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:::::::: _____________________________________________________ We proudly present our 2009 FUNDRAISER & 3rd GLUTEN FREE VENDOR FAIR The largest gluten-free consumer event in North America!!! Over 50 gluten-free vendors selling their products! (most vendors will have samples and some will accept credit cards) ________Date: ____Sunday, April 26, 2009 ________Time: ___ 11:00 am

The L. Lodico Walk for Celiac Disease When Sunday, June 1, 2008 at 9:00 AM 20080601T130000Z Where Little Bay Park Cross Island Pkwy and Utopia Pkwy Whitestone , NY 11357 Organized by Details Please join us for the Second Annual Walk for Celiac Disease! A portion of the proceeds will go the Celiac Sprue Association. Click here for more information and directions: http://www.glutenfree... http://www.glutenfreeforever

ear R.O.C.K. Memebers, Our next meeting will be on October 29th from 7PM-8PM at the Lynbrook Libray. We are having a guest.Jackie from the Youngs Chefs Academy School in Merrick will be joining us and speaking with us in setting up possible future cooking classes for the children.Bring along the kids in a costume.We will be having Halloween treats and gift surprises!!

LONG ISLAND CELIAC SPRUE SUPPORT GROUP DATE FRIDAY OCT 19 2007 TIME 730 PM PLACE WINTHROP UNIVERSITY HOSPITAL OUTREACH CENTER LOCATED AT 101 MINEOLA BLVD MINEOLA NY BETWEEN 1 AND 2ND ST wE WILL BE HAVING A "LIGHT" CATERED DINNER BY Dr b weLL nATURALLY HEALTH FOOD STORE, LOCATED AT 8 Washington AVE Plainview NY 516 932 9355. wE WILL BE COLLECTING $10 AT THE DOOR ON THE NIGHT OF THE MEETING FOR THE "LIGHT" SUPPER. our SUPPORT GROUP WILL BE PICKING UP THE BALANCE OF THE DINNER. pLEASE E MAIL CATHY CURRARO AT CATHYSPRU@AOL.COM OR CALL HER AT 516 437 3271 , TO LET HER KNOW IF YOU will BE ATTENDING. wE NEED TO GET A COUNT TO THE CATERER AS SOON AS POSSIBLE. Lynn Newman CLINICAL NUTRITIONIST WILL BE A GUEST SPEAKER AT OUR MEETING. Lynn HAS OVER 25 YEARS OF EXPERIENCE AS A nUTRITIONIST. sHE WILL BE LECTURING TO OUR GROUP AND A SHORT QUESTION AND ANSWER SESSION WILL FOLLOW. tHANK YOU Lynn Thomas kRUMMENACKER , OWNER OF OUTRAGEOUS FOODS, WILL ALSO BE coming TO OUR MEETING. hE WILL BE BRINGING PIZZA TO SAMPLE AND TO PURCHASE. tHANK you TOM! wE WILL HAVE LOTS OF HANDOUTS REGARDING GLUTEN FREE RESTAURANTS,UPDATES ON DIFFERENT FOOD PRODUCTS,ETC jIM cALLAHAN 516 794 1654 1964 LINCOLN AVE E mEADOW nY 1154 cATHY CURRARO 516 437 3271 846 WASHINGTON ST FRANKLIN SQUARE NY 11010 pS THE MEETING IS NOT FAR FROM THE MINEOLA TRAIN STATION FOR ANYONE FROM THE CITY.

Now something good - a reminder - Dr. Peter Green will be our guest speaker next week, Tuesday, October 2nd. The talk will be in the auditorium (front of the building) and we will have four vendors in the cafeteria for afterwards. There will also be samples from an additional four vendors. Obviously, we will need some help with this month's meeting. We will need people to collect the admission fee, sell Dr. Green's book, help set up and clean up in the cafeteria. If you can help out, please be at Higbie Lane as early as possible. We have Dr.Green scheduled for 7:30 pm and would like to start right on time. His talk will run about an hour and then everyone can go to the cafeteria for coffee and check out the vendors/samples. The price is $5.00 per person. Please make every effort to attend - this is a fund raiser - all proceeds will be given to the Celiac Disease Center and our group will match all admission fees and donations. See you next week. Barbara Pepitone Suffolk County Celiacs

