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About GraceA

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  1. Thanks everyone for your input. We had a family meeting earlier today. I proposed to my son that we go gluten free at home, except for a couple of products--bread and spaghetti. He doesn't care about bread any more or spaghetti--he's never eaten any except his own. Like I said, I've eaten all this stuff myself and don't feed him stuff I find "yucky." Anyhow, he said that would be great. The main thing is, no treats he can't eat. I think you guys hit it on the head, especially the little girl who said he needs to feel the same and safe at home. (Sorry, I lost track of who said what.) My older daughter can be nasty about missing out on "regular" food. But I think she finally understands the importance of this. Also a local lady with a little boy his age contacted me from my posting, so he can look forward to meeting him soon. I haven't resisted the diet on purpose. I don't mind, except when I'm in one of my anti-cooking phases. I have depression, and there are times I hang on by a thin thread. So what, right? Suck it up. Anyhow, we mostly just eat rice and potatoes and corn in avoiding the wheat during regular meals. I have to accept I'm not going to make bread from scratch and keep trying new mixes. I bought a pizza dough mix from the Gluten Free Pantry--their stuff is usually good. I wish I had tried to contact some other people with this issue in their lives sooner. I've felt alone for the past 5 and a half years. And so has my son. >>I refuse to cook 2 meals and given that my choices are so limited, I figure they can suck it up for one meal a day.<< This was one of my mistakes. I have made two meals often during this adventure. So no wonder I resent cooking! I was also caring for my mother in law, who made an issue of eating the meals. They bored her. Make that cooking THREE meals. Now she's living in a care center, so it's not so big a deal. I never said the family hates the food. Somehow that got injected in here from other posts. However they do hate the pasta (I like it), but that was the one thing my son said doesn't make him jealous. I'm going to continue eating the pasta with him, as I have for the past year while nursing my baby. In fact, as I came off the diet to start challenging the baby's system, I feel awful. I plan on staying on the diet. But he got it from my husband's family. Four documented generations of celiac. DH doesn't have it, but his sister does. His uncle, aunt, second cousins, etc.
  2. This is what I want to do. But I know I'm up for a battle. It's OK with me. The one year old won't object. The 11 yo and DH aren't going to be easy to persuade.
  3. My little one was diagnosed with celiac before he was two. Now he's seven, and things aren't going well right now. Anyone with school aged kids have any ideas? He's depressed. He hates being different. I'm trying hard to be strict on his diet--he get horrid DH rash when he cheats. But I was slacking for a while hoping he'd cheer up. The opposite happened. And he's sneaking more stuff. Real life situation: Bought him gluten-free oreos. Family had "real" ones. He was sneaking the actual oreos and now won't finish the package of gluten-free. I've been on and off his diet too, while nursing him and his little sister. So I've tasted all this stuff, and these cookies were GOOD! The only reason I bought actual oreos for myself was the expense of his. Didn't want to "waste" them. I hate cooking. I have tried setting up stuff for gluten free, but a lot of times he won't eat it. The family hates it. I'm tired of it all. Hm. Maybe I'm depressed too. We also have pantry moths and they like to burrow into his gluten-free flours, etc. I do better with buying Pamela's mixes or the Gluten Free Pantry mixes right when I need them. But then if he wants something and I don't have anything on hand, he's tempted to cheat. Everyone else is eating pancakes, I don't want potatoes, I'll just sneak a pancake. I cook him a lunch every day and deliver it. He has snacks at school. So even though he feels yucky about being different, school's not so much the problem (although he's quit eating his lunch 50% of the time). It's at home. On the bright side, only 11 more years until he gets to be responsible for this himself. Woo hoo! I contacted the local children's gluten free support group today by email. Will that help, if he meets some other children with his disease?
  4. To stop the vomiting, I would imagine (suppository). This was probably a reaction to anesthesia. My DH did the same after eye surgery years ago. He was SO SICK.
  5. I've been there, TCA! I love this board! My 7 yo son is gluten intolerant. He was so ill that he nursed until he was nearly 3. I went on the diet as soon as a doctor told me I had to--two doctors told me not to at first, but he wasn't getting well! My daughter just turned 1, and I have been gluten free this past year, just in case she has celiac as well. Now I'm eating wheat and letting her eat it to see what happens. But I feel like crap, so I'm going back off it. Gas, diarrhea...and the gluten intolerance was from my DH's side of the family!
  6. Gave my son's teacher a microwave for the classroom. She can use it too and not have to fight staff in the teacher's lounge!
  7. My son also lived on yogurt and breastmilk--thank god I hadn't weaned him yet! Rice Krispies are tricky, because if he's got celiac, you have to watch for malt flavoring--that's made of barley. If it's an allergy vs. celiac, then it doesn't matter if he has barley. Not all brands of rice cereals have barley in them, disguised as "malt". Watch the labels.
  8. My opinion is, don't make your baby sick! I figured out on my own what was wrong with my son, when he added vomiting a couple of hours after eating to his chronic diarrhea. But when I nursed him, he didn't throw up. And we have a family history. He also had dermatitis herpetiforma. So I took him off the gluten to the best of my ability without getting much medical help. He got better, but it was slow. He did start talking again, and walking (he was 15 months when he started the vomiting). At 18 months, his pediatrician did a blood test for the antibodies. They were extremely high. He sent me to a pediatric gastroenterologist. We got in around 20 months old. He was still having diarrhea 2 or 3 times a week, but was now talking up a storm. The new doctor wanted to put him on the gluten again to do the biopsy, and I refused. She'd told me that it would take three months of "poisoning" him, then do the test, then six more months until he really got his guts cleaned out again. I told her I wouldn't do it. I didn't care if it was the gold standard diagnosis. I refused to make my baby sick. She said she thought that was a good idea, but maybe at 3 or 4 we could do the tests. I said sure, but in my mind, I was thinking no way. He's seven now, and I still haven't done it. I never will, unless there's a dang good reason. He can do it when he's a grown up if he wants to.
  9. YES YES YES YES YES!!!! Of course I can't tell you whether your individual kids are suffering from Celiac related delays. However here's the story of my son: I didn't introduce wheat into his diet AT ALL until a year. He was 15 months old when he started vomiting a lot. He'd had diarrhea for several weeks, and I'd been told it was just a bad virus. I figured out the celiac on my own--it runs in my DH's family. But I didn't figure it out until the vomiting started, a bit after every meal. He was still nursing, so that's how we were getting by. He'd just quit eating table food for a couple of days after the vomit, and nurse and eat yogurt exclusively. I noticed he stopped trying to talk. At fifteen months he'd been babbling and trying to communicate. Then he stopped walking. Then he mostly laid around, not interacting with us at all. Sure that was partly because he felt so bad. But not even crawling or making baby sounds? I was worried. The doc did a blood test for the sprue antibodies and they came back VERY high, so we went to a pediatric gastroenterologist. When I talked to her about the development issues, she said that one of the indicators on his blood test was a specific low enzyme. It's a developmental enzyme. When your intestines are damaged, you can't absorb the enzyme. And development gets retarded. He's now seven years old and perfectly normal developmentally. So don't get discouraged!
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