Celiac.com Sponsor (A1):

Celiac.com Sponsor (A1-m):


Advanced Members
  • Content Count

  • Joined

  • Last visited

About girlfromclare

  • Rank
    Star Contributor

  1. I use three bowls, one full of gluten free flour, the second full of beaten egg (as long as there are no egg alergies), and third one full of gluten free breadcrumbs. cut up the chicken breast into nuggets, second roll in the flour until coated, next dip it into the egg and then the breadcrumbs. then place them onto a baking tray and cook in the oven... serve with thai sweet chilli sauce and savour!!mmmmmmmm

  2. Colin is gluten free and has been since birth, by choice. We are having the genetic tests done in June, but even then he will live a gluten free existance, as gluten in any form is not allowed in my house. But thanks for the info. If he was getting CC, I would be sick too, we eat the same things and share most of our food...

    oh well that explains that then! Well the terribe twos are fairly hard work at the best of times. i find with my daughter who is just going through them herself, that ignoring the crying and starting to look at something else or pointing out something to distract her is working quite well. i used to do all of those things with my son but they never worked as he would just keep crying anyway. Dairy is a huge mood swinger with my son too and we had to take him off it completely!

    By the way a handy trick is to have things they like at hand - but good treats like raisins or strawberries or whatever you think is nice but without being goodies because then it becomes bribary and theyre so clever that they would start doing it just to get the goodies!! But some fruit or something like that, that they like is brilliant to lighten the mood...

  3. I know that this is meant to be the 'anything but celiac' space but just a thought, is he celiac or is that you or some other member of the family that is celiac since you are in this website? Cause my son is a celiac and his main symptom was constact whining... im talking all day every day about every little thing!!! You could barely say hello and he would start to cry. it was very frustrating and i often spent days crying myself until we realised the problem was celiac... if he is already on a gluten-free diet perhaps it is cross contamination? Sounds like any child who does that much crying is feeling frustrated for some reason that they cant explain i.e. pain... or discomfort. It drove my little boy mad from age 1 upwards... thank god he is a different child off the gluten but if he has even a tiny bit, the crying comes back!!! the terrible twos is one thing - but one can normally tell if it is a temper tantrum or just constant unexplainable crying...

    good luck... oh and you arent a bad mom... i thought i was for three years until i found out, when my boy was four, that he was suffering all the time and it wasnt my parenting skills... or lack of...


  4. It is my experience (though Im no expert - others on this board are much more experienced than me) that blood work in very young children is rarely accurate. If you get a positive result from blood tests in a child under 5 or in anyone actually, then there is no doubt that they have celiac however negative blood results, esp in children, dont always mean anything. It is hard to detect despite what some doctors say, My son had all the symptoms, behavioural and severe mood swings, no weight gain, pale skin, low immune system (not fighting anything) and problems with dairy products i.e. vomiting etc. He had negative blood results and i personally didnt want to put him through a biopsy as he is only five. I spoke to the celiac specialist who said its up to me and that if he was really reacting well to the diet, id have my answer. months on and he is gaining weight, he is healthier looking, he is happier and all round our lives have changed as a result. I suppose what im saying is that its a personal thing. If your children react well to the diet then perhaps that is all you need... although tests are always a good thing as they can rule out other problems too. I recommend you talk to a celiac specialist about this. other posters will be able to tell you how long you need to be on gluten for signs to show. some people say months! I wish you luck with whatever you decide and dont worry as all the mothers and fathers on this site have been through this particular dilemma

    good luck

    liz ireland

  5. Yes cross contamination is a tough one... and with our son, his reaction is to get really cross, cantakerous and downright angry so that makes cross contamination even tougher in our house... we know instantly as his mood is so quick to change. It keeps us on tenderhooks as we hate his mood to change especially if we have people over or friends staying or whatever...

    We use a separate toaster... we do our level best to keep utensils and knives etc as far away as possible from anything being used with gluten in it. All that sounds like it would be really tough but its not after a while it kinda becomes routine... and it doesnt have to take over you life... althought eating out or going away for the day is a bit of a pain in the bum.. we have to pack two or three meals for our son to bring with us. Also I got rid of playdough. I just wouldnt take the chance as it is completely made of flour so if you think about it, there isnt much point in doing all the other stuff in avoidance of gluten, i.e. the sepearate utensiles, butters etc if you are just going to turn around and let him play directly with flour... see my point? anyway that floam stuff is really cool. My son loves it - also it doesnt stink like i think play dough does... and it is really mallable. Hours of fun (and thats just me!!)

    Hope all that helps.. good luck

    liz x x

  6. If your child has had a lot of symptoms then you will really be relieved to see the results of the diet. It is marvellous. Our little boy was four when we put him on the celiac diet. He had behavioural and mood issues, very low weight and no weight gain at all in the past two and a half years, he had low immune system, very pale and was getting everything going.. after a few months on the diet his mood completely changed, he started to put on weight, he got healthier looking and happier... he was a different child. Beware of cross contamination. It will probably happen a bit until you get a handle on the diet... buy a different toaster!!! Thats a real important one.. it caused all sorts of problems for us with crumbs crossing over from our bread to his.. now he has his own toaster and it is so much better. Once you have had a few weeks to absorb all of this it wont seem so bad.. whereabouts are you living? You can get some great gluten free food... oh and watch out for dairy products. a lot of celiacs (most I think) have problems breaking down dairy and it can cause reactions until the intestine has had a chance to heal. might be no harm to rule it out for a while until you have got things under control and perhaps then you could re-introduce it back into the diet. I really hope you get on ok anyway. good luck and this is a great forum for asking questions or just reading back on old posts to get information.

    Good luck

    Liz (ireland)

  7. Thanks everyone,.. a few months back, when I first put our son on the diet, my husband decided to try it for a few days... while my sons symptoms (which were more physical i.e. weight, anemia etc and behavioural than relating to bowl movements) dramatically improved almost straight away, my husbands gastro symptoms seemed to get drastically worse for those few days... i tried to explain to him that perhaps this was normal i.e. that things might have to be worse before they can get better... but he took it as something not being right and went back onto his own diet again. Thing is, he is incredibly supportive of my sons diet and does see the benefits there... but if he tested positive things would be a lot easier... and then his sister and their kid might also get tested on the strength of it.

    Oh well!!

    Thanks ever so much everyone...



  8. I am so shocked. My son is a celiac - not an official diagnosis as I didnt want to put him through the biopsy but celiac specialist is in agreement and his response to diet is phenomenal. So my hubby has always had terrible stomach - lots of celiac symptoms. He would vomit most days, has reccurent diahorrea, bloating, really bad gas, sore back, sore joints, fatigue etc etc. I have been pushing him and pushing him to get tested and so he did - blood tests didnt show anything - he was delighted but I wasnt convinced... so pushed him to get the biopsy - now the biopsy hasnt shown anything either... I am so surprised - again he is delighted of course. I dont want him to be diagnosed as having anything of course but I do want his miserable symptoms to stop and I thought that this was the answer esp considering our son. I also know that one of his sisters has extreme celiac symptoms and although I have said it to her I am worried that she wont pursue it. I am worrying about her health and that of her son who also displays signs.. but its hard to get them (inc my husband) to take this seriously without an official diagnosis. thats what I thought we would have.. I feel so sorry for my husband who will have to continue his life spent 'on the toilet bowl' as he is stubborn and loves his breads etc too much to take that leap of faith. I dont want to push this anymore with any

    of them but I only hope that they will take it upon themselves to look into things further before it gets very serious.

    They all mean so much to me,

    Sorry, I guess I just needed to rant.

  9. My son gets overwhelmingly cross; everything upsets him... we can always tell when he has had some form of cross contamination because he will come in to a room and if someone even says hello, he is grumpy and crying... banging things around the place, generally a nightmare. He will also complain of stomach ache but it is never generalised... kind of all over so I think (as he is only 5) that he just cant voice exactly whats wrong - that he feels horrible all over. Thats my reading of it but boy does he get mean and cranky!!! We try to avoid cross contamination at all costs!!!

    By the way I have read in tonnes of places on this board and on other sites that children (and adults) with celiac suffer from canker sores (or blisters) in the mouth... so sounds definite to me.

  10. I dont think anyone means being small is a problem other than their concerns that their child might not be growing or gaining weight healthily. My son was two stone four pounds until he was five.... hadnt gained a pound in two and a half years... then out of the blue, after about two months on the gluten-free diet, he gained five pounds.... we were thrilled! We had never worried about him being short or skinny, but we wanted him to be healthy!!

  11. Diary issues often go hand in hand with celiac disease due to the small intestine being damaged by celiac and not being able to produce the right enzyme for breaking down dairy. My son is about five or six months gluten free now and is still completely off dairy as he had bad episodes from dairy products but once the intestine has healed some doctors say that dairy can be re-introduced into the diet as the intestine can handle it then. If he is celiac then your son obviously will have other intestinal issues relating to the damage cause by the celiac. I agree with other posters, remove dairy for a while, as it is very harsh on our stomachs anyway - see how he gets on after a couple of months and maybe reintroduce it to see if it causes any more problems. There are lots of dairy alternatives out there - i know it seems hard at the beginning but if you are already doing gluten you might as well do the dairy too. a lot of gluten free items are dairy free also because they are so commonly linked.

    Hope this is of some help.

    good luck


  12. My son is also gluten and dairy free. Dark chocolate is naturally dairy free - if you go to your health food shops they will have dark chocolate eggs and many of them will have it marked on the egg that it is both gluten and dairy free. Dark chocolate is slightly bitter but still sweet and my son loves it! Make sure that it has a high percentage coca and that will ensure it is dairy free but ask the assistants to make sure.

  13. As many people on this site would tell you, it is often difficult to diagnose celiac disease and lots and lots of people will have had completely negative blood tests. There are often false negative blood tests but if your results mentioned not being able to eliminate celiac disease that suggests to me that celiac is an issue and should be looked into. A biopsy would certainly tell you more but if you have already started going gluten free and thus started healing, there would be little point in a biopsy as it wouldnt be able to find anything. you need to be eating gluten for quite some time for it to show damage in the biopsy. But with the end results being the same i.e. a gluten free diet, and seeing as you feel immediately better without gluten, then I would continue if I were you. There are lots of celiac people on this board who have self diagnosed.

    Good luck anyway

    Liz (ireland)

  14. My son was a nightmare from when he was tiny! He used to cry and whine all the time and the "episodes" as we used to call them, were morning, noon and night.... these episodes were kicking, screaming, bursting into tears over absolutely nothing... really loud, really cheeky, really cross all of the time. We were pulling our hair out in frustration by the time we finally figured out celiac disease. He is five now and is finally a calm and happy little boy. As long as he is completely gluten free, the crying is practically non-existant and the lashing out, kicking and screaming (like a child possessed) has disappeared. He is socially more interactive and making lots of friends now and doing normal boy stuff. His weight has put back on (he hadnt gained a pound weight in two and a half years - his two year old sister was beginning to pass him out) All round, we firmly believe that his behaviour was controlled completely by the celiac disease. I have since read that the chemical reactions caused in the gut when it is in distress are called neuro toxins and they cause little ones to go 'mad' cross etc.... For adults it prob results in the depression and anxiety we hear so much about (I dont have celiac disease myself so not sure first hand)

    Anyway, for what its worth, if you have celiac disease and your kids are displaying such clear and obvious symptoms, I would take it as a given that they are celiac children and just put them on the diet. But perhaps its good to have them tested in case there are any other issues needing dealt with.

    Good luck with it all.

    Liz (ireland)

  15. Thank you!! Hubbie hasnt been gluten free at all yet. I told him to stay on it as much as possible until he gets a result either way. His blood results showed nothing but the celiac specialist told us that didnt really mean anything. Hopefully she will take multiple samples like you suggest. Our son is obviously a celiac and has had huge results on the diet so we are pretty sure hubbie is the same.

    Thanks for your reply!

    Liz x

  16. Hi Just to add that if you have been positively diagnosed as celiac and now your daughter is displaying symptoms I would take it as a given that your daughter is a celiac. Put her on the diet... anyway, your bloods came back negative four times before it was spotted by biopsy. I was talking to some celiacs at a clinic the other day and one mother was diagnosed celiac thirty years ago... three of her children consistently had shown symptoms since they were very small. She didnt even bother getting them tested but knew in her heart they were celiacs just like her. She put the whole house on gluten-free diet just like her and everyone started thriving - and the mood in the house was much much better. Its worth doing I think..

    Hope this helps x x


  17. Hi everyone,

    I went with my husband to his first consultation with a celiac specialist yesterday. She thinks its a very strong possibility that he is a celiac. Especially going on the leaps and bounds our son has improved on since starting his gluten-free diet and also considering his long list of gastro issues! Anyway, she has scheduled him to come back for his 'tube test' which a presuming is the endoscopy... but how much does that tell? What is the procedure here? And does the biopsy come after this? What is the procedure for the biopsy? I am a bit confused about all of this... and would welcome any one shedding a bit of light on it for me... hubbie is a bit nervous now about everything. I want to put his mind at rest. Also, if this tube test shows damage... can he then decide that he is a celiac and not bother with a biopsy?

    Thanks everyone!!!

    Liz x x x x

  18. Hi, my son has been off dairy since before he was diagnosed celiac because of his gastro symptoms. He used to have projectile vomiting and his stools were a pale white colour instead of what they should have been. He didnt have much by way of constipation but if there is one thing I have learnt during this journey its that everyones symptoms can be different. Since removing dairy a lot of his gastro symptoms stopped but it wasnt until we removed gluten as well did we see the full picture! He started gaining weight - stopped being sore and miserable all the time etc etc... Dairy intolerance often goes hand in hand with celiac and I would remove it if I was you to see how he reacts...

    liz x x

  19. Hi,

    My son is dairy intolerant and celiac. We discovered the dairy first though... once we took him off dairy, the projectile vomiting stopped and also his bowl movements became solid and for the first time in his little life they took on a proper healthy brown colour as opposed to the pale white they had been previously. Although removing dairy from his diet did stop most of his gastro issues, his mood swings and unexplained crying did not stop. It wasnt until we discovered that he had celiac disease that everything started to fall into place. Apparently the enzyme that breaks down dairy is produced i think in the small intestine - if the small intestine (the villi) is not functionind i.e. if you have celiac disease, then it makes sense that you are suddenly not producing the necessary enzyme for breaking down dairy and then you will have problems digesting it. Its not as terrifying as it originally sounds. My son drinks soy milk which doesnt bother him at all, he has his own butter, his own cheese, his own ice cream which is gorgeous!!! His own bread etc due to celiac and a lot of celiac foods will be gluten free and dairy free as well as manufacturers are beginning to realise that they tend to go hand in hand now.

    Hope all of that is of some help,

    Good luck x

  20. Celiac stinks yes but so do lots of other disease that are much worse than this and much harder to cope with. You are lucky that celiac disease can be handled by diet and not medications or worse... I wouldnt have chosen celiac disease for my son who is four years old but he is so wonderful on it... he isnt sick any more... he has gained weight for the first time in two years and he has lots of cool treats that he can have - gorgeous biscuits and cakes that I like to sneak myself. I know it can be hard to be different and hard to not be able to take the things we love but as a teenager i used to love being different from everyone else. I relished it! Think of it as something that makes you special and makes you stand out from the crowd! You will be happier and healthier on the celiac diet... and if you have things to get off your chest, you've found the perfect place to do it as everyone here can empathise with you!

  21. Im afraid I dont know very much about hypoglycemia but I often did wonder might my son be a sufferer. He is celiac but sometimes when he hasnt eaten he just loses it... gets very cross and irritable. .... anyway, isnt hypoglycemia somehow related to diabetes? and isnt celiac carried on the diabetes gene? Sorry this is a very unhelpful post just asking you questions instead of helping out... apologies... but it made me think!

    Best of luck - someone with more to say will probably post soon.

  22. Hello everyone,

    I just wanted to post how happy we are. Our son Mark who we put on the gluten-free diet about two months ago and showed immediate results regarding his mood swings, has finally suddenly put on weight. Mark has been just over two stone since he was two... he is nearly five now and has for the first time in those two and a half years has gained 4 lbs... !!!! So excited. Also a cyst that was on his lower eyelid for months and months has finally started to heal also. His appetite is improving every day and he is beginning to show interest in different foods. All of this is like a different child to what we have been dealing with all along.

    Thank you to everyone on this board - those who posted to me directly and those who didnt because every post, even reading those by different people with similar problems, have helped me through coping with this disease and making sure that we did everything correctly for our son. My husband has his first consultation with a celiac specialist on valentines day!

    Thanks again everyone,

    Liz (Ireland

  23. Hi and poor you... I feel for you and your son.. Well, it certainly sounds like a gastro issue and could well be celiac disease. OUr son is dairy intolerant too and at first we had just eliminated dairy (have to be strict and check labels on everything when doing this and include caesin as it also causes problems re:dairy) But what I was told (prob here on this board not sure) was that the enzyme needed to break down lactose, is actually produced at the tips of the villi in the intestine, the very part of the intestine that suffers damage as a result of celiac disease... so it would add up that most celiacs are dairy intolerant also as a result... some find that this goes away as the villi begin to heal while on the gluten-free diet, others dont... but it certainly explained the diary problems to me. My son also has problems with sugar... which I also believe is related to celiac disease... good luck anyway.. and as the others have mentioned, make sure your son is on gluten until such a time as you have had him tested - that is if you want to have him tested as it is a personal choice but if he does come back negative, perhaps try the diet anyway as false negatives seem to be common - my son was and yet his life changed on the diet.. and so did ours!

    best of luck

    Liz Ireland