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About costellosfriend

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  1. Hi cdog: I'm very interested in celiac as a possible cause of sz. My son is dx'd with sz, and we're trying a gluten-free diet to see if it helps his symptoms. How long after you went gluten-free was it that you felt this change in your personality and spirituality? I'm sorry to hear that you feel like you've lost something important to you. I do believe that our receptivity to religious experience depends on our brain chemistry. I remember hearing of a man with epilepsy who had intense mystical experiences. He refused treatment for the epilepsy because it interfered with these religious experiences.
  2. My adult son may or may not have a gluten sensitivity. We're trying him on a gluten-free diet. It's early days but it seems to be helping. He doesn't have any GI symptoms I don't think. He is dx'd with schizophrenia. He's on a fairly high dose of an antipsychotic (almost twice what the manufacturer recommends). We tried switching him to a disc melt version of the same med at the same dose. This version melts when it hits the saliva in your mouth. It's designed to prevent the patient from cheeking the pill and spitting it out. We found that my son seems to have anxiety attacks on the disc melt version of the same med. This doesn't make sense to me. Then someone pointed out on a different forum that the disc melt is absorbed in the mouth rather than the intestines. Now I'm wondering if he absorbs a higher percentage of the drug when it's the disc melt version and the anxiety is a sign that he's getting too much. Is it possible that he has villi damage which is interfering with the absorption of his meds even though he doesn't have GI symptoms? Has anyone else found they had to adjust the dosages for their medications downward after going on a gluten-free diet? Thanks.
  3. Hi badlass: I'd be interested in hearing how the diet works for you. My son is dx'd with sz. We've been trying the gluten-free diet to see if it helps. We started March 16, but we've had some set backs. So far the longest we've managed to go without an accidental glutening is 8 or 9 days. He says the diet helps but can't specify in what way. He does seem to sleep better and have less anxiety. Good luck to you.
  4. I also replied last night and now my reply is gone. There must have been a glitch.
  5. Hi Kathryn: I asked the same question about a week ago. I'm still not sure what the answer is. I've heard everything from 2 weeks to 4 months! I'm just finishing day 8 of eating gluten and am having no ill effects, but I don't have a positive diagnosis, so I may not have celiac or gluten intolerance. I did have a little discomfort right at first, but I think you're going to have that with any change in diet. It could be it'll get easier for you with time. If it doesn't, I'd advise you to go for as long as you can stand then have the test. Very frustrating that you have to go through this. Good luck!
  6. My God! I am sooooo tired! I'm on day 7 of my gluten-full diet. Aside from some extra gas and gaining a pound or so, I'm not having any problems. But I'm so tired. I'm sleeping ok, but I get up feeling like I could use an extra few hours. And today I'm totally wiped out. I want to curl up in a corner somewhere and take a nap! I'm wondering if this is my first real change from the diet. It reminds me of how I was some ten or more years ago. Always exhausted. My mother finally made me go to a doctor. I never got a satisfactory answer. Then somehow the fatigue went away. Maybe when I started low-carbing? I don't remember. I do remember I never got that burst of energy that some people get on low-carb. Maybe not being constantly exhausted is my burst of energy.
  7. That's a good point. If the test comes back negative, you'll probably go back to the diet anyway. Sometimes it's best not to have a diagnosis, like when you're looking for insurance.
  8. Yes, and I hope to move him in that direction, but right now he's still fairly psychotic. Currently he's largely refusing meat and eggs. And when I spent 10 bucks on some nuts he threw them away. Don't ask me why. I'm sure it made sense to him. He was adamant they be thrown away. When I rescued the container and said I'd eat it myself, he threw them away again, this time emptying the package into the trash so that I couldn't retrieve it. He said he was saving me from having to eat them. Like I said he's psychotic. Probably thought they were poisoned. That's the resaon I don't cook for him a lot - he believes his food is contaminated. Luckily his thoughts are clearing up a bit. He just started using an antipsychotic again about a month and a half ago. We're going to take a gluten free cooking class together next week.
  9. Same here, Monael, except my side issue was insomnia.
  10. If I were in your place, I wouldn't bother. I've been eating a low-carb diet for several years. I had some problems I had lived with for years clear up on low-carb. There were several things that might have been the culprit in my previous health issues. One of those is gluten. I never cared enough to have it tested, because, well, who cares? I'm happy with my diet, and it's no one's business but my own. Meantime I've learned that gluten is a possible source of my son's schizophrenic symptoms. A gluten free diet seems to be helping him. But I want to know for sure for two reasons: 1. he's hospitalized periodically and I'd like to be sure the hospitals provide him a gluten free diet if he has a gluten sensitivity and 2. the diet is expensive and he's living on disability, he can't afford to eat this way if it isn't necessary. So I'm having myself tested. Why not him? Since he's on Medicare, I fear his doctor will refuse to run expensive tests when his only symptoms are psychiatric. If I turn out to have it, though, that may justify testing him. So here I am on day 5 of eating gluten. So far I feel fine.
  11. Hi: This question is for those who've done a gluten challenge after being gluten free for a while. How long before symptoms return? I've been on a low carb diet for over 3 years now, not perfectly gluten free, but nearly so. My symptoms that cleared up with low carb were mild tummy troubles (manageable without doctors or OTC meds) and moderate insomnia. I remember both symptoms extending back to childhood. My working hypothesis is that it was eliminating gluten from my diet which caused these symptoms to disappear. I've decided I want to be tested for celiac. I've completed three days eating a lot of gluten. (People keep saying eat 3 to 4 pieces of bread. Bleh! I'm eating all the foods I've been missing for the last few years - pizza, lasagna, macaroni, etc.) Aside from a mild change in my BM and little bit of gas - which could be caused by any radical change in diet - I'm seeing no return of these symptoms. I'm sleeping like a log. I keep seeing people here talk about starting the gluten challenge and immediately being in so much discomfort they can't continue. Not me. How long before I conclude gluten wasn't the culprit after all? (I'm more worried about regaining the weight I lost on low carb than anything else.)
  12. Go ahead and try the diet. It can't hurt, and it might help. I'm sorry you feel like your doctor thinks you're a head case. This is precisely the reason I don't go to doctors with vague symptoms anymore. For a while I kept going to doctors saying I was exhausted. They'd run a few tests and say I was fine. Then they'd suggest an antidepressant. Personally if I were you and the diet helped me, I wouldn't even go back to the doctor and tell her. She'd still think you were a head case. Good luck!
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