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Laura333

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About Laura333

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  1. I agree with Janet; I'd try to get copies of the old test results, including the endoscopy/biopsy reports. Depending on which test was "slightly positive," that may be enough for a diagnosis by some GIs, which could help you in the credibility department with other professionals, not to mention family members. And, a firm diagnosis might be helpful in the future for other assistance as well, deducting on tax returns, etc. But, in the meantime, I'd certainly remove the gluten since you KNOW it helps him! If you didn't have the insurance issues, I'd say retesting now first; but, if you won't be able to do that anytime soon, I'd remove the gluten now so your son will feel better NOW! That said, I know how hard it is to struggle with the question of "is it or isn't it gluten causing the problem(s)"... My DD is 6, also had "slightly positive" bloodwork at almost 2 (only the antigliadin IgG and IgAs, but they were super high), negative biopsies (they took 3). But, even our GI at the time, who was as dismissive as they come, said it was still possible that she had celiac and that they had just missed it with the biopsies they took, since it is a patchy disease. He didn't have a problem with us trying the Gluten-free Casein-free diet, saying it was a "healthy" diet, but he wasn't supportive either. Four years later, I KNOW we did the right thing removing gluten (for many, many reasons, but that's a long story!)...she tests positive for allergens such as corn and milk...but I still feed the nagging need for "proof" that gluten is a problem.
  2. What bloodwork would you expect most GP doctors to do to screen for celiac? A few years ago, my doctor did TTG IGA and gliadin IGG and gliadin IGA, which were all negative. I'm still having symptoms that may or may not be caused by gluten, and am thinking about asking the doctor to test again. I'm just not sure he knows which test to order, so I'd like to be able to request specific ones in case he's agreeable. The lab is probably going to be Quest. Also, I know all tests are more accurate if you're currently eating gluten. I definitely feel better off gluten, and have been trying to limit it for the last 2 years or so. I'll do real well for about 2-3 weeks, then give in and start eating it again -- a hamburger roll here, a full pasta meal there. Is that enough for bloodwork to show positive, or should I eat pasta every day for a week? a month? before requesting bloodwork? Also, does the lab used make a difference? As I mentioned above, I'm pretty sure my insurance will use Quest.
  3. Wait a minute. I think a large part of your stomach problems is this: " was on antibiotics in increasingly stronger (an often overlapping) doses beginning the first week January to get rid of a sinus infection that would not go away. The GI trouble began toward the end of the last round of antibiotics" It is well-known that taking antibiotics can cause havoc with the normal intestinal flora -- while destroying the bad bacteria (the sinus infection), the antibiotics also kill off the good bacteria in the gut/intestines -- which can create IBS-like symptoms, produce or worsen food intolerances, and many other problems. Many people take probiotics while taking antibiotics to prevent this. Once this balance of good vs bad gut bacteria is upset, you have to take steps to replenish the good, and it's not always easy. But, once you do, it's quite possible that your food allergy problems will either go away or not be as bad. I'm not explaining this very well, but if you're interested in learning more, try googling antiobiotics and probiotics. I'm having similar issues myself, but because of additional (seemingly non GI-related) symtpoms, I've gone through a lot of tests, only to test all negative. I decided to try going gluten-free to see what would happen, and many of my symptoms were immediately better. Symptoms return when I eat pasta again. Then, I realized I have taken several month-long courses of antibiotics during the last 2 years (without supplementing with probiotics), so this may be the true problem for me as well. Funny, I've read about this stuff for years because of problems in my family, but didn't apply it to myself! Good luck!
  4. Hi, A few years ago my daughter had a celiac panel done, which included Antigliadin IgG A (positive = >30); hers was 149 Antigliadin IgA A (positive = >30; hers was 68 Recently, I asked my doctor to run a celiac panel, and this is what my results look like: Gliadin IGG, EIA (positive = >17); mine was negative Gliadin IGA, EIA (positive = >17); mine was negative Was the testing done on me the same or different than my daughters? It looks different to me. I understood her results way back then -- they tested for antibodies to gluten. I have an appointment in a few weeks with my regular doctor, and I'll discuss it with him then, but I wanted to get your opinions here as I'm not sure he really knew what to order (he's a GP, not a GI). Thanks!
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