I recently had all my kids tested for celiac, as it runs in my family. I have celiac, as does my mom and one sister. All of us are biopsy confirmed. I had my kids tested at the University of Chicago celiac program free screening. I thought the oldest might be positive because he has constant belly aches, esplosive bowel movements, frequent bowel movements and loose ones. He is very gassy. He has headaches and mood swings. He cries a lot, seems to be when he is hungry. He has dark circles under his eyes. He also still wets the bed, which may or may not be related. He is 11. He seems "addicted" to gluten. He has been so sick that he asked to try the gluten free diet before the results came in. He was only on it for about 4 days before the results came in, so we did not see to much in the way of improvement, but he did not complain about stomach aches quite as much. Once he found out he was negative, he ate some crackers and immediately got sick. He has asked to go back on the gluten free diet, but keeps changing his mind because it is such a strict diet and he does not feel he "has" to be. If it is not celiac, where do I start? Do I go to ped GI? An allergist? someone to deal with his headaches? a therapist, because it is mental? We tried his regular doctor who said to limit milk and gave him previcid and an allergy med, neither of which has helped. I am at my wits end and need help. Any advice will be appreciated.
Mother of 3 boys
All negative for celiac per bloodwork