Ann--Marie

On 7/1/2020 at 2:39 PM, MiserableMe said:

I was diagnosed with DH a while back. I have A LOT of drug allergies. My dermatologist prescribed me Ketoconozole, which did absolutely nothing for my rash. I have it bad on my stomach, butt, groin area & elbows. I’ve haven’t seen any articles about anybody having it on their stomach. Any suggestions for relief? My Cotton panties irritate!

bentonite clay mixed with apple cider vinegar

On 9/22/2020 at 12:17 PM, TheDHhurts said:

Hi folks,

I can’t seem to shake DH. I was diagnosed a few years ago, but first noticed it approximately a decade ago. Since diagnosis I’ve doubled-down on the gluten free lifestyle. I prepare my own food and rarely buy anything processed, and when I do I do my background research to make sure it is gluten-free. My dermatologist put me on dapsone a couple years ago. I’m weaning myself off of it so only tend to use it when I have a DH breakout. I do notice that my breakouts are milder now. They still hurt and are gross looking, but they are smaller in size and go away and heal much quicker. I typically don’t notice any other celiac symptoms (digestive etc) when the DH breaks out.

My DH is most noticeable on my face. I’ll get a red bump on one temple, and when it heals I’ll get one on the other temple. Mirror imaging. It hurts, and it looks like I’m going through puberty again (I’m in my late 30s) It’ll last a couple weeks, but the peak of it only lasts a couple days usually. As I mentioned above, before diagnosis and the use of dapsone, the DH bumps would grow much larger, would last for much longer, and were even more painful. (So, there has been some progress!)

I don’t know why I keep breaking out. I am very strict about what I consume. I live alone and don’t share my cooking space, utensils, kitchen, etc. I don’t get as much sleep as I should, and occassionally get stressed at work, but I don’t know if these should be factors if I actually am eating gluten free. I’ve wondered if the recurring rash could be something other than DH, but have no idea what else it could be.

In terms of medication, I take dapsone as needed. I am using the following supplements, as advised in order to cover nutritional gaps caused by my limited diet (in addition to being gluten-free, I follow FODMAPS due to IBS). Pure Encapsulations: Magnesium (glycinate) Vitamin D drops Thorne: Meriva-HP MegaFood: Men’s One Daily multivitamin Sisu: Calcium & Magnesium 2:1 NutraSea HP Omega 3 fish oil Recently, I’ve used the following over the counter medication: Life Brand Diphenhydramine Hydrochloride capsules 25 mg

I eat simply. Unprocessed chicken, beef, and sometimes pork from the local grocery store. Lots of potatoes, carrots, oranges, ginger, some greens that I grow myself. Some other fruit or veggies on occasion. I eat Only Oats cerfitifed gluten free oatmeal, and I’ll sprinkle it with nutritional yeast from Bob’s Red Mill. This BRM product is marked gluten free, and is produced in a gluten free facility. Other BRM products I use on occasion (with the same gluten-free protocols) are their millet, sorghum, and the Mighty Tasty Hot Cereal.

I primarily drink water. I drink a cup or two each day of tea from Traditional Medicinals. (I emailed them and they say all of their products are now gluten free. I mostly stick with their green tea or peppermint.) Sometimes I’ll have a locally-produced kombucha (they self-label it gluten free).

I wash my face with Adasept, and apply product from The Ordinary (only items they self identify as gluten-free) and CeraVe (from the tub). I use Colgate toothpaste. All of these are supposed to be gluten-free. I use Blistex Lip Medex, and Blistex Ultra Protection or Metholatum if I’m going to be in the sun and need SPF. According to the emails I sent/received these products are all gluten-free.

I use olive oil, and Himalayan pink salt (the salt doesn’t have any additional ingredients).

I’m struggling to find the “hidden” gluten in here. I need to figure out why I’m still breaking out with DH because its persistence is very demoralizing, unsightly, and painful. I would appreciate any of your insight or help here. Are there any other resources I should access re: this?

get rid of the nutritional yeast , and kale if that in the greens list. look for other hidden iodine. Iodine has been known to make breakouts much more severe. and... i cannot have oats, they have a different form of gluten that you could be sensitive to. you could also try a food sensitivity test, usually DO, or chiropractors, sometime nutritionists, sometime nurse practitioners, and usually any place advertising " functional medicine" good luck

14 hours ago, aiellokrista said:

 

To be honest, my blood test was normal & I had flattened villi.  I was diagnosed with celiac disease in 2010.  Unfortunately, the best test for dx is to go through the "gluten challenge" where you would need to load up on gluten for 2 weeks before an endoscopy.  That is the true marker for celiac disease.  That will truly show what's going on in your intestine.  That's not to say that there could also be something going on with your gallbladder, needing to be on a fodmap diet, etc.  celiac disease can also cause food sensitivities, lactose intolerance.  I had difficulties with other foods after I was dx'd and had to cut out other foods and had to do Paleo for quite a while until I felt better.  There is also gluten in medications, if you are taking any, or you could be gluten intolerant.  You may want to check out out www.glutenfreedrugs.com.  It's a great resource.  It's great for over-the-counter medications also.

Thank you so much!

you have to get the granola from the gluten free isle

I went gluten free for a week and felt amazing. I had a piece of bread and went down for 2 days. then i went gluten free and felt great and had creme brûlée took me out 2 days. now I'm waiting for my appointment in 4 days. I know that these foods make me sick. I read that quitting gluten can mess up the blood test. should i continue to eat even though it will make me very very ill? will it really make my tests not right? please advise.

i read that going gluten free before the blood work can mess it up? I am sure that i have a problem with gluten. I went gluten free for 1 week ( actually complete whole food, vegan) for a colonics appointment. i felt amazing. then after the appointment , i had a piece of bread. I was down for the count for 2 days. then I decided to go gluten free, then i ate creme brûlée and again was down for the count for 2 days. I made an appointment that is 4 days away. I know if i eat gluten or dairy i will be very sick but I don't want to mess up the test results. please advise .

smoothie bowl: endless combinations , but my current fave is: blended mango topped with sliced banana, strawberry, coconut flakes, chia seeds, and gluten-free granola...yummy!!