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janie-b

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About janie-b

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  1. Thanks for all the interesting discussion, folks. I'm in my fourth day without gluten, and have had no more of these little bumps. I'll continue with this and see what happens next week. Do people who have DH not also have the digestive symptoms of celiac? Because I do have some of those symptoms, and there has been some improvement this week since I changed my diet. I am much less bloated in my abdomen than usual. J
  2. Thank you, Denise. I had read somewhere earlier today that iodine can trigger DH as well. Question: if iodine triggers outbreaks of DH, are there many people who have it who also have thyroid dysfunction? Iodine is really important to healthy thyroid functioning. Luckily for this particular situation, I have already cut out table salt, and monitor sodium in my diet very carefully because of blood pressure issues. I have never gotten into the habit of taking Advil - aspirin is my headache/body ache remedy of choice. I'll bet that maltodextrin can sneak up on you, though. I remember seeing that in a lot of different foods. Janie
  3. I signed up as a member of this website last year, when after doing some research I decided I probably have celiac. I went gluten-free for about a month, during which time my symptoms got much better, but then got worse again. Once they got worse again, I decided I was wrong and went back to eating gluten. Well, here we are, a year or so later, and I think I'm celiac again, because I'm pretty certain these outbreaks I've started having on my hands and arms are DH. I've looked at all kinds of dermatology websites with pictures, and read descriptions of everything under the sun. I think I have DH, and I think that confirms what I thought last year, that I am celiac. My symptoms probably got worse again back then because I inadvertently ate something with gluten in it. The way this started was with a single itchy spot on the inside of my second finger. Absent-mindedly scratching that spot led it to develop into a blistery-looking pimple that itched like there's no tomorrow and was sensitive to the touch. I popped the pimple and a watery liquid came out. A few days later I had another spot on the next finger. Then one on my second finger on my other hand. Then one under a ring, then two or three on my forearm, then one on my palm, and yesterday I found three spots under my watchband. It is definitely getting worse. With all these spots, liquid will come out of them for several days, and they stay tender and itchy for several days before they start to heal up. I have stopped the gluten again as of about lunchtime yesterday, and will see over the next few weeks if these outbreaks decrease or stop. I have crappy insurance, and can't really afford doctor bills right now, so I have to do what I can on my own. Do you have any advice? Thanks, Janie
  4. Hello, all, I'm back to give a quick follow up. I haven't had a chance to be around to read much this week, but hope the weekend will allow for that. I've been off gluten for five days now, and am noticing many differences (improvements) that in the past I had attributed to my low-carb diet. The swelling in my ankles, feet, and legs has decreased markedly. My whole digestive system is calmer, and I do not feel bloated at all after I eat. In the five days I've been eating this way, I have only had to take my Prilosec twice; the other three days I have been just fine without it. I have much less "brain fog" as well, and generally feel more energetic, less achy. I didn't realize how achy I was all over. I am also having almost no food cravings. The one strange thing I've noticed is that I am so sleepy by about 9 p.m. that I just cannot stay awake. It has been my habit to stay up until at least 11, so this is really unusual for me. I also noticed just a little bit of irritability for two days, but that appears to be gone today. Also, I have lost five pounds this week. I am very overweight, so this is definitely not a bad thing. It will be interesting to see how this progresses over the next few weeks. I am comfortable eating this way, and it seems much less restrictive to me than the low carb lifestyle. There are many things I can eat now that I have denied myself for a long time. I am happy to have peas, rice, potatoes, and corn. The recipe I came up with for cornmeal breakfast bread is keeping me happy when I want something on the run, or something that resembles a sandwich. All in all, this has been a very encouraging week for me. Mother Goose, thank you for your e-mail. I will respond properly very soon. Best regards, Jane
  5. Thanks everyone for your responses, and for making me feel welcome. I have been reading some of the threads...I had no idea that the potential exposure went beyond food. I will start checking everything, and continue to read. Best regards, Jane
  6. Hello, all. This is my first post in this forum, and I guess I'll find out over the next few weeks/months if I really need to be here, but I sure think I do. I've been taking Nexium/Prevacid/Prilosec for the last couple of years, and suddenly a month or so ago it stopped working in the middle of the afternoon. I'm feeling all bloated and burpy again. I was complaining about this yesterday, and my husband asked if I'd ever been tested for Celiac disease. He heard an episode of People's Pharmacy on NPR discussing Celiac. Well, the more I read up on this, the more it seems to fit me. In the 36 hours that I've been without bread, I already feel like a different person. My symptoms are the obvious ones of bloating, burping, lactose intolerance, and flatulence, as well as some that are not so obvious...depression, very dry and thin skin, easy bruising, huge appetite. I look much older than I am (I'm 51, and at least once a week someone in a store will ask me if I'm eligible for the seniors' discount). And I hope not to be too gross about this, but I would be mortified if I had to have a bm in the bathroom in someone else's house. It is unpleasant in the extreme. My digestion has always given me problems, but it's gotten progressively worse over the years. At one time I could control it by limiting fat intake, but about five years ago that stopped helping. I finally talked to my doctor about it, which was when I started taking GERD medications. They've helped with the burping and bloated feeling until recently. I also had gall bladder problems about 3 years ago and had the laparoscopic surgery to have it removed. At about that same time I started taking fluoxetine (Prozac) because I was teary, worrying myself to death, and having a terrible time concentrating at work. I am not fond of doctors, and my medical insurance stinks, so I'm going to try the gluten-free diet and see how I feel over the next few weeks. But like I said, I already feel better. Oddly enough, the "nibbles" that I ALWAYS have are gone already. That may be all in my head...maybe, and maybe not. If it turns out that this diet really helps me, do you suppose I can eventually do without the Prilosec and Prozac? Does anyone have experience with this? Any pointers for someone starting out on their own? Is it risky for me to do this without the involvement of my doctor? I like my doctor, but sometimes I think they're all about trial and error, and in this case, I think I can do that much on my own. Many thanks, Jane
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