[When: Sunday, October 14, 2007, 9:00 AM 20071014T130000Z Where: Rye High School 1 Parsons Street Rye , NY 10580 Info/Map Description: Colin Leslie is an extraordinary 15-year-old that was diagnosed with Celiac Disease in 2005. He is extremely active in his campaign for Celiac Diease awareness in his community and is organizing his second Colin Leslie Walk for Celiac Disease. I am very impressed by Colin and his community service. This is no easy event for a support group of adults to pull off, let alone a high school student. The first Colin Leslie Walk for Celiac Disease in 2006 raised over $62,000 for the Celiac Disease Center and had 422 people in attendance. I would love for our NYC Celiac Disease Meetup group to help make this year's walk even bigger and better. Transportation to Rye will not be provided by the group but you can take Metro North from Grand Central to Rye, NY. Depending on participation from the group, carpools may be arranged. You must register for this event at Colin's website. Everything you need to know about the 2007 Colin Leslie Walk for Celiac Disease can be found at the website: http://www.colinlesli... PLEASE REGISTER TODAY!! Schedule of Events 8:45 a.m. - 5:00 p.m. Registration Open: Outside Parking Lot 9:00 a.m. - 5:00 p.m. Bagels & Lunch (gluten-free, cash only) 10:00 a.m. The Colin Leslie Walk for Celiac Disease Begins. You can pre-register at www.colinlesliewalkforceliacdisease.org 9:00 a.m. - 12:15 p.m. Family Screening (morning): Multipurpose Room (You must pre-register by 10/1 for the family screening at http://www.celiacdise...) 9:00 a.m. - 5:00 p.m. Sponsor Exhibits: Gymnasium 9:00 a.m. - 5:00 p.m. Gluten-Free Vendor Fair Open: Gymnasium 11:00 a.m. - 12:00 p.m.(includes 15 minute Q&A) Session I What is Celiac Disease? Peter Green, MD Professor of Clinical Medicine College of Physicians and Surgeons Columbia University Medical Center Director, Celiac Disease Center at Columbia University 12:00 p.m. - 1:00 p.m. (includes 15 minute Q&A) Session II Celiac Disease in the Pediatric Population Amy DeFelice, MD Assistant Clinical Professor of Pediatrics College of Physicians and Surgeons Columbia University Medical Center Celiac Disease Center at Columbia University 12:45 p.m. - 3:30 p.m. Family Screening (afternoon) 1:00 p.m. - 2:00 p.m. (includes 15 minute Q&A) Session III Gluten-Free Diet I Anne Lee, MSEd, RD, CDN Celiac Disease Center at Columbia University 2:00 p.m. - 3:00 p.m. (includes 15 minute Q&A) Session IV How Should a Celiac Patient be Followed Medically? Peter Green, MD Professor of Clinical Medicine College of Physicians and Surgeons Columbia University Medical Center Director, Celiac Disease Center at Columbia University 3:00 p.m. - 4:00 p.m. (includes 15 minute Q&A) Session V The Gluten-Free Diet II Anne Lee, MSEd, RD, CDN Celiac Disease Center at Columbia University 4:00 p.m. - 4:30 p.m. Q&A with Celiac Disease Center Staff skip to: page content | links on this page | site navigation | footer (site information) The Colin Leslie Walk for Celiac Disease 2007 Celiac Disease Center at Columbia University The Westchester Celiac Sprue Support Group Vendors This list gets updated daily so please check back often. Everybody Eats Juice Plus Dreamery Creamery Pamela's Products Food-Tek Inc. Celiac Chicks Xocai Chocolates Against the Grain Bon Appetit-Without the Wheat Foods by George Goody2Chews Pioneer Nutritional Formulas Inc. LesserEvil Brand Snack Co. Whole Foods The Kitchen Table Bakers Maxwell's Kitchen Bob & Ruth's Gluten Free Dinning & Travel Club Food for Life Full Flavor Foods Inc. Breads from Anna Garbo Foods Freeda Vitamins

suffolk county nyOur next meeting will be held on Tuesday, September 11th at 7:30 pm (delayed one week because of Labor Day). This meeting will be dedicated to answering as many questions as we can about Celiac Disease. So, if you are newly diagnosed or are a "seasoned" Celiac, bring your questions, problems, comments, gripes and anything else you can think of and we'll try to help. We'll talk about foods, restaurants, doctors, online vendors and whatever else comes up. We will also be giving you an update on what's going on with the group and what's in store for future meetings. We will have two guest vendors: Keith Kohler from Core Naturals Nutritious Creations - a gluten-free cookie company located right in Bay Shore It will be a very informative meeting and we look forward to seeing everyone there.

Everyone, If you were at the last meeting, you already know about the Balloon Festival. If not, let me recap. The Suffolk County Celiac group will have their own booth at the Festival. It's being held at Calabro Airport on LI, on August 10, 11th and 12th. We will be distributing material on Celiac Disease and also have some gluten-free foods for samples. In addition, we have an opportunity to make some money at this event by volunteering at one of the concession stands. Here's a brief explanation on how it works: To participate in the Balloon Festival, all we need are bodies to prepare and serve. They will provide tents, equipment, food supplies and management. They will resupply the booth during the day. Products are simple stadium style that require minimum preparation so no experience is necessary. Locations require 10 or 12 people per day DURING PEAK TIMES. Our organization will receive 10% of the GROSS SALES from each location we staff which should average $2,000. Parking, admission and meals are free plus you will be able to enjoy the whole event. The hours of operation are: Friday, August 10 - 5:00 pm to 10:00 pm Saturday, August 11 - 10:00 am to 11:00 pm Sunday, August 12 - 10:00 am to 8:00 pm The Peak Times are: (this is when we need 10 to 12 people at the concession stand) Friday, August 10 - 7:00 pm to 10:00 pm Saturday, August 11 - 4:00 pm to 11:00 pm Sunday, August 12 - 12:00 pm to 6:00 pm This will be a great opportunity for us to make some money and have some fun. Please let me know if you can and will participate and the days/times that you are available. Any questions, call me at 631-957-2885 or Les Doti at 631-724-6651. Barbara Pepitone Suffolk County Celiacs Any questions, you can call either me at 631-957-2885 or Les at 631-724-6651. Barbara Pepitone Suffolk County CeliacsMeeting Schedule from August 2007 to July 2008 August 7, 2007 ? (Tentative) September 11, 2007 October 2, 2007 November 6, 2007 December 4, 2007 ? Holiday party January, 2008 ? No meeting February 5, 2008 March 4, 2008 April 1, 2008 May 6, 2008 June 3, 2008 July 1, 2008 west islip senir center at 730 pm

Just another reminder the R.O.C.K.. Meeting is Monday evening , June 25th from 7PM - 8PM at the Lynbrook Library.There will be refreshments and snacks.We encourage to bring children as we again had a great turn out last time and it was great support for them having each other.Please bring any information you might like to share with the group, recipes are always great to share!Looking forward to seeing you all!

I HAD MADE THAT SUGGESTION AFTER SEEING NY EVENT. CONTACT THEM AND ASK THEM. I THINK YOUR CONCERN IS VERY IMPORTANT.

I WENT TO THE ONE IN NEW YORK I AM NOT A CELIAC MY EIGHT YEAR OLD IS. I VOULENTEERED TO HELP. I WORKED HARD TO HELP SERVE THE FOOD. THERE WAS FOOD SERVED AND WINE AND BEER. THE FOOD WAS PRETTY GOOD. IN NY IT WAS OVER 200 PEOPLE. MOSTLY CELIACS AND FRIENDS AND FAMILY. I HAD A GREAT TIME. I THINK EVERY ONE ENJOYED THEMSELVES. IT IS ALSO A FUNDRAISER. WHAT WOULD DINNER AND DRINKS COST YOU ELSEWHERE? PLUS YOU SOCIALIZE AND FIND OUT dRS ETC PS I THINK NY WAS SOLD OUT. LET US KNOW HOW IT WENT. IF I HAD THE ENERGY I WOULD GO FROM NY.

Description: The Westchester Celiac Sprue Support Group is pleased to announce its participation in the Sixth International Walk for Celiac Disease. Our Walk will be held at Rockland Lake State Park along a 3-mile path in a beautiful wooded area. We invite you to join with us and thousands of other Walkers, in cities across the U.S. in supporting this great event. Location: Rockland Lake State Park, Congers, N.Y. The Park is on Route 9W, 3 miles north of the Tappan Zee Bridge Date: Sunday June 3, 2007 Time: Registration - 9:00 A.M. Walk Start - 10:00 A.M. There will be plenty of gluten-free snacks and beverages. We will have resource information on hand especially helpful for newly-diagnosed Celiacs. There will be a raffle, with many great prizes. T-shirts commemorating the event will be distributed to all participants. Registration fees are $15 for adults and $10 for children. For a Registration Form/Pledge Sheet, email Arlene and Cliff Blaker at cblaker@millerblaker.com. Also, if you need directions to the Park, let us know and we will help you get there. Over the last five years, the Westchester Celiac Sprue Support Group's participation in the International Celiac Walks have raised more than $100,000. Those proceeds were donated to fund research at the University of Maryland Center for Celiac Research and at the Celiac Disease Center at Columbia University. Please join with us June 3 to help make a positive impact for Celiac Disease Arlene & Cliff Blaker cblaker@millerblak http://www.westcheste...

The last posting is a group that meets in nyc at different resturants. Today the Nyc group had a meetup in Queens a walk. I live in suffolk and go to the suffolk groups and the Nassau groups. I also go the NYc group I have made three of there events. I find these groups and this board helpful. http://celiacdisease.meetup.com/1/ I see wescheste group has a walk coming up soon.