancy, got pregnant and felt much...
  17. Thanks
    cyclinglady
    Gemini got a reaction from cyclinglady in Tabs of acid and gluten   
    Not to beat a dead horse here BUT the use of the word shaming is getting incredibly old.  Giving people examples of why they should not mess around with hard drugs is not shaming, it is common sense advice.  But there are people who c...
  18. Upvote
    Gemini
    Gemini reacted to notme in Things to do while in corona virus quarantine!   
    lolz!  I can make a chat bot!  it's just gonna say, "I know you are, but what am I.....?" ????
    I would take anything free from apple, I graduated high school with laurene, hahahaaa
    I am gardening - got half of my herbs in...
  19. Upvote
    Scott Adams
    Gemini got a reaction from Scott Adams in Coronavirus more susceptible to celiacs?   
    I agree, notme.  The only illness I have had in recent years was norovirus and I got it from close contact with my mother-in-law before she was symptomatic. Honestly, the virus was nothing compared to the week I hit the wall with undiagnosed ...
  20. Like
    notme
    Gemini got a reaction from notme in Histamine Experience   
    Hello cyclinglady and notme!
    So good to hear from you both!  After reading your posts, I remembered that the insect bite problem happens to me also.  Mosquitos became an issue and the bite site would swell up and turn bright r...
  21. Like
    notme
    Gemini got a reaction from notme in Histamine Experience   
    To all of those who are having issues with hives......I have been a member of this forum for a long time and thought I would share my experience with the hive problem.
    Starting about 6 years ago, I started having a problem wi...
  22. Like
    knitty kitty
    Gemini got a reaction from knitty kitty in Histamine Experience   
    To all of those who are having issues with hives......I have been a member of this forum for a long time and thought I would share my experience with the hive problem.
    Starting about 6 years ago, I started having a problem wi...
  23. Like
    icelandgirl
    Gemini got a reaction from icelandgirl in Histamine Experience   
    To all of those who are having issues with hives......I have been a member of this forum for a long time and thought I would share my experience with the hive problem.
    Starting about 6 years ago, I started having a problem wi...
  24. Upvote
    cyclinglady
    Gemini got a reaction from cyclinglady in Tabs of acid and gluten   
    Why would anyone be supportive of someone who is openly telling people they are going to drop acid?  That is not judgemental at all, it is common sense.
    I have a cousin who was a young adult in the 60’s, when a lot of people di...
  25. Upvote
    icelandgirl
    Gemini got a reaction from icelandgirl in Lab Testing Significance Question   
    NNowak......
    Geez.......and I thought I had a bad experience!  ?. How horrible you had to endure such arrogance from the GI crowd!  Your post was well written and very typical of how people with potential Celiac are treated.  ...
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