I just happened to come across this forum today while searching for an answer to my symptoms. I am 25 years old, and have dealt with this horrifying sickness for 3 years now. I have been to 9 different doctors, had 4 colonoscopies, 2 endoscopies, 2 surgeries...and NOTHING!!! Both surgeries ended up showing 2 totally seperate problems. My persistant pain is on the left side, but they found a tumor on my right side in my colon and removed 2 inches. I appreciate that but it hasn't helped the probelm I went to the doctor for in the first place. No one can give me an answer to what the heck is wrong with me! I'm so frustrated! Every time I have another CT scan or any other test, I know what the result is going to be before they call (NOTHING), but I still just cry anyway. I guess I'm hoping they will eventually find something so I'll stop feeling crazy! That's exactly how I feel...like I've just plain lost it and am making it up! But I know I'm not! I hurt. I just plain hurt. I'm tired all the time, the pain is persistant, sometimes I have a lot of blood in my stool, and on occassions, like last Thursday night, I have these episodes. I will feel this excrutiating pain, throw-up, pass out, sweat a river, then have diarhea. When it's over, which is usually about 30 minutes, I feel fine... just tired.
Doctors have blamed it on IBS but I feel like that is just a way of saying "there's nothing wrong with you, get out of my office." My sister has IBS and doesn't feel like I do. I went on South Beach Diet, which cuts out sugars and breads, and felt a little better, so my doctor did the blood test for Celiac, but it came back normal.
When I was younger (about 15), I had a problem with my platlet counts and white blood-cell counts getting dangerously low. At the same time, I would get what seemed like 100 mouth ulcers and was unable to eat or drink anything. I eventaully grew out of that, but they were never able to find out what was causing it. It just makes me wonder if it's not all related somehow.
Someone please tell me...am I crazy? I read some of the forums today and just really felt like I wasn't alone anymore. I felt like there are people out there just like me. I just don't know what to do next? I've been tested for this and that and everything in between. I'm tired of being poked on. I just want an answer. I'm really getting depressed to the point I don't even like myself. It's really hurting my self-esteem. Please help!