Kate333

Wow!! Thanks for sharing, KK. That gives me HOPE. I would be ETERNALLY GRATEFUL if my even some of my physical/mental symptoms improve that quickly with extra B/magnesium!!😁 I try not to blame my docs for not FIRST recommending a course of extra vitamins etc. They weren't taught about it...

Hi again. KK. How many days/weeks/months??? before you noticed an improvement in how you felt after beginning all those supplements? I asked that Q in my earlier note... Apologies for such a long-winded earlier note.😉

If you are losing weight you should consider SIBO or Refeeding Syndrome presenting as a Celiac Crisis.... Here is a study about it....entitled "Refeeding syndrome in adults with celiac crisis: a case report" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5791168/ Thanks for the comments...

Hi again KK. Thanks for your great words of reassurance, wisdom, and experience. I will definitely give that higher B1 dose a try, esp. knowing small risk of damage due to overdose (as can happen with other vitamins). Did you really notice an improvement after ONLY 3 days on B1?! Awesome! Could...

KK...I also forgot to mention that I take both daily multivitamin and B complex supplements. B complex pill includes 3 mg. of B1 and I also try to eat foods high in Bs every day. What triggered your "CC"?? Did you experience that rapid weight loss (and digestion issues) BEFORE you were dx...

Thanks KK for reading/commenting/posting these article links! I know TD is a popular issue of discussion among holistic med community folks...However, my labs all show normal vit./mineral levels--including all the "B"s. I also have really IBS/stress/sleep issues, esp. bad since this pandemic...

Hi Tamin8, I use "Minute Rice" (both brown and white, widely available in the USA where I live) because it is clearly labeled "CERTIFIED Gluten Free" which means (I think?...feel free to chime in here Cycling Lady) it has undergone a higher safety standard of review than packaged products only...

Not much fat at all. For breakfast, I usually have eggs, some potatoes (plain or sweet), a veggie. Use to include processed lunchmeat but stopped that after I read about all the "fillers"/additives in them. For lunch I have one piece of freshly-cooked meat (chicken, salmon, or steak), rice (or...

Hi NGT...I share your symptoms and experience (celiac disease + IBS symptoms). I was dx with "possible" celiac disease (blood test elevated but biopsy normal) last year. Doc recommended I try gluten-free diet. I did. Despite the gluten-free diet my gut--esp. BMs--has been on a wild, IBS-like...

Did anyone here suffer noticeable weight loss either BEFORE or esp. AFTER your celiac disease diagnosis and beginning gluten-free diet? That has become a BIG issue for me, despite being strictly gluten-free for 6 months. Yesterday, I had 2 small sirloin steaks, potatoes and veggies yet STILL LOST...

Thanks CL. Did you suffer noticeable weight loss before or esp. after your celiac disease diagnosis and beginning gluten-free diet? That has become a BIG issue for me despite being strictly gluten-free for 6 months. Yesterday, I had 2 small sirloin steaks, potatoes and veggies yet STILL lost...

Thanks Corinne.

Interesting NIH study...but I noticed it says she was using oral and topical steroids and, later, a gluten-free diet at the SAME time she had acupuncture...So perhaps not quite accurate for study authors to imply acupuncture was the definitive reason for her symptom resolution. Mind you, not slamming...

I have been struggling with chronic...ummm.. ahem..."digestion/BM" issues. (D every morning and C every evening--sincere apologies for graphic description). Doc thinks it may be IBS/anxiety (on top of celiac disease). I have also been on a "low fodmap" gluten-free/dairy-free, soy-free diet for...

I have also used acupuncture in the past with great success but primarily for physical pain issues. GDH is different than acupuncture: more like deep meditation/relaxation protocol. That seems pretty logical as the gut is frequently called "our second brain". I notice in times of great stress...