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Debbie44

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About Debbie44

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  1. You have all been so helpful...thank you. I can feel your concern that I might not continue with the diet, but of course I will. She does eat completely gluten free, except for the occasional infraction, and I do know that there has been improvement in her health. It is helpful to know that a negative biopsy result doesn't rule out the findings of the blood work. We actually have the book, Special Diets for Special Kids, and we still use many recipes from it. We have tried going completely Gluten-free Casein-free, but I wavered because it was very restrictive for her, had limited results, and was never actually prescribed by any physician. I'm trying to teach her to read ingredient lists and look for things that will be harmful to her, instead of me being the food police and saying "No" to everything. We have had success with that. As a serious chocoholic, she will be thrilled to try any good brownie recipe!
  2. Thanks for your thoughts...I think I just assumed that she would have a stomach ache or some other symptom immediately, but I guess that's not always true? She's only done this "sneaking food" behavior a couple of times, not often. Maybe I need to get all of her test results and review them with a GI person in our area now, and ask some more specific questions. I also think that the dairy slips into her diet more often than gluten, and that might be causing some intestinal irritation as well. I think I was counting on some kind of negative reaction to the foods to help me to keep her compliant with the diet when she makes food choices on her own.
  3. I thought this was a site for information and shared experience, not judgement. I have cooked faithfully and separately for my daughter for years. Cooking pots, collanders, toasters, etc. At Thanksgiving, there are two separate turkeys, stuffings, etc. I make many things from scratch, and always make sure she has equivalent treats if feeding the rest of my family something different. My family does not always enjoy the gluten-free foods, and I see no reason to limit their foods when it is not necessary. That is our choice, and not the reason for my question. I wondered about why, if she has celiac disease, there are no ill effects when she does eat something she's not supposed to eat. I just thought someone might have some helpful information.
  4. My handicapped daughter, age 21, was diagnosed as having celiac disease a few years ago. Her blood test results were highly positive, and her GI specialist wanted to do a biopsy just to confirm, even though he said it was highly probable that she had it. The biopsy was negative, even though she continued to eat a full gluten diet. His advice was to put her on a gluten-free diet anyway. We have done that, (also dairy free) and her once very bloated stomach is now much better, with less diarrhea. The question, she can sneak into the kitchen at night and eat an entire pan of regular brownies with no ill effects, and my husband questions whether we should continue this difficult and restrictive diet, watching for every crumb and grain of wheat?
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