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  1. I hear you completely! I was diagnosed on friday.. I spent saturday getting drunk (I was in Atlantic City... Free drinks and Gambling get me going!) Sunday crying, and yesterday bingeing on my fave gluten products. Today started my gluten free life, I already gave into a potatoe chip that i didn't check to make sure it was ok, and a girl scout cookie. It's only 2pm!

    Last night as I was enduring the big D as is usual when I eat Gluten, i asked myself... is this worth eating gluten? I have to admit, I'm not sure. But this is what i'm doing. I'm giving myself 3 monthes. In those 3 monthes I will re-evaluate how much i'm missing gluten products vs how much better I feel.

    I think I owe it to myself to find out how good I can feel without it vs how much of my addiction to gluten is "carb addiction".

    Okay - carb addiction? I think there is such a thing as sugar addiction, but that's because carbs essentially become sugars. You NEED carbs for your brain to function, as well as other things, so I personally think one should eat at least as many grams of carbs as they do protein.

    Secondly, VERY few potato chips have gluten in them. most of the Lay's chips are gluten free, Dirty Chips, WISE chips and I'm not sure but I would be surprised if kettle chips have gluten.

    Potato chips are one of the few things that are enjoyable when you can't eat gluten.

    But they ain't gluten. It doesn't give me the same high.

    If you're denying yourself gluten that is one thing. If you're denying yourself ANY kind of carbs, that is almost impossible, not to mention unhealthy, to stick to.

  2. Wow thanks so much for your comments. they have made my morning!

    Carla, as far as being 100% sure I'm gluten-free, are you saying that because you didn't experience negative symptoms when you quit gluten? Cause I read that only 50% of people get an opiate-like effect from it. Seems to me that if you're not in that 50% you're going to feel great when you go off gluten....

  3. IN HELL....

    when I don't eat gluten. More and more I am aware of the "opiate-like" qualities of gluten. I JUST CAN'T GIVE THIS STUFF UP. And by now means am I weak-willed. I have given up smoking (3 packs a day), sugar, alcohol, even caffeine (the hardest) - but gluten IS SO HARD to give up.....

    Being that I have not received an official diagnosis, should this be seen as a sign that gluten is bad for me?

    When I go gluten free, here are the things I experience, if anyone can relate, please let me know:

    Paler skin

    Moderate to severe depression

    Lack of sexual desire

    Decreased ability to get erections (embarrassing but I'm being honest)

    Loss of hope


    HAS ANYONE experienced any of these after going gluten free, and at what point did those symptoms go away? The longest I have been able to go gluten free is probably 10 days at the most................

  4. Hi, any feedback greatly appreciated.

    I have been struggling for the last 2 years with the whole gluten thing.

    The thing is - I can't figure out if I'm gluten intolerant or not. I tested negative on a blood test from my doctor, but that failed to convince me.

    I realize that Enterolab does testing and I might fork out the $250 to get the test but until then I was curious if anyone could relate to this...

    My symptoms, if any, appear to be very mild. It's not like if I eat a piece of bread, I instantly get any symptoms. More that, over time, it SEEMS as though I get symptoms, most notably a foggy, depressed thing, sore eyes, and teary right eye. However, I am aware this could be psychosomatic or a function of OCD OR something else such as candida etc... These symptoms could conceivably be a result of anxieties. I used to have OCD and a lot of people are telling me that my concerns about gluten are really my OCD....

    The ONE THING I know is when I eat gluten I feel psychologically very good - does anyone else have this feeling? I am on a high. I seem to look a little better also. It is definitely an anti-depressant. If it makes me feel good, how can it be bad? Maybe because it's like an opiate? But what does that mean?

    My basic problem is I can't tell if I feel good when eating gluten because it's an opiate that I'm addicted to OR if I feel good because I'm not giving in to the "false messages" of OCD and hence I am more relaxed.

    When I go gluten-free, after about a day or so I start to get really irritable - could this be a sign of withdrawal? Or just misery cause I have trapped myself in my OCD cage again?????

    I just started going to a shrink who works at the world's leading OCD clinic and she can't tell me the answer!

    I am caught in a repeating cycle of thinking I have gluten intolerance one day and then thinking I don't the next day, and it is causing me a great deal of stress and turmoil.

  5. Wow thanks everyone for responding so fast. I just checked out the enterolab website and it looks like it can't hurt. Yes, I have tried the gluten free diet - I can only manage about 3 days at a time, it SEEMS like I felt a little more "steady" I guess after about 3 days, but my mood was bad - beyond irritable I would say more like simmering rage. So to counteract this depressed rage-filled mood I would give in and get myself a delicious turkey sandwich a bran muffin and a few bottles of Guinness! the rage was gone and I felt relieved. I would tell myself this gluten thing is in my head. But then a couple of days later sure enough I would start feeling like crap again. I guess I have to give it more than 3 days, huh? I live in NYC in the entertainment biz and having to find gluten free food on the go is a MAJOR PAIN. Gluten free for life would be a major pain - no eating out, no convenience eating, meal planning every day. for example, dates are restricted to starbucks or a bar - no dinner. As far as asking chefs if the meal is gluten free, forget it - you can't trust that. But there are worse things. Maybe diabetes is worse - although I don't know. Diabetics can eat crusty italian bread. <_<

    dingogirl my thyroid is fantastic, thanks for asking. :)

  6. Hi I would greatly appreciate any feedback on this. I know you are not doctors, but here's the story - I tested negative for celiac, but apparently there is something called "gluten intolerance" which is not as severe as celiac and the symptoms are more benign/subtle. And I wonder if I have it. Maybe somebody could offer some feedback? or if it sounds familiar?

    Basically my symptoms (which led me to test for celiac) are:


    Eye twitching

    Feeling run down occasionally

    Watery eyes

    Lowered athletic ability

    Exhausted all the time

    Legs feel like lead sometimes

    Get shaky/weak, especially when i have eaten sugar or fruit juice or when i am stressed out.

    Hair seems dryer than it was in the past

    Skin seems dryer, doesn't feel supple, feels more "uncomfortable" somehow

    I love bread and beer with a passion... :) rice and wine just is not the same and never will be

    Please note I don't have the usual diarrhea/constipation and stomach pains that are the "classic" gluten symptoms. That is why I am confused.

    Adrenal fatigue seems to match my symptom list - i read that gluten intolerance can cause adrenal fatigue.

    then i read that gluten has opiate-like qualities. wow. for some reason that resonated with me. beer and bread are kind of my go-to foods when I'm feeling bummed out.

    Health wise everything else is fine. But I KNOW I am not fine. Or I could be a whole lot better let's put it that way. And the doctors - well, they wait until you're really screwed up before they do anything. After all, they've got sicker people to deal with.

    THANK you in advance to any replies.!!!