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ptkds

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About ptkds

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    Central Texas!!

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  1. Hello all! I used to be pretty active on here but life got in the way of that over the last few years! I have 4 dds, and the 3 younger ones were all diagnosed years ago. I also have it.

     

    Anyway, my 13 yr old dd was dx when she was six. At the time, she was skin and bones, but no outward symptoms that I really noticed. But when my younger dd was dx, I had all of us tested and hers was positive. So I took her off gluten. Over the next couple of years, she would have a violent reaction to even trace amounts of gluten.

     

    A few months ago, she begged me to let her have gluten. I finally caved, fully expecting her to get sick and learn her lesson. She never got sick. She has been eating gluten for 2-3 months without a problem. I have recently banned gluten for her again, and she is very unhappy about it. Now she is begging me to have her retested and claims that she doesn't believe she ever had Celiac. I insisted that she was in that teen remission that some teens go through and the gluten was probably doing damage to her body.

     

    Then she just spent a week with her grandma and grandma has convinced her that Celiac disease isn't that common in families and that the "Teen remission" only lasts a couple of weeks. We don't have a dr that's very knoweldgeable about Celiac.

     

    What do I do?


  2. I pack lunches for my 2 younger kids and sometimes my 11 year old dd. Here's the usual contents: bag of chips (cheetohs, funyuns, lays, etc), fruit cup, pudding cup, juice pouch, and an udi's sandwich (if we have the bread).

    In my experience, Udi's never needs to be toasted. It's great right out of the bag. If it's frozen, just wrap in a paper towel and thaw it out some. No need for the moist paper towel IMO. We also occasionally do leftovers in a thermos. My little ones also enjoy hot dog weiners, but my 11 yr old is embarrassed to eat those at school.

    You can also pack salads, fresh fruits or veggies, cold pancakes, baked potato with toppings on the side, etc.

    It's time to think "outside the box." Get creative and let her help you figure out some things.


  3. http://www.click2houston.com/news/Can-foods-help-children-with-ADD-ADHD/-/1735978/8474254/-/b70s0u/-/index.html

    I just saw this video on a Houston news channel. My dd was just diagnosed with ADD and started on a med. Of course she is gluten-free, but she isn't soy free or dairy free. The meds have really helped her though and she might have a chance of passing 1st grade now that she can focus on her work.

    What are your thoughts?


  4. That's pathetic. I've brought outside food into restaurants a few times and I have never had a problem. People need to be more understanding to others with disabilities. It's not like they brought McDonalds in because they didn't want pizza. I'm sure that little boy would have loved to have eaten the pizza. It's people like that that make living with food issues so much harder.


  5. I didn't really care for the Betty Croker brownies either. I use a cornstarch brownie recipe that is VERY good and very simple. I don't remember where I got it, but here it is:

    1 stick butter

    4 oz unsweetened baking chocolate, broken up

    1 1/3 cup sugar

    3 large eggs

    1 1/2 teaspoons vanilla extract

    3/4 cup corn starch

    Heat oven to 350 degrees.

    Line an 8 or 9 inch square baking pan with foil. With rubber spatula stir butter & chocolate in saucepan over low heat until melted & smooth. Turn off heat, whisk in sugar, eggs & vanilla. Stir corn starch into batter with rubber spatula just until blended. Spread in lined pan. Bake 25-30 minutes. Check for doneness at 25 minutes by inserting a toothpick near the center of the brownies. It should come out with little moist crumbs clinging to it. Cool completely in pan on wire rack. To remove brownies from pan - lift by ends of foil. Cut into squares.


  6. My daughter and I are going on a retreat with her choir in a couple of weeks. I am only going to cook for her and make sure her food is safe. However, I was just informed yesterday that the choir director just found out she has Celiac, so now I will be cooking for the 3 of us. I need ideas! We need 2 breadkfasts, 3 lunches, 2 dinners. Plus desserts, treats, etc. I do not know yet what everyone else is having, and I am not sure what resources I will have available to me, so I may need to pack some cooking items :(. I was thinking of bringing a loaf of bread and maybe a coffee cake. But I need simple, delicious ideas for lunch and dinner. Help!!


  7. I have 3 daughters that have it. Luckily, they are young and I control their diets! My mom has celiac, and we suspect her 2 sisters of having it. However, they refuse to get tested because they feel that they couldn't do the diet anyway so there is no point. It is frustrating, but you have to remember that you can't control thier lives. Just agree to disagree!

    Good luck!

    ptkds


  8. There is this brand of condensed soups I have found at HEB's called Tasty classics. It is a product from Canada. I think they have it as one of their generic soups. I find them on the bottom shelf. It is a light gray can. They are gluten-free. They aren't labeled gluten-free, but there is no gluten on the label. We use this brand and it always turns out wonderful!


  9. Did Delicious N'Fit in Dallas (Plano) really close? Their website is gone and I found a little thing on a website saying they are closed indefinetly due to financial reasons.

    My family is planning a trip to Dallas this summer to take one of my daughters to camp, and we were all looking forward to eating at this restaruant. I feel like crying:(.


  10. I haven't been on here in a while, but I just need to vent to those that understand!

    My 4 yr old dd has a range of health issues. She has been having blood on her poop for a while so another dr wanted her to see a GI. Well, this is a new GI because the old one left :(. He told me that he doesn't really think my dd (or my others for that matter) actually have Celiac. I KNOW they have it. I don't care that they weren't scoped. They improved so much after going gluten-free. He then told me I should have them retested so that they will know whether staying gluten-free would be a requirement or a "lifestyle choice". Like I would choose this rotten lifestyle (sorry, not too happy about a gluten-free lifestyle!). He suggested that I put her back on gluten for 2 weeks and then do an endoscopy to "confirm" Celiac disease. He also wants to do a colonoscopy to try to see what the cause of the bleeding is. I don't have a problem with that (at least not too much!)

    First of all, she has been gluten-free for 3 years. She will not have enough damage after only 2 wks to show up positive on an endoscopy. That is my 1st clue that this man is clueless. Second of all, she has a bleeding disorder. Why put her through some unneccesary testing that could cause her to bleed out? And third, he wasn't the dr that made the diagnosis. He didn't see my kids back then. Why does he think he has to change that diagnosis?

    IMO, if she feels the need to "challenge" the diagnosis when she is an adult, then she can. But I will not knowingly give my 4 year old poison just to make the dr happy. She is a very happy child, and she is healthy!

    I hate it when dr's act like this. It is just so frustrating! GGGGGGRRRRRRRRRRRR

    Ok, I'm done venting for now!!


  11. It is a big deal. Try to ignore them and do what u need to do for your child. My husbands family is the same way. One of my kids doesn't sweat (plus celiac and 2 bleeding disorders), and they keep downplaying that and saying that she is fine and that we shouldn't be so worried about her.

    You do what YOU need to do for your child and ignore what they say. I know it's hard, but you have to try. This disease does change EVERYTHING. I have 3 daughters with it, and sometimes I think about their weddings, and all the other events in their lives where food is involved. Celiac affects everything.

    You are not alone. Just stick to your mommy instincts and do what needs to be done for your child. That is what he needs right now